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No "BINGO" called yet

mojogirl67
mojogirl67 CSN Member Posts: 306 Member
in Colorectal Cancer #1

Hey guys..I am still here. It has been over a month since I had have the stroke like symtoms and Hawaii came to a halt.From everthing I have read, two months is average to survived this without treatment. They started me on steriods which I'll call the drug from hell. I didn't even recognize my own face .I have stopped all steriods and it was the best decision I ever made. I recognize me finally inside and out. I am taking high dose Bowelia (frankcinese) and bioavailabl theracurmin.  Both of these are powerful antii-inflammoratory supplements..with Boswalia proven to reduce brain edema and it does NOT have the side effects of steriods.. I have said before that I may die in my sleep tonight but I will go MY way. They say 2-4 % get brain mets., It's crazy. My oncologist was shocked that my lung tumors had never bothered me in any way and showed little growth in 2 years and now this...I still believe that the human cell is being destroyed with a constant battering of of environment and from 5g...this is NOT progress. 

I seriously dont fear or look at death like most do.I guess that's why wake up and am like "ok"? are we going on a trip today??..I'm ready..bags all packed. lol..I know, bad sense of humor lol ...With the way that my luck runs, I will be caught in limbo and lingering...For someone who was so active and mobile, it sucks. No being able to drive sucks..I am not in any pain....no symptoms other than recoverimg from steroid swelling...that has been worse than aything else...I have also been a loner my so having pepole around ALL the time is a big change. I'm am grateful even if wasn't MY plan. I want thank each of of you for the love,hugs.tears, and just "reaching out". CANCER SUCKS and nobodody knows more than those who themselves within this forum.

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Comments

  • Trubrit
    Trubrit CSN Member Posts: 5,808 Member
    #2
    Still with us - Woo hoo!

    Every day with you around, is precious.  

    I am very glad that you are not in pain. That makes the end much more traumatic, not just for yourself, but those around you.  So, keep up doing what you are doing, and we will pray that the pain stays silent. 

    It is always a blessed day, when you post - even if we know the news may never be the words we want to hear.  Your honesty is a gift to those who are looking death in the face. May we all come to have your strenght. 

    Cyber hugs!

    Tru

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  • SnapDragon2
    SnapDragon2 CSN Member Posts: 722 Member
    edited April 2021 #3
    You have no idea how much I

    You have no idea how much I love you!

    Research Benagene.  Might buy more time, Idk.

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  • Kazenmax
    Kazenmax CSN Member Posts: 463 Member
    #4
    Well sh!t. I'm sorry you're

    Well sh!t. I'm sorry you're having a tough time. It sucks that's this is happening. I'm so glad you have no pain. I hope you can get outside in the sun and relax. I wish there was some way to let you know how much your posts have meant to me. You are a free spirit and whatever happens next, I hope you can sail through it.

    All my love

    K

     

     

     

     

     

     

     

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  • SandiaBuddy
    SandiaBuddy CSN Member Posts: 1,381 Member
    #5
    Still standing

    I am glad to hear that you are still here and will have the opportunity to see the Spring--that has always been my favorite season, and I am thankful for each one I can experience.  It is good to hear that the supplements are helping you.  I wish you all the best during these difficult times.

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  • Canadian Sandy
    Canadian Sandy CSN Member Posts: 784 Member
    #6
    It's hard to find the right

    It's hard to find the right words to say mojo. Just know that my heart goes out to you and many prayers also. I believe that a higher power is guiding you along. Be strong!

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  • abita
    abita CSN Member Posts: 1,152 Member
    edited April 2021 #7
    I am happy for you that you

    I am happy for you that you are still able to maintain feeling good and enjoying your time.

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  • NewHere
    NewHere CSN Member Posts: 1,433 Member
    #8
    Thoughts With You Mojo

    My thoughts are with you.  I sent you a PM about some things to check into.  Maybe can help with low side effects....

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  • myAZmountain
    myAZmountain CSN Member Posts: 417 Member
    edited April 2021 #9
    Think about you everyday

    Sad we missed an opportunity to meet in Hawaii --hope that the days ahead are full of peace and joy, and I hold out hope that a miracle will happen! Me ke aloha nui !!

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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    edited April 2021 #10
    I'm so glad to see your post

    I'm so glad that you posted as I've been thinking about you so much when coming on this board.  It's good to hear you aren't in pain and you are living the life that you wanted.  Steroids can be terrible when the side effects kick in.  My hope is that you continue to live life to your fullest and come back here to share your great attitude with others. 

    Kim

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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #11
    I'm so glad to see your post

    Duplicate.

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  • feckcancer
    feckcancer CSN Member Posts: 189 Member
    #12
    Thank you for posting

    it's always good to hear from you. 

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  • AnneO1965
    AnneO1965 CSN Member Posts: 182 Member
    #13
    I am ever so glad to see your

    I am ever so glad to see your post. Thanking the power that is that you are not in any pain.  I too am of the loner type, and being stuck inside because of COVID and now chemo, my family is IRRITATING me in the most loving manner...  LOL  I've even resorted to locking my bedroom door, but the grandgirls will sit in the hallway and talk to me through the door. LOL no PEACE I tell ya.

    My hope for you is that your days are as many as you are not in pain, and not a day more. That you feel the love your family and friends have for you until the end. That when you wake up and realize you are still here that you say "ok, I'm here, let's do this". 

    Much love and kisses and squishes to you Mo, I'm with you spiritually and really wish I had gotten to know you years and years ago.  I'm ever so glad that I did get to "meet" you though, you are my soul sister.

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  • beaumontdave
    beaumontdave CSN Member Posts: 1,303 Member
    #14
    Your a rock, M

    Those steroids do mess with one's self-image, as well as all the other side effects. The chubby face thing bugged Cindy quite a bit, but swelling in the brain is a particularly delicate thing, so she abided it for awhile. I'm glad your alternates are working well, and you find your center, with all that swirls around you. Having been through so much with cancer, I imagine most of us feel acutely alone with our issues and mortality. I did feel that way somewhat before, and I certainly do now, I regret that my belief and respect for most disaffected folks, has suffered a bit in the process. I'm sorry your stifled by your circumstances, not driving and the like, but you ever seem to meet the difficult things head on. Spring is here and I hope you're finding the best parts of it, while going about your day. Here the blossoms and the fragrance strike me daily, and I work on being at least as grateful as I am annoyed by life's inconveniences, lol. I'm glad you feel well and that you checked in, hugs and love.....................................................Dave

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