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Enema
Had a gastro-something enema this morning. I am scheduled to have my colostomy reversed June 17th!!! School gets out the 14th, my class reunion is the 15th, and it's "bye-bye Oscar" on the 17th!!! I've had this since November of '12, and feel very fortunate to be able to reverse it.
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Start of 3rd Chemo Cycle
Hi! everyone. Just want to give an update on my mom. She started her 3rd cycle yesterday. Still on Oxalipatin, Avastin and Xeloda pills. Blood test came back with good results. Her hemoglobin now is back to 12 (she was 6 prior diagnosis). CEA Level prior surgery was 189, then went down to 8.6 post op and after 2 cycles,…
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Life Lessons from a Cancer Fighter!
check out this post: http://www.caringbridge.org/visit/joemetzger/journal Life Lesson After 18 months of fighting cancer & dealing with health care professionals and people each day... The people who treat me like I'm LIVING are so much more fun and so much better to be with than the people who treat me like I'm DYING.…
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Update
I haven't been on this board much for a long time. I took a nice break from treatments and didn't post anywhere too much. Also I tend to "hang out" on Colon Club and in COLONTOWN on FaceBook - in particular moderating FOUR CORNERS which is for stage IV or recurrent patients only. At this point of the game I find I can do…
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$$$$
Anyone know of a good organization that can help with medical bills? I looked up Patientresource.com and they have a lot of organizations on there, but i am not sure were to start looking. so if anyone has any idea of a good one please let me know what your experince has been with them or what you heard about them. thanks…
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Colonoscopy done today
I had my 1 year follow up colonoscopy this morning. Clean colon, yay!!!! The worst part was yesterday not eating and the worst of the worst was drinking MoviPrep. Sounds like something to drink to watch a good movie. No way!!! No watching anything drinking that crap. I ran and ran and had runs and runs for hours last…
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Scanxiety...new plan from specialist
I finally had my first consult at The University of Md yesterday. The appointment went well...they took 6 or 7 vials of blood to run tests. The dr is going to check CEA and other markers as well as start the process of genetic testing. We discussed my treatment so far and the pain that I have been having Since February. He…
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GOOD NEWS today! (but I have questions....)
So, today was Jason's 5th chemo treatment & because of an error in the lab (imagine that) they did the test to check his CEA (which wasn't scheduled to be done until May 22....) but I'm so glad they made the mistake! His CEA has gone from 74.52 back in February down to 8.96 today! NOW, for the question......I "kinda" know…
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CTscan today - wish me luck - UPDATE
I'm having my 6 month ctscan today. I am anxious and welcome good wishes from all. Hopefully the scan will be clear. (Unfortunately last one showed a lung nodule which was taken care of surgically.) Unfortunately, I'm not too hopeful. However, if all is clear, I graduate to 1 year scans. Yeah! By the way, the imaging team…
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Intro to the new guy
Good morning all, Scubadan here with the short version. I was diagnosed with colon CA met to the liver in Sept 2008. After my colon resection aand then a small bowel obstruction surgery (caused by the 1st surgery) I started chemo with the biweekly Folfiri regimin and it kept the liver lesions at bay for a little over 3…
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My Cherokee Irishman Has Gone Home
All My Friends, With the help of the wonderful Hospice group, my Ron was transported to our home Saturday at 2:30 PM. Robert & I rode with him. It was expected that he would expire shortly afterward. However, he managed to hang on until 9:10 AM Sunday. There was no struggle, only my own. He woke as the vent was removed,…
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Tooting my horn
I did the colon cancer walk yesterday and got the award for Top Individual Fund Raiser. I raised $1400. Whoo hoo!!!
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Another loss today
Hi, Everyone. Today Bill and I went to Virginia to attend the funeral of our former pastor and dear friend. He had colon cancer...I've been struggling with this a lot since I heard that he had passed away. Survivor's guilt is wearing me down. I'm SO grateful my cancer was discovered early, but I weep so for those who have…
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Back and left side pain...
I have been having a lot more pain than usual the last 2weekS. I have had back pain since February. The dr has sent me for x-rays...which showed nothing. I have also had a CT scanner...again it showed nothing. Most of my pain is in the lower back. I also get a funny pain in my hips...like I hit my funny bone. But, the…
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Scansiety
I get my pet scan results tomorrow...Yikes
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my wifes hipec surgery
background: I am 43, my wife 39, we have 2 boys, 5 and 9........................... my wife was diagnosed with stage 4 colon cancer in March 12. she had 12 rounds of chemo (1 every 2 weeks ) last one was sept 12. she was scheduled for hipec dec.4,2012 ..somehow she got an awful staff infection in her foot late october and…
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Got Spam?
What’s the use of flagging posts? Spam here is nearly continual, and unless the website’s IT guys lock down archived threads, it will continue this way forever. Why do the “simple fixes” always seem to elude the brainy individuals that run things. (?)
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JoeMetz - Update
Greetings Its been awhile since I've been on here. April was a very difficult month. First, I've noticed that we have MANY newbees on here. Welcome, but I must say... each time I see a newbee here, colon cancer continues to really make me mad. Real Mad! So, for the newbees... here's a quick recap: November 1989 to March…
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Diarrhea
My mom was diagnosed with appendical cancer 2008. She had her 3rd surgery this March 4 Which her colon was removed. No colostomy bag And no chemo. She has tried several OTC meds and perscription meds but she still has diarhea. She eats what the dr's/dietition suggested. She is down to 110 pds. She has been back to the dr.…
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More lovely emails
Seen a few of these mentioned by others but seem to have had a steady stream of various proposals- financial and romantic- come through the ACS mail system. My favorite so far is Miss Helen who at least is honest in finishing here proposal with a mixture of hearts and dollar signs: Hello dear, how are you today i hope you…
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Anyone have pelvis fractures from radiation therapy?
Hi. In Sept. 2009 I had stage 3/4 rectal cancer treated with radiation therapy for 5 weeks before surgery along with Xeloda. I had surgery in Jan. 2010 with permanent colostomy which was uneventful & healed fast. No evidence of cancer in lymph nodes. This was followed by 3 doses of chemo (12 weeks) which really made me…
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I'm Back Cea level.
Well it's been about a year since I posted last. I have been doing real good. But today I went in for my checkup and my CEA level went up from a 3 to a 13. My PET Scan from last week was all clear. And my CAT scan from March were clear. So he is sending me for a MRI of my liver next week. He said last year when they did my…
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Thank You All So Much For Your Prayer & Healing Thoughts
I will sleep very little, if at all, tonight. I made the decision today to have my beloved husband removed from life support systems at noon tomorrow. His condition has rapidly deteriorated over the last two days. The ventilator is now completely breathing for him and the pacemaker has taken over 100%. He is in a drugged…
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Promising news about ETBX-011
http://online.wsj.com/article/PR-CO-20130506-904075.html www.dailyfinance.com/2013/05/06/etubics-platform-generates-solid-immune-response-i/
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As i can't delete duplicate post,a melange of useless info instead
Potential new way to detect colorectal and other cancers at http://uknow.uky.edu/print/29994 interersting sentence near end on metformin,tho article onMyc and AMPK http://medicalxpress.com/print285240873.html www.newswise.com/articles/view/602564/?sc=dwhn for latest on PIK3CA…
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5th year,the golden ring?
May 20, 2008 I was dx'd with cc, I was 50 years old. June 7, 2008 I had an emergency resection at Mayo in Rochester, MN Stage 3b dx, 6 months of rough times chemo Take down of colostomy in Feb 2009 I have a new granddaughter! Born Oct 24, 2012 to my son and his wife. Charlotte Luana I continue forward, rather rising to the…
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Folfox after treatment #3 just need to vent
I just had my 3rd treatment last Wednesday. The side affects haven't been so bad this time, maybe because I skipped a week and had extra up time due to my beautiful grandson being born on chemo day !! I wasn't going to miss that for infusion for anything in the world !!!. Treatment #2 was aweful. Had chest pains so bad the…
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hello
Hello everyone. I have been very busy juggling work and taking care of mom. So far, side effect wise, mom is tolerating it. Side effects are hands, feet and tongue are turning black. Slight nausea, loss of appetite and ocassional fatigue. Blood work always comes back good (Praise God!) She is on her week off and will start…
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Staring 5 fu, any words of wisdom
My father is starting 5 fu next week after just completing r- chop for lymphoma, which he did great with. The r-chop was rough and he is just building himself back up. Can you tell me how tough this chemo is? Are there many side effects? I will take any words of help if anyone has any. I would like him to get through this…
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Totally OT-what scents conjure positive memories for you?
Coming home today from getting my bloodwork done (if it's still good, I get to wait until the fall for my next scan; if it's not good, well...), feeling stressed, in part because I hate the smell of my doctor's clinic and that smell seems to follow me home. I think it's the anti-bacterial stuff they use all the time.…