-
ANOTHER ANGEL
You oldies may remember Pokismom who used to be active on this board in 2009/2010. It saddens me to inform you that she lost her battle recently. Her funeral will be in Honolulu this Friday. Although I never met her in person, we used to correspond through PMs and a couple of phone calls. She fought a hard battle and…
-
For the Newbies/comments on OLD threads
Please look before posting on old threads. If you look at the dates and its more then a couple of months old, then it is an old thread. Many of us have lost good friends, and when you comment, especially comments as if that person is alive it hurts a bit. Please DO look at the older threads, the advice might be helpful to…
-
Anyone had nerve damage from chemo or radiation?
My husband just received radiation to his liver for stage 4 colorectal cancer. He has been on FOLFOX and FOLFIRI on and off for 2 years. His liver surgery failed to remove all the cancer. Since the radiation he has had severed pain that radiates from his hip and lover back down his leg. The pain is so severe he can not…
-
Tomorrow is our appointment
After a cea of 5 and a ct that showed a liver lesion in an area of focal fatty sparing that grew from 7mm to 11mm in 5 months hubby did a PET scan yesterday we will finally have an answer at 930 tomorrow. Provided his complete **** of an oncologist doesn't tell me I have to wait to hear him talk first. I loathe this man. I…
-
New member and a question about "smelling & tasting" the hospital...
Hi all. First an introduction. I'm a 26 year old woman in Houston. Today is my birthday and I'm sitting in chemo treatment right now (FOLFOX) at MD Anderson. I was diagnosed when I was 25, back in January, with Stage 3B colon cancer. They did the resection and found three of 71 lymph nodes were positive. So I've been put…
-
Just diagnosed with stage 3 colon cancer
New on here and looking for support. There aren't any groups in the area where I live. I have been looking for survivor stories to help keep me positive and stumbled upon this website. I had 18" of my colon removed on 3/5 , had PET Scan today, Chemo starts on 4/10. I have never been so terrified in my life. I try to stay…
-
Fighting CRC on FaceBook
For those of you who are on Facebook... Search for Colorectal Cancer. There is a great resource on Facebook that can be used to make other people aware of colorectal cancer and screening... https://www.facebook.com/#!/CombatingColorectalCancer?fref=ts Make sure to Like the page so your friends can connect with this…
-
NED for now 2.0
Hurray, husbands sono from monday was clear, bloodworks ok (despite the liver counts which are always a bit elevated since chemo), CEA 1.0 (0.8 in february), docs content, we happy. 17 months since surgery for colon tumor and 2 livermets... Next check (with CT) end of august... Happy hugs from Cologne, Germany Petra
-
"To be or not to be"...this HAMLET might suppress colon cancer( and other stuff)
http://medicalxpress.com/print288344824.html same site with link to more technical original article on new DNA-based classificationfor CRC http://medicalxpress.com/print288374223.html slower scoping finds more polyps www.medpagetoday.com/MeetingCoverage/DDW/39307 on new type of scoping…
-
Worried
Hi everyone. I am new here and have not been diagnosed yet, but I'm almost positive. My first colonoscopy is in June. I worry because I am so much in the dark. I have been having symptoms of problems for over 2 years. Starting out with just belly aches. then, it turned into being sick with gastroenteritis. I changed my…
-
Chemo failed. Revisiting prior one
Irrotecan failed. Lung and liver nodules have grown. Doc putting me on oxiplaytin. This is a hard chemo. I'm scared
-
My friends ... update on my husband
I have not been on the board in a while because my husband has taken a serious turn for the worse. It was rather sudden actually and we are now in our end days together with in-home hospice. Thank you to those who sent me private messages inquiring about my family. To all who I have shared time with here ... thank you from…
-
Regorafenib (and/or mytomycin C)
Has anyone heard of/used Regorafenib? I guess my oncologist might be thinking of this as an option for me, at some point in the future. Here is a link I just found: (note: I don't have any connections or vested interest -- just trying to gather information and share some along the way)…
-
seeking opinions
Hi everyone: Most of you wont remember me but a few will. My sister Brenda 3_16 had stage 4 colon cancer. diagnoded 3/2009. passed away. 1/2011. We were both on the web site a lot during her illness. (she was 43) Here is the question/concern/ When she was diagnosed, the Dr's advised me to have a colonoscopy, which I did.…
-
Where is Kaye Kaye, doc, (Ray) and Jason
Status on any of these three????
-
"Cochrane systematic review and meta-analysis of adjuvant chemotherapy for stage II colon cancer"
http://abstracts2.asco.org/AbstView_132_110783.html (for info only)
-
Our Final Goodbye
We laid my husband to rest today. The graveside service was simple, but elegant. Each of us will remember the way Ron touched our hearts and lives.. JBG had an opportunity to lay a single rose on her grandmother's grave. My mother passed away almost seven years ago and they were very close. My parents' plots are side by…
-
Hi mates it is Friday here, any interesting plan for the weekend?
Wife has gone to Madrid until tomorrow to have some fun with some friends,she deserve it,so not plans for me probably lunch tomorrow with my sister and kids (and of course mum)! Whater is still terribe here! What about you mates?
-
I'm Back and Still Here!
For those of you that are wondering what happened to me i have just been suffering in every possible way. My family has been doing their best to keep me going and my husband, dad, and father-in-law, are the ones at the top of the game. From the horrible side effects i got from the chemo and not being able to do my normal…
-
Surgery coming up soon,I am very scared
I will be having surgery to remove Mass from Colon in few days.They are hopefully just removing mass and piece of colon.But they won't know for sure until they get inside of colon.Also don't know if it is Cancer.They will do a Colonoscopy the morning of surgery.This is probley common presisure??I have a lot of concerns of…
-
I jut registered personalisedtranslationaloncology.com
you may ask , what personalised transaltion oncology ? see answer below, i added the work personalised to focus on the individual genetic and personalised clinical focus we all deserve as cancer patients. Clinical and Translational Oncology is an international journal devoted to fostering interaction between experimental…
-
Nano knife for inoperable tumours
Seems interesting couldn't find it mentioned already and I didn't realise this tech. was actually available. (not to be confused with Gamma knife) http://www.dailymail.co.uk/health/article-2124221/3-000-volt-jab-shrunk-inoperable-cancer-half.html "It takes less time to do, has fewer side effects and patients can have it…
-
Colon Cancer Awareness 5k walk/run
In case any of you are in/near Calhoun County Michigan (Battle Creek Michigan)... I will be participating in a fundraiser aimed at raising awareness of Colon Cancer and the Colonoscopy screening procedure. This is a very important purpose as it surely will save some people from going through what we (stage IV CRC patients)…
-
Home from Hallwang
Well, I am home from Hallwang and will report all that happened and will be happening below: First off, I will start with my pre-treatment bloodwork. Everything was pretty normal, even with my liver which has the biliary stent with bilirubin at 0.5 (normal is 0.1-1.2), Alk Phos enzymes a little high, other enzymes normal…
-
*More Photos ~ Off Topic - VERY Interesting Phenom this Morning...
I was up early today and saw this on the lake by me. The mist on the lake was catching the sun just right so it created a rainbow type effect! Pretty cool...
-
Funny goings on
I am reposting a part of a reply here, wondering if anyone else has experienced this interesting side effect. All of my body hair (arms, thighs, face, abdomen and ladies parts) has gone, except below the knee, where if anything, it is far hairier than before treatment. I sat in the bath yesterday and watched my leg hair…
-
5 sessions to go
This Wednesday will be my 8th session and I'll start to see a light at the end of the tunnel with 4 left after that. Working and going thru chemo has really started to hit me with the fatigue. The good news is that Tuesday the 21st is my last day of work until all my chemo sessions are over which will be the end of July. I…
-
What should I do to prepare for chemo?
I'm so glad I found this site. I'm stage 3a, had my colectomy 4 weeks ago, port in today ( yikes but not too freaked out.) Chemo in about a week and a half. Standard Folfox regimen so far, seeing my onc Monday. What should I do now? How should I prepare my home/kitchen? Vitamins now? Pot card now? Thanks ahead of time for…
-
hemp oil...redux
I saw someone resurrected a hemp oil thread in order to spam it (disgraceful), anyway i read the thread and was astounded by some of the assumptions, first of all it aint 'hemp' oil it is the stuff with THC so it makes you high!, second this Rick Simpson guy isn't selling it, he was giving it away and showing how to DIY.…
-
Hi, I am newby here...
Hi, at all I am newby here, despite I am caregiver and colorectal cancer researcher since more than 2 years, my father is stage IV patient, and I was working in other cancer forums. However, I noticed it more interesting nowadays. My native language is spanish, so my english is not great, but I will try to do the best. I…