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Colonoscopy tomorrow
One yr post surgery, so doing the prep today. 1st half gallon done. another half gallon at 8pm. Having a colostomy It is easier (to me)than before. Just empty bag every now and then in a bucket easier than running to bathroom.
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How Long To Feel Normal Self Once Chemo is Done?
Hi there... Next Tuesday I will have my 12th and last Folfox and Erbitux treatment. This is my second time with cancer but the first time I did the Xeloda pills and didn't feel the effects I have with this chemo (tired, naseaus, etc.). I know everyone is different but about how long do you think it will take for me to feel…
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my up and down CEA- down this time :)
CEA had been rising again- 4 wks ago it was up to its all time high of 359. I got it drawn again this past Tuesday and got results today- it went down 80 points in 4 weeks to 279. Still high, but definitely a big drop in the right direction. The time before when it went up so much was following my 8 day cruise to Mexico…
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Can we take capectabine instead of infusional 5-FU ?
Hello, My mom has been diagnosed with stage3 rectal cancer with 10 lymph nodes/26 found to be +ve for cancer. After surgery she has started on FOLFOX, two cycles of chemo and radiation is over as of now. On her second cycle, it became very difficult to find good veins and she had to be poked for multiple times for the 48hr…
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Painful Shoulders/Arms
The ones I've been complaining about for months? Turns out it's "impinged shoulders", (inflamed around rotor cuff)I've had it since my surgery, sometimes not so bad, sometimes severe, it's been so bad I couldn't raise my arms for the past week, talk about pain. LOL, a cortisone shot in each shoulder, and the pain has…
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PET/CT showed a small spot
So I am now drinking - and not enjoying one bit- miralax/gatorade mix. I do not tolerate this well always end up throwing it all up anyway. blech! Colonoscopy tomorrow - hoping for a clean scope.
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Remission?
So the question is: When does a cancer patient proclaim remission? I am happy to report my last scan in August was clear. This is two good scans and 6-months. Living life without Chemo is a very good thing. I wish anyone currently in treatment the best and know there is a future beyond treatment sessions and chemo side…
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terminology for newbies
From time to time,i check the Colon Club to see what they have might be of interest to this site. I originally found a list of abbreviations that helped me a lot. Today I checked, and there was this list just waiting to be liberated and reside on this site. If you are new, these terms should really help, and it's good…
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Taken off Erbitux
Went to get my treatment today but platelet count was below 100,000 so the onconlogist won't give a full treatment. Last week he gave me only 400ml of Erbitux. The week before that I got my full treatment except he stopped Avistin and gave me 700ml of Erbitux thinking it would help keep my platelets up. Today when I just…
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Hi
Hi everyone it's been awhile just dropping by to say hi To let everyone know you are all in my thoughts and prayers So far I'm getting clear scans back I go back in oct to see the Onc again - Still have the port and still get tired I want to think it's Allergies making me tired I need to see an Allergist to find out for…
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Mucinous?
Hi, I'm new to this board, so bear with me if this a duplicate question.... When I was diagnosed in January of this year with Stage IV, my onc said that it was mucinous adeno carcinoma. So even though there’s no mets in my liver or other organs (but my colon was breached and present in lymph nodes), doc says the fact that…
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Questions about Neuropathy
Hi everyone! I have been searching on the web for answears if I will ever get better from the neuropathy but I don´t find much from cured people. My chemo was 8 times Oxi and Xeloda pills, this took 6 months. After my chemo finished in May, I have been getting worse and now I have anxiety over this, if I will be like this…
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Roller coaster again
Thought we were in for a rest, but husbands scans show more tumors in the liver, lymph nodes and rectum. No surgery possible, so back on the chemo, avastin and nulasta(?). Radiation for three weeks as well for pain. Dr said this was the last option, Erbitux wasn't working anymore, and we will have to see if the other will…
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Hi I'm new to this site
I am now 53. I was diagnosed with Stage 4 colon cancer on September 9th, 2010 with mets to the liver. I had a colon resection (right hemicolectomy), 6 treatments of Folxfox, liver resection and 5 treatments of Xeloda. CEA went down after the liver surgery (March 21, 2011) to 10.1 and started rising when I started chemo.…
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blood clot
Hi. I'm in the hospital with a blood clot in my lung. Glad I made the decision to go to the ER. I was feeling pretty dumb for a while because by the time I got to the hospital the pain was gone. I'm learning it is better to be safe than sorry.
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Anger
My 19 year old daughter informs me last night that I have become an angry person with three specific examples. So I am asking for your opinion regarding yesterday's incident and you tell me if it was justified anger or I am slowly becoming a psychopath. Give me your real opinion, I won't get angry (maybe). When I got to…
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Maglets& kathiM need to know about you!LOL.
Hugs my friends!
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An interesting chart
Blake, I'm going to post this. Can you make it clickable? This is very heartening I think: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2720081/figure/F2/
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Scans or no scans??
I need some feedback. My husband had surgery on 3-25-11 he is currently on his post chemo. He has not been scanned since right before his surgery. Do they normally scan during chemo? His cancer was rectal with one lymph node involved. The worrisome part is that on his first PET scan before surgery and chemo there was two…
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Follow-up to Ending Radiations
First thanks to all of you for your posts and kind words. I cried when I read them. Here's the outcome to my radiation dilemma. I ended up in the hospital for the 4 last days. I spiked a fever so went to the ER and was admitted. I ended up on IV antibiotics for sepsis, bowel enteritis and a UTI. I also received two units…
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How To Delete Duplicate Threads
This only works if YOU start the Thread. It's different if you reply to a post, then you can edit but only for a certain amount of time. Click on your post link Select EDIT Look at the bottom of the text box and you will see a button. That will delete the double post.
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Just returned from Tokyo---1st big trip since diagnosis
Hi all, Simply sharing: I just returned from Tokyo and everything went better than I could have hoped. I had my ilestomy reversed in October, went through the Depends stage, and for the last few months have had very few accidents (and can usually trace why, like drinking red wine). Anyway, I purchased some Depends before…
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From England:"....Avastin,Erbitux and Vectibix will not be routinely available on the NHS
for people with metastastic bowel cancers, those that have spread to the rest of the body......." Economics$$$$$$$$$$$$$$$$$$$$$$$$$$ so reports The Daily Mail
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Stereotactic Radiotheraphy
Who has had this done? Anyone here have it done for lymph node mets only? Can you tell me what it was like for you? I have good news. My CEA stalled out at 3.6. It stopped rising! But still I am challenging the long-term plan for my treatment. I pushed my oncologist for SRT or cryoablation. He was against cryoablation…
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Hi
Hi everyone it's been awhile just dropping by to say hi To let everyone know you are all in my thoughts and prayers So far I'm getting clear scans back I go back in oct to see the Onc again - Still have the port and still get tired I want to think it's Allergies making me tired I need to see an Allergist to find out for…
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Ending Radiation
I have just completed my chemo portion of the neo-adjuvant chemoradiotherapy for rectal cancer. If the machine had not been down for a couple of days, I would have also finished the radiation. I'm supposed to go back for two treatments, on Tuesday and Wednesday. I honestly think my body can't take any more radiation and I…
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PET/CT Today
Scanxiety hit during ZUMBA class on Saturday. It was so wierd, I was dancing and stomping around saying "FU Cancer" in my head to the beat of the songs and the next minute I'm tearing up and can't breathe and I'm thinking.."What if it's back, what if I didn't dodge the bullet, what if I only got a year clear???" Will get…
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Just returned from Tokyo---1st big trip since diagnosis
Hi all, Simply sharing: I just returned from Tokyo and everything went better than I could have hoped. I had my ilestomy reversed in October, went through the Depends stage, and for the last few months have had very few accidents (and can usually trace why, like drinking red wine). Anyway, I purchased some Depends before…
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Any ideas on foods to eat....
My husband just had his 3nd treatment of FOLFOX. He can not eat or drink anything cold for about 10-12 days after his treatment. It is getting really hard to find foods that he can eat and things to drink that taste okay luke warm. He is getting tired of soup and warm water. Any ideas would be greatly appreciated as he has…
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CP9 - COLON PALOOZA #9 - anyone that hasn't purchased airfare or reserved a room yet?
I am copying and pasting some of Suzann's info from an earlier post below my post here. I know many have planned well in advance, but there are many of us with ongoing treatments that do not have that luxury. If anyone is still interested in going, American Airlines has a nice sale right now for flights into Chicago from a…