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Tribute for Jennie
I was kinda thinking that Sunday at the kick off of the Rams @ Dallas game, those of us who can view might raise a toast to Jennie. Just and idea to say farewell to a sweet lady and special friend.
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Hi mates it is FRIDAY ,any interesting plan for the weekend?
I'm still on the beach but started 4th round of Xeloda and Avastin yesterday so...again headaches ! Hope gets better as I pretend boating on Saturday!. What about you mates?
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Post Treatment questions
I haven't posted since April, just trying to survive and function. But I have questions. I was diagnosed in April 2011. I have chemo/radiation for 6 weeks. Healed from that and had my entire rectum removed on August 16th last year with a permanent colostomy. That was followed by 8 of 12 chemo treatments with 5FU and…
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Reoccuring
My mom was diagnosed with Rectal cancer the week of Christmas in 2008. She was diagnosed with Breast Cancer in the beginning of 2009. She had surgery to remove the Rectal cancer and a Lumpectomy on her breasts. She is now a breast cancer survivor, but the rectal cancer came back, She was re-diagnosed The week of Christmas…
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Peritoneal mets
I've had these mets since December 2011. I've been on different cocktails of chemo and am currently on a trial drug. If you have these mets, can you answer a few questions: what kind of pain do you experience? what do you take for this pain? do you have fluid build up on your abdominal cavity? if yes, how does your doc…
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First scan this AM since starting UPDATE
trial study. ..Keep your fingers crossed. No results for a week (WHY is that???), altho' I am hoping maybe the doc will stop by infusion room and give us a clue as to what, if anything, is happepning. Wishful thinking on my part. Angela
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I need a little encouragement
I just read that idlehunters passed away and I'm devastated. We have emailed each other and more or less, our cancers took the same paths. I'm a Stage IV survivor since late 2006 but...CEA seems to be going up about 50% every month (now 76), have mets to lungs and lymph nodes. It's not good. I'm on Xeloda alone and it…
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NED Status but taking Xeloda?
I was wondering if anyone is taking Xeloda as maintenance when you are NED status. I was diagnosed stage 4; lung nodule removed February 2011, completed response to the rectal tumor with chemo/radiation, LAR with temp ileostomy in September 2011 to remove scar tissue (all pathology clean), and followed by 6 months of…
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Cancer survivor is now a naturopathic doctor
Cancer survivor is now a naturopathic doctor You can see Doctor Joe Brown's incredible story at www.DoctorJoeBrown.com Dr. Joe Brown, Naturopathic Doctor, has more to offer to patients than his knowledge and expertise. He offers his personal experience in battling cancer. In 1998, Dr. Brown was diagnosed with late stage…
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Need your coments mates!
Since I'm on Xeloda and Avastin I got some undesired symptoms .Did any of you ever had any experience on it? Headache I think nose and sinus are involved, is more at the level of my eyes and Eyebrows . Deafness and pain in left ear. Very tired, short of breath wen walking and feeling like heavy and painful legs. Some back…
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Info on Raise a glass to Jennie - for Maglets and anyone who missed orig post
Here is the info originally posted in the thread by Doc_Hawk who had the inspiration to raise a glass to Jennie at the start of the football game she was to attend. _____________________________________________________________________ Dallas Cowboys vs St. Louis Rams Saturday 8/25/2012 at 8:00 PM Eastern time zone Honolulu…
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IV Vitamin C
Does anyone here get IV Vit C? If so can you point me to any studies on it? I have to convince my oncologist before he will approve. He says I can take oral supplements - he ok's that, but wants more data before considering the IV C. Thanks
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Chemo start - how many days after liver resection
Hi Just had a live resection on 2 nd sugust. Still recovering at home. Have another RFA required to be done to one tumour that was not resected. How many days after resection is it wise to restate the balance mop up chemo without taking any chance of recurrence. Have been off the chemo since 4 th June, it is over 2 and a…
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Special Mention by Jennie's family
Jennifer Crowe Jennifer S. Crowe, nee Fiedler, 55, of Freeburg, Ill., born March 7, 1957, in Belleville, Ill., passed away on Saturday, Aug. 18, 2012, at Memorial Hospital, Belleville Ill. Jennie worked as an administrative assistant and was a member of the Cancer Survivor Network. She was preceded in death by her parents,…
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Vickilg How are you doing?
Hey Vicki - I was thinking about you and your husband and wondering how you were doing. I know initial news usually is shocking until it is absorbed and think more clearly. I hope you are ok. We both have treatment Monday. Sandy
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just wondering
hello all, thank you all for the help during my chemo hell, i was just wondering if anyone is doing any natural treatments and if so i would love to get some info, i have to think there has got to be more than getting nuked and feeling like crap!! im probley crazy but what the heck!!! after almost 4 years of getting beat…
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Thread gone
Yesterday I think it was someone had posted that their friend had stage ii colon cancer and there was cancer in her lungs too, I can't really recall the rest of how the post went or what they were asking. I replied something to the effect that with mets in the lung it probably wasn't stage ii disease but stage 1V. I asked…
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2 years post surgery and still get pain at the surgery site ... anything similar?
Hello all, I hope this post finds you well. I have a quick question that I am hoping you might be able to help with. Quick history, I was dx'd in May of 2010, stage 4 rectal cancer with a single met to my liver. 6 weeks of radiaion prior to surgery. Had Surgery in September of 2010 for both the rectal tumor and the liver…
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Buzz?
Where is Buzz? Where are the "old" people I used to know...I come to this board and now I don't find my family....what happened? I miss you guys all. And for the "new" members, I wish you guys the best, and although I don't post often, I am thinking of you guys too.
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worth repeating
I credit pete43lost_at_sea for originally posting this link. I am one of those who advocates being open to a multipronged approach to dealing with cancer, provided it is evidence based. Even more so now that it is clear standard cytotoxic chemotherapy is rapidly failing my wife. click on this --> LEF over recent months,…
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Book recommendation - "Your medical mind" by Groopman and Hartzband
I just finished this book and found it helpful to me in making a recent decision and, most likely, decisions in the future about my medical care. I'm talking about decisions in the gray area - where you can go more than one way. I think it might help some other people on this board as well. It's a very good read about how…
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Planned chemotherapy cancelled
I am actually very pleased by this. I saw my oncologist today. After the lung nodule was found, he recommended surgery and follow-up chemo. Today was my first visit with him following the surgery. He now believes we should be in an observation mode, since he believes the potential benefits are outweighed by the known side…
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Telling my daughter
I've struggled with what to tell my daughter about my dx. It seems like the good people on this board are pretty open with loved ones about their disease, but I've hedged with my daughter. She found out she was pregnant just after my stage iv, chemo for life, terminal, blah, blah, blah, dx. And we were getting a 2nd…
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back to the usa, pete in chicago saturday and sunday for metametrix conference
so i have formally started my naturopathy training course. I am flying off in 12 hours back to the good old usa, chicago. land in chicago 10.30pm friday night late and then off to conference 8am saturday. the conference is summarised here. http://www.metametrix.com/news-and-events/events-calendar/ale-workshop-0812 I have…
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Update on my mom
Ok after several nervous weeks and 4 unplanned weeks off since her first chemotherapy infusion my mom receives her 2nd infusion today. If you recall after her first infusion her blood levels were horrible and they discovered she had a UTI infection which got into her blood. She completed her antibiotic of cipro and the…
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Do you all sleep ALOT?
Hi, I am doing cyberknife this week, but have been off chemo and radiation for the past three months and I still sleep alot. I generally sleep 10-14 hrs a day. Before being diagnosed I could get by on about 6 hrs. I was just wondering if any of you sleep this much when your not going through treatment. Thanks for ny input.
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Spine mets & brain mets - how much time is left?
My sister was dx with Stage 4 colon cancer 3 years ago. She's done numerous rounds of chemo and last spring was given a "break" because she was doing so well. In June she started having trouble walking and they discovered a met to her spine. She had 21 rads and was scheduled for follow up PET scan next week. Last Friday,…
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Three years since diagnosis
Three years ago today I was in the hospital for colon resection surgery. A colonoscopy had found a tumor which was obstructing my colon so much that the scope couldn't get past it! It was cancer, and cancer cells were also found in three lymph nodes, so I had the full six months/twelve treatments of Folfox. I was a stage…
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just checking in
Hi all. I am just checking in. I was dxd in July 09 with stage 4. I am 2 yrs and 4 mths clear so far. I am so upset about Jennie, just cant believe it.
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Caregiver Advice
So my cancer is spreading. Doctor still feels that I can get this into remission or at least that's the goal. In my gut I feel like I'm going to be okay and will be around for a long time. My husband in the past always knew I would beat this and when I would talk about possibly of not making it he would beg me not to think…