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The future, Dr Nesslehut and vaccination and my recent experience
http://www.youtube.com/watch?v=WHP65mYLPQo He is my doctor, I am up to vaccine 7. I had a massive cea ca199 spike after last vaccine, which i hope is tumour cells dieing. My cea was 12 when i arrived germany 4 weeks ago, i did 12 days immunotherapy and my cea spiked to 44, 4 days later it was at 6. since then I have done…
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Entitlement
The last few days I've been feeling a little bad, lots of diarrhea, tired all the time, don't want to go to work, and so on. I was starting to think I'm entitled to a bad day or two sometimes. Since I finally complained to my doc about it, he says, "You think maybe it's because you've been on chemo for 4 1/2 years"? Like…
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Folfiri and muscle spasms ??
I have been experiencing awful spasms along my spine, lower back, shoulders, neck and face. It began with treatment one and has continued throughout. Has anyone experienced this before and if so any suggestions on relief? Often this pain is so intense it keeps me in bed with a severe headache from the spasms. Usually this…
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Twilight of treatments
Today I started a new treatment with Mitomycin every four weeks. Debated wheather to add xeloda but the side effects were to too strong with Mitomycin that I decided that would do a stand alone first. Had two second options andwall the great oncs came very close to similar recommendations. Since I was dx with stage four…
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Happy 4th of July, dear friends.
I know this is not perhaps the happiest of days for many of our members (and I think "family" when I say that, just so you know). But I hope that everyone is going to enjoy the day to the best of their abilities (and for those of you in other countries, have a wonderful day just because!). We are heading to my sister's…
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benedryl
I will have folfox tx #15 this Friday. Since tx #6, I have been given Benedryl. I hate this, because it makes me all jittery, then they have to give me something to knock me out. This makes me feel groggy all weekend. Does anyone know if you have to have Benedryl? I know it is to prevent an allergic reaction, but it has…
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low dose xeloda
the onc just prescribed low dose xeloda ( 500 mg/day) to my dad as maintenance chemo. does anyone have experience with low does xeloda? it will be helpful to know what to look out for and any know abt good results as well rgds A update ( 8th July ) just as i was thinking and discussing maintenance chemo with the onc my dad…
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work during treatment
Is it possible to work during the chemo and radiation treatments? I'm a working general contractor and my work is physical but I feel if possible it would be therapeutic and better for my financial sit. if I could continue to work through much of this.
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【➽】 Immunotherapies Trial Finder (USA, Canada, worldwide)
Hello, I read this forum since long time ago and I've learnt a lot from you all... I follow your struggles, rejoyce with the good news and I have cried many times with the departures of dearly loved members of this board. I've posted this in other board, where I used to post -I thought someone else would post it here but,…
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First post-Hallwang CT results
I know some of you have been following my experience at hallwang with interest, so I wanted to post the results of my first post-treatment CT scans. Pete and Ren W are also taking treatment in Germany (not all at Hallwang), and have been including treatments, diets, supplements, etc... that Hallwang does not offer. I went…
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Avastin confusion ...
Has anyone here heard of using Avastin if currently NED? Is this not a drug to cut off blood supply to tumors and starve them to shrink? If one is NED what is the point of this drug being used? Would it be just for prevent tumor growth? If that is the case wouldn't we all be on this drug? I am very confused on this one.
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Hellish hemorrhoids, ravaging radition and numb, numb hands.
Advice on hemorrhoids (who came up with the spelling I wonder?) please. I swear that the pain I go through during and after my BM's is due to the two large and getting larger hemorrhouids I have. Sometimes its all I can do to walk. I've tried several creams, even mixed in a little lidocain myself. Polysporin has been the…
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OT-My daughter is graduating today, against the odds
Well, maybe it's not entirely off topic! My middle child started high school the same week I had my first surgery. I had been sick, really, scary-sick, for months. I went to the hospital via a 911 call, in agonizing pain, and completely missed her first day of school. Two weeks later we learned I had cancer. Because my…
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new problem from all the great cures from cancer
Well after suffering through all thr pain of what I thought were hemrrhoids for nearly a year and seeing expert doctors i was in Texas for the birth of my grandson when the pan got so bad i went to see one more doctor. This doc actually spends more than five minutes with me. The doc says i'll bet you had radiation and…
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“We Didn’t See This One Coming, Did We?”
How am I supposed to feel now about Recurrence #4? How would anyone feel if it were them? I believe the operative word when I broke the news to the community was ‘stunned.’ That’s certainly how I felt... <p class="MsoNormal" style="m
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Duplicate Post...
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Here’s The Deal….Test Results Now In…
Before we begin, I just wanted to once again thank all of my friends here for their caring and compassion. The outpouring of emotional support was incredible and I felt kind of guilty rattling everybody’s cage, before I had the answers in, but don’t think I could have bit my tongue for that long anyway with those type of…
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Neuropathy
Steve should be starting Folfirinox this week. It will be the first time he has had Oxilaplatin. I realize there has been a ton of discussion regarding the neuropathy that is caused by the oxy. Unfortunately, I haven't payed much attention as it has never been an issue. I am wondering if there is anything he can do to…
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Anyone heard from Doc_Hawk?
It has been a couple of weeks since Ray (Doc Hawk) has been on this site and I have not had any response to email to him. Has anyone else heard from him? Prayers that he is without pain. Marie who loves kitties
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As effective as Irinotecan but with less side effects:ATT-11T
www.globes.co.il/serveen/globes/docview.asp?did=1000857611 and aspirin use with BRAF mutation www.cancernetwork.com/colorectal-cancer/content/article/10165/2148727 and a bit on protein km23-1 and CRC http://medicalxpress.com/print291569230.html
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Pelvic lymph node dissection
The recent pet scan lit up a node along right internal illiac vessels in pelvis with suv-19.5 and interval followup had shown mild increase in size. The CEA has rose from 4.65(in Mar'13) to 8.69(now) so the doc says its mostly malignant. The onc says since its only single node, surgical removal will be beneficial. We will…
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Well Husband starting Chemo again
So, the onc took my husband off of Stivarga and has put him on Zaltrap with the pump. His left vocal chord is still paralyzed and the scans show that there are no tumors in his upper left lung, so that is good. but the tumors he has have grown a bit (that is the bad news). But overall, we are pleased with the results. This…
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trouble connecting (not cancer)
gosh I am really unable to connect with the forum....sometimes I can see it but I cannot sign in or respond to anyone.... sorry....has anyone else had a problem....mags
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Interesting discovery made by Canadian researchers
"Over and over again,surgeons the world over were noticing that cancer recurred sooner if patients developed infectious complicatiions such as pneumonia after surgery...." www.edmontonjournal.com/health/Cancer+discovery+Montreal+Calgary+researchers+find+novel/8601851/story.html another article on this with link to original…
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Resumed Chemo
I had my colostomy reversed June 17th. Needless to say I had no tx that weekend. The two weekends before I had my tx with no avastan. I had tx yesterday (and thru the weekend) with no avastan. My next tx (in two weeks) I will resume with Avastan. Blood levels yesterday were good, except for an big increase in one of my…
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Probably just wishful thinking, BUT.....
Has anyone ever heard of someone having Stage 4 colon cancer w/ tumors in the liver that are BENIGN?.....Yeah, I know, probably just wishful thinking, but thought I'd ask anyway. Jason went today for a biopsy of one of the tumors in his liver since the chemo that shrunk the primary colon tumor 50% hasn't done diddly for…
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Goal 1 met!
Last year about this time, my husband and I went to Petit Jean Mountain (Arkansas) and attempted to take the 2 mile strenuous hike to Cedar Falls. Well, I made it thru two switchbacks and had to turn around...just couldn't do it! So, a year later, we give it another try! It took us 4 hours but I made it down to the falls…
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Pepe???
Hi Pepe, Are you ok? I haven't seen any posts from you in a while. Miss ya. Please let us know if you're ok. Hugs, Cyn
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FIRST DAY WITHOUT PAIN KILLER!
Dear Friends, Yesterday was the fisrt day that I did not take pain killers in 2 months. The Xeloda and the radiation seems to be working really well. Sofar I have no side effects after 11 days, besides a couple of borderline diarrheas. I have been on a almost vegan diet for 2 months, juicing, occaisinally I eat eggs, fish…
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test results
Hi all, I recieved my ct scan results and they show three small lung nodules. they will need to be biopsied they are alling for a vats procedure is that a common way to biopsy these things?