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Johnnybegood Is Free
In the wee hours of the morning, an unexpected storm raged through and as it moved on, took the storm raging within my child's body. Hers was not an easy death, but she is free now. There is so much to say to each of you, but words will not come now. For the moment, just know that we love you. Love, Karen(Wolfen)
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Recurrence after 2nd liver resection
It has been less than three months after my second liver resection and my CEA AND CA19.9 markers were elevated. i just got a sonography / ultrasound done and - there u go ! A 4 cm lesion in segment 7 - a new one ! the resection was done for two lesions ( about 3 cm or so each ) in segment 4 earlier in mid April 2014 and…
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PhillieG where are you
Your comments and off sense of humor are sorely missed here. The forum is just not the same without you and Craig. Not that there aren't wome really wonderful members here.
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Best US Hospitals Ranked for 2014
Hello friends... This list is on the CNN website today; I just thought I'd share in case anyone was interested. Have a nice day! Best overall hospitals 1. Mayo Clinic, Rochester, Minnesota 2. Massachusetts General Hospital, Boston 3. Johns Hopkins Hospital, Baltimore 4. Cleveland Clinic 5. UCLA Medical Center, Los Angeles…
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Cyberknife Has anyone had this procedure?
Just wondering who has had cyberknife to the lungs and what the outcome was. Everything I read tells me it's better then traditional chemo, or standard radiation that usually kills the nearby healthy cells, because of the lungs moving as we breath. Cyberknife moves in tune with one's breathing. I've also read that it's not…
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just to make us realize loved ones around us
Hey everyone, Well, here I am, decided to post a very touching story. I thought it would be nice up hear for all (myself included) to realize that we should appreciate every moment, and always try to seek for the good memories, good relationships even when our loved ones seem to annoy us, or seem to have changed.…
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To add insult to injury
I'm going in at 2 pm for a root canal! It should be against the law. These are the low days and root canal on top of it! Should be against the law!
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info I didn't want to know
So while I was at work on Friday, the nurse told my sister that she didn't think my husband would make it through the week. She told my sister that she didn't think that I have accepted it and that she should be blunt with me and tell me. You know what, I am aware and I didn't want a timeframe because I wanted to enjoy…
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Am I a cancer survivor?
Hello, I'm new here. I had a colonoscopy that revealed a stage 1 growth. I was terrified. 2 weeks later I went under the knife and had a 4 inch section of colon removed via a gnarly 10 inch vertical incision on my stomach. Surgeon says they got it all, no need for chemo or radiation therapy. Said he want's to "follow" me…
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Any news on JBG or Wolfen?
I keep praying for them both! Lin
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Cannabis Oil
So, as my husband is under hospice care at home - i am wondering if Cannabis Oil would help him right now, or hurt him. He was given Marinol by the doctor (an drug to make him want to eat made from the marijuana plant) it made him vomit everytime i gave it to him - so i don't know if he would have the same reaction to…
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A little bit on Y-90 (SIRT)
http://journal.frontiersin.org/Journal/10.3389/fonc.2014.00120/full
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New License Plate/And New Physical Issues
Just ordered a new license personal plate today with the American Flag flying over MI and personalized letters of LVNLIFE either meaning Loving Life and/or Living Life and both which I'm doing since being diagnosed. Just because I'm NED doesn't mean I've not got my problems because the radiation and chemo have done a toll…
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Folfox fifth cycle done!
It seems like such a success when the pump comes off! This one was a little rougher because of the shingles In any case, I'm grateful for the support and strength you have all shown. My goal was to get to six and then make choices. i feel tired, sore and happy!
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Low Platelets
This is an official RANT! The nurse called about one hour after i had been at the lab this morning. She was concerned that platelets were very low; mid 40's. She told me about how to stop bleeding, praying there will not be motorcycle accident. Last treatment was a month ago. If next is cancelled it will be six weeks.…
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Rats, any advice?
I was diagnosed stage 3a in March of 2013. 2 feet of colon were removed and then I did folfox 6 for 6 months. I was declared NED 4 months ago but a pet scan this week showed a 1 cm spot on my liver. I'm talking to the surgeon in 3 days. The 3 months of remission were great. I traveled and got closer to family and friends…
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How important is diet, really?
I've read a lot of conflicting information regarding diet on other sites and on discussions here. The main one has been the advice to avoid white sugar and flour at any cost, because cancer cells particularly thrive on these items. Medical sources I've read dispute that contention on the argument that all cells depend on…
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Very touching.
Posted by my cousin on my FB page, in my honor, a fighter. http://m.youtube.com/watch?v=tuNrSrHUgso
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5th cycle of 12
My blood work came back ok today. I'm going tomorrow am for the fifth of 12 folfox treatments. I'm not sure if they're going to do it because of the shingles. I'm hoping they go forward with the chemo. I want it done! Yolanda
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Chemo vs. No Chemo
I posted this in response to the array of responses to LLLady's response to her husband, Duey's, thoughts on discontinuing chemo. I didn't think this should get lost in the shuffle, so I've pasted it here... Appears there needs to be a little clarification... In summary, I think the chemo vs. no chemo debate should include…
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Please post some supportive words for Wolfen's daughter JBG!
As many of you know, Wolfen is with her daughter Johnnybgood. JBG is not doing very well. Any words of support and love that you might want to pass on to her will be read to her by Wolfen, and would be much appreciated. Thanks in advance, AA
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NED
Today hubby had his checks 32 months after stage 4 CRC diagnosis... Blood ok, CEA 1.2, ultrasound clear, still NED hurray!!! next CT in October... Happy Petra
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One year out from treatment - Woo Hoo!
I'm so excited. I fell the need to celebrate. Hubby and I will go out for Frozen Yogurt later today. One year ago today, I had my last Radiation treatment (and 5FU contunous hook-up the week before). It seems I just dodged the bullet with more treatment after my Liver Ablation, so I think a celebration is called fore.…
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Vectibix (panitumumab) experiences - advice please
Hi all, my husband's oncologist yesterday suggested adding Vectibix to his Folfiri chemo in 2 weeks. His tumors previously removed have been tested for the KRAS mutation and he would likely benefit from this new drug. He is quite upset about the side effects of an acne-type rash. Oncologist had talked about adding Avastin…
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Glucose restriction to starve cancer - an update
when my wife Patricia was ill I had learned of evidence which strongly suggested that dramatic reductiion in glucose levels could starve cancer cells which rely more heavily on glucose than most normal cells (which is why your cancer lights up on a PET scan - the radiaoctive glucose which you take is taken up…
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Off to Stanford 7/16 chemoemobilization
Well it's 3 am and I can't sleep. The Stanford board declined me, not a good candidate (Stage 4) but they did make me an appointment with one of their had doctors, who had a cancellation, that sit's on the board. Wish me luck. I drive to Stanford in the a.m., ah, in several hours. You out would think they would want to see…
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Advice Requested
I went in today for another CEA test. My onc. has been watching CEA very closely (monthly tests) as it has been highly correlated with cancer in my case. Unfortunately my CEA level has climbed from under 1.0 (5/8/14) to 2.0 (6/5/14) to 3.0 (today 7/7/14). My oncologist said this is likely a trend. However, he said that…
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On my way to urgi center
Apparently the back pain manifested in shingles yesterday. I've seen two doctors already My oncologist wants to meet me tonight to decide for himself. There should be a law that is strictly enforced. No one with cancer should have ANYTHING else wrong with them! Picture me frustrated.
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in the hospital again
My husband has been admitted to the hospital again this time for c-diff and dehydration. Hospice will be coming to my house on Friday. They tell me he will just slip away in his sleep. He has a fentanyl patch on for pain and is getting morphine for pain all of which isn't working. Very sad here Sandi
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Can We Talk About Poop, Please?
For the past couple years, I've noticed a change in my stool. It started out with a noticeable groove (not the musical kind) in the stool and have been getting flatter and flatter. I had a colonscopy in 2012 which noted a hemorrhoid and some minor divertculosis and more fiber was suggested. No polyps were found, and the…