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Transport wheelchair advice please
For those of you who have used transport wheelchairs for yourself or others ... would you mind sharing what features to look for? Thank you ~ Cynthia
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Johnnybegood Is Here
She & her hubby got in around 8 this morning. We have been at the hospital all day & have come home for her to rest a bit & take meds. The pulmonogolist talked to us & said he could remove the tube, but chances are he could not breathe & with most other systems failing, he would not last. I explained to Ron that if the…
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Colonoscopy
I am having my first colonoscopy since surgery. Diagnosed 4/11/2012, chemoradiation, surgery June, chemo Folfox July- December. I have had clear scans since, but now I am having trouble again with my BM's. I have urgency but not much comes out and I have frequency - 20 - 30 times a day. Has anyone had rectal cancer that…
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CEA steady rise, treatment options - moving to stage 4?
My mom's CEA has been rising since she ended the treatment in Dec'11. Dec'11 - 2.55 Mar'12 - 2.67 Jun'12 - 3.05 Sept'12 - 3.32 Dec'12 - 3.65 Mar'13 -4.68 Apr'13-5.06 (Also before surgery - 23.9, after surgery - 4.55, after chemo/rad in dec'11 - 2.55) We did a PET CT in dec'12 which showed "Metabollically active focus along…
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Advice for newly diagnosed mCRC-liver, possibly bone.
My husband and I are just starting our journey with CRC. He was diagnosed this last weekend following a trip to the ER following severe nausea, vomiting and fatigue. The diagnosis was not reached immediately because of a positive HPylori test. After doing the two miserable weeks of antibiotics for HPylori, the symptoms of…
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Rare but severe (and scary) side effect reported about Avastin:Flesh-eating disease
www.cbc.ca/news/health/story/2013/05/02/avastin-flesh-eating-disease.html
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emotional breakdown is ok
Ever since i found out i have stage 4 colon cancer my emotions have been all over the place. I come to terms with the posability of dying at an early age (im only 31) and leaving my wife to be a widow at a young age as well. But then there are times that i dont think that i can handle this anymore and break down and cry…
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Voice America Radio Interview about my colorectal miracle therapy result. UPDATED
Voice of America Radio Interview about colorectal miracle therapy result. if you are open minded and interested in therapies that work in a palliative context you might learn something. thats my specific experience. if you are happy doing conventional therapies, then maybe skip the interview unless you are really curious.…
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Ray Doc-Hawk
Anyone have an update.
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4th round-down for the count
I want to first thank everyone for all the responses to my original post on oxaliplatin side effects. It was very helpful. I did experience most of them, from pin and needles in the hands, to cramping hands, muscle twitches, jaw spasms and the strange throat feeling like swallowing glass when drinking (even room temp).…
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Came home
After 11 days in the hospital got to come home today...thank goodness, I don't think I could take the hospital bed another day. Came home with a catheter. Any advise? My problem right now is a swollen scrotum, have ice packs on it. Always something. I'm so tired, going to bed, won't know how to act without any…
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A dilemma...worse than cancer?
I'm not sure if this is the right place for me to ask this kind of question, and it might be better directed to a different kind of forum, but everyone here has been so supportive through my mom's illness, so I figured it can't hurt to try. For those of you who have been following my posts about my mom's situation, you'll…
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colonscopy fear
hey all im new my dad had colon/rectal cancer 3 yrs ago im very high risk and im suppose to get a colon test done next week its my first and im very nervous how did ure colon test go was you nervous?
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KEDWIN1 (Lucy)
Hi Lucy, I decided to open up a new post for you since you posted on one that was a few years old. I also sent you a PM with a few suggestions. Best wishes, and send a note to me anytime.... Cynthia Posts: 1 Joined: Apr 2013 May 01, 2013 - 1:47 pm Bag won't stick New I need help, my husband has colostomy. He was in…
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Lung Mets - Chemotherapy following resection?
Hi, when I read about lung mets (colon), it seems that one strives for surgery and chemo, if any, is used neo-adjuvently. My boyfriends doctors don't seem to be inclined to give my boyfriend chemo following the lung surgeries that he is currently undergoing through which they expect to resect everything (my boyfriend is…
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All My Wonderful Friends
Hubby was more alert today & understands at least part of what is going on. He is so frustrated at not being able to speak with the ventilator. I tried pen & paper, but writing is not good. Robert can interpret what he wants much better than I. He understands that JBG is on her way. The Nephrologist put him on 24 hr.…
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Folfax reduced treatments from 12 to 6
Hello everyone, newbie here. I've been searching all over the web for information on people like my husband. He was diagnosed December, 2012. Right hemi-colectomy, 2 feet of colon removed, 13 lymph nodes. Stage 2 with no lymph nodes involved, large tumor removed with resection, very successful. Oncologists and all other…
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Question about the liver
Hi everybody. I was wondering if anyone could tell me if there has been metastasis to the liver, wouldnt tbere be symptoms? I keep wondering why 3 Drs are so concerned about my liver when I feel better than I have in a long time. I would think if the cancer had come back that I would feel realy sick. I am supposed to be…
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IBS
As well as having mass in colon Dr. Thinks IBS is causing the horrible pain.Does anyone have suggestions on what could help feel better if it is?
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Starting radiation
I will be starting radiation for my shoulder (right) and neck (c1-c6) -- do reduce pain. I've been having quite acute pain in my shoulder, shooting down arm - but it's inconsistent (usually just at night). I also have hip pain bu not doing anything about that now -- it's not too bad and also that area has been radiated…
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Just recently diagnosed with colon cancer
My name is Justin I am 24 I am in the Hospital as we speak, I have had a history of drug use for about 6 years. Started as pain in the back pain doc gave me narcotics well that went to being a bad junkie, I am now getting help from the methadone clinic. If not for them giving me blood test 4 diffrent times I would have…
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Can any body make use of ConvaTec wafers (125259) for two-piece ostomy system?
I have an overabundance of the wafer (flange) part of ConvaTec's "Sur-fit,Natura,stomahesive,flexible;wafer with flexible collar"--all this written on side of box),item #125259. Ifyou can use them,kindly PM me to where and to whom and i'll send some to you
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Asking For Prayers Please
I write this message on the hospital computer which the nurse brought me. My husband has taken a turn for the worse & is in ICU. He was okay at 10 AM & when I arrived at noon, he had been moved. They think he vomited & aspirated, so he has been intubated. He is semi-conscious as his heart works at 10% and the machine…
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Mammogram Letter Wording
Got my results back in the mail today and was wondering about the wording and if you other ladies have the same. It used to be that "we are pleased blah blah and it is normal." But this letter said "we are pleased blah blah and no evidence of cancer." Just thought that was really strange that the wording was changed that…
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6 down, 6 to go
Haven't been on the board in a while but just wanted everyone to know I"m halfway done with my treatments! Got unhooked on Friday and today I'm starting to feel Abby Normal (Mel Brooks reference) again. Session #5 was terrible with the nausea but this one (6) was pretty mild. Just tired a lot which I'll take. Some…
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Coming home....and ostomy questions
Hubby is being released today. I'm so tired of the back and forth to the hospital and toting the kids around, so in some ways it will be easier, but with all of the running I haven't given much thought to how things will be at home. We have lots of stairs - I think he's planning on spending the days downstairs on the…
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Spam email
I know this doesn't have anything to do with cancer, but I just joined this board this week and I've received 2 spam emails in the CSN email with those scammers asking you to put money into a foreign bank account. I know it's just junk mail, but how can I stop it or can CSN prevent it somehow? It seems they are below the…
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Mets returned in lung so back to chemo I go.......
Well, it was a nice break. This is my first posting so here's my quick story, Dx Stage IV in May 2008, colon resection, FOLFOX, liver resection, short NED time until spots returned in lungs, then FOLFIRI, a little more NED time, lung spots persistent, tried FOLFOX again but had to drop the Oxaliplatin due to reactions.…
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How to take time off of work under the Family and Medical Leave Act
Coloncancerblows posted regarding having to use her vacation time for cancer treatment ... thought I would post this information here on a new thread as it may be helpful to her or others in the US who are in a similar situation. Best. ~ Cynthia This info is from the Cancer Legal Resurce Center Chronicle: Taking Time Off…
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Video panel discussion on "Treating Unresectable mCRC"
Currently,its last video listed (i had posted on a few of these earlier ones as well as on specific KRAS mutations perhaps being susceptible to Erbitux,etc) ...So many research teams have come up with other genes,proteins,etc that are important in CRC yet there are no substances available to use against them////…