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Dying from Cancer...
My in-laws were in very good shape health-wise. They ate a good diet, not overweight at all. Few health issues even for their ages (Bill - 91 & Joyce - 88) They walked every day. This past Saturday, they were involved in a very tragic car accident. Joyce suffered severe trauma and went into a coma. She died Sunday morning…
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not being the typical patient
My mom's oncologist has told us a number of times that she is "not the typical patient." I have mixed feelings about hearing this. I know it's supposed to be a good thing, the fact that she's been fighting stage 4 stomach cancer for close to 3 years now, when statistics said 12-16 months. However, my mom feels so tired…
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Iliostomy care
One of our members wrote a great blog post about stoma care but now i can't find it! Im not having any issues, just want to be prepared. Does someone remember the blog I'm thinking about. Thanks all - Robin
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Bum is raw
Hubby is on xeloda and it is making his bum raw; he has tried desitin but wants me to ask you guys what worked for you. Any advice? Thanks Brenda
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The Sundance Channel: “The Garage Talks”
Well, it was down to just the three of us…me, my nephew, and my new niece… We thought we might turn in ‘early’ for a change – it was about midnight, but I caught my second wind and we ended up staying outside in the garage and talking some more. I had the windows and side door open and also opened the big garage door to…
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Update
Hi all, Follow up from CT scan and elevated Liver enzymes: Had liver biopsy which led to diagnosis of autoimmune hepatitis. Pelvic CT was abnormal followed by abnormal pelvic ultrasound. Tomorrow D&C to see if I have endometrial cancer. There is evidently a connection between Lynch syndrome and endometrial cancer. I don't…
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anyone else having wheatgrass daily ?
as i look out my bedroom window into the sunroom, i see a field of green. not rolling hills but of wheatgrass. its cold here and the wheatgrass grows best about 18 degrees celcius. the sunroom is the warmest room in the house. so i got the wheatgrass juicing going really well, so how easy is it to add a good handful of…
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I have to rant
I'm really getting fed up with products that are labeled as "easy open" or "convenient zip-lock" and that sort of thing and then still need to have someone else open it for me! This isn't just a problem for those of us with neuropathy and cracked fingers from chemo, but people with arthritis as well. Just before I sat down…
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Helen - how was your MRI
Hey Helen - did you get your MRI on Wednesday? I was thinking about you and hoping everything is ok. Sandy
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Colonoscopies
I sure appreciate all the information you all gave regarding my last question. I was wondering what your schedule has been post treatment as far as your colonoscopies? I had one a year after my diagnosis and had a polyp removed that left alone would have become cancer. My doctor is sure he removed it all and said he…
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metronomic ? Daily xeloda, etc?
Credit to Manwithnoname for introducing me to metronomic (repetitive low dose Chemo) therapy in his recent post. I found research to support this, and it appears to be a possible option for my wife who can no longer tolerate conventional full dose chemo. is anyone else here on a low dose drug, say for example xeloda, daily…
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Finished Radiation and Chemo
Finally finished up my Radiation and daily chemo. Now I get a 6 week break before surgery. I can "pretend" everything is semi-normal for a short while. Have CT scan in a few weeks to see if it shrunk any. I sure hope so!
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oxaliplatin
Hi My friend is undergoing of hemodialysis for acute renal failure.the begining of renal failure was after the third cycle of chemotherapy with oxaliplatin and xeloda. Has anyone had renal failure due to oxaliplatin? Thank you so much for your time. daisy
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Home from LAR surgery
It's been a long hard week but surgery was successful, lymph nodes are out (andclean!), and the temporary iliostomy appears to be working. I'll catch up on others' posts as soon as i am able, but in the meantime, i hope you all are well. Best, Robin
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MGN 1703 by MOLOGEN,AG of Germany has rec'd positive
review at Phase II, no further info outside of its "prolongation of progresion free survival..." from email from stock,not cancer,site
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Colon Palooza 10, Buffalo, NY, October 11-13, 2012
Hello all, I will be hosting the 2012 Colon Palooza. It is a fun time by all. Mark your calendar for CP10, Buffalo, NY, October 11-13, 2012, at Embassy Suites, www.buffalo.embassysuites.com Rate per night: $149.95 + tax for a double Queen Suite or Single King Suite. Please use code “CPA” when booking a room online or when…
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i thought the fight had been fought weeks ago
poor Pete, was being picked on and I remember saying just bypass anything you don't like and let it go. Now someone may or maynot want some information from Pete and all hell breaks loose.....those of us doing things out of the norm just kills some...I have mets to the liver, not doing chemo---shot me--I am dying my…
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I need as much advice as possible!!!!
My mom recently has been diagnosed with colon cancer and she's planning on getting treatment at Sloan Kettering in NYC. We live in NJ and there is a NJ sloan facility but apparently they were talking about waiting until mid Septemeber to start chemo and that they were understaffed or something.It made my mom very unsure…
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Manwithnoname/Tony has sent me a link to his Facebook profile
Ok, folks, it appears apologies may be in order. I've looked at Tony/MWNN's profile and I'm pretty confident he's legitimate. It has both recent posts referencing his son's surgery (but preceding this argument) and older posts referring to the fundraising efforts. There are also photographs of his son post-surgery. As…
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Update on my mom
She went in today and had the spot of skin cancer on her nose removed. The doctor got it all on the first try and she goes back next week to get the stitches out. Last night she finally broke down and told me that she was "scared as hell" so we talked about it for awhile. Finally, she was at ease enough to go back to bed…
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Doc called and it turns out to be squamous cell rectal cancer
Well just found out this afternoon that this is indeed what I have not so happy but it is what it is.If anyone has info on the cancer please let me know the world wide web always direct me to colon/rectal cancer and I want details on my specific cancer.I go in the morning to john hopkins to see susan gearheart so that has…
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Liver pain
If there is such a thing? I had a CT guided biopsy in April 2012 for met on my liver. What was believed to be met in my liver turned out to be peritonial mets on top of the liver. That's a good thing I guess. Ever since then, I've had pain in my right side where the biopsy was done. For those that have mets to the liver,…
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anyone try zaltrap chemo
I'm currently in week 2 of my 8 week 24/7 5 f/u treatment. Monday my Dr was excited telling me there is a new chemo for colon mets patients called Zaltrap. Has anyone tried this chemo yet? He said I could try this instead of this 8 wi treatment. Pray everyone is doing well. Jeff
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Biopsy results in - lung nodule likely metastatic from CRC
It took a while but I finally have my pathology report. They used Cytokeratin 20 and 7 and TTF-1 to identify the cancer. The report doesn't seem conclusive to me with language like "compatible with colonic primary" and "supports a colonic primary" but I'll get more information when I see the oncologist and surgeon next…
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Avastin news
short video. Avastin & Improving Survival or June 2012 article ASCO 2012: Continuing bevacizumab with second-line chemotherapy after first progression extends survival for advanced colorectal cancer
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Connecting on Facebook
Someone mentioned that we can ad a link to our FB page. I haven't found out how so I would like to put my FB out here if anyone is interested. I don't play any of the games and I am particular about "why" someone is a friend (I don't like to share my FB with people that I don't trust), I think that there are some here that…
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Plucky & Braelee
Are you still doing Folfox? How are you doing? Has it gotten any better? I was thinking about both of you, both of you are ahead of me on treatment. I did treatment #3 today, feeling very tired and queasy tonight. Let us know how it is going. Have you reduced dosage? Hoping everything is going well. Sandy
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Waiting for treatment
Hi so my 56 year old mom was diagnosed with colon cancer about two weeks ago and we got two opinions so far. My parents decided to go with Memorial Sloan Kettering hospital in NYC. They have an appointment with the oncologist there on the 28th of this month and they still haven't put the port in for my mom's chemo. I don't…
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Bone mets - symptoms?
my wife will undergo several scans in a few days, including a bone scan to try to get to the bottom of her pain. She has pain at top of thigh in groin area when she moves her leg. also some pain in upper right arm when she strains, it as in pushing her self up. she is concerned the doctor thinks she has cancer in the bone,…
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steved
Just wondering how the surgery plans are coming along.