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Yesterday I Buried My Child
Johnnybegood was laid to rest yesterday. I still cannot wrap my mind around all that has happened, ending with a tiny beautiful box decorated with a horse that was placed in the ground. It is not real as is often the case when the loss is so great. I think it is the heart's method of self protection for a while. A nice…
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Kombucha
I lke listening to his videos, I'm making kombucha, which is natural probiotics, I just need to buy some wooden spoons. He has a lot of ideas for cleaning the body of toxins. http://youtu.be/zyTW-Tmve_Y
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update - still at hospital - made it through storm
Hi Everyone, Today has been a very busy, hard, sad, filled with love, windy, rainy day. The storm did not hit our island too badly. Unfortunately is did cause damage on the Big Island but our island, Oahu is pretty much OK. That was a huge relief. We did have a blessing because of the storm and that is the doctors' offices…
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In hospital and 2 hurricanes heading toward us
Dearest friends, Thank you so much for your amazing and kind words. They are like fresh water. **** had not urinated for 20 hours when he woke up this morning. We knew that meant trouble. So grateful my sister and bil are here. They took him to ER and I was right behind them with our daughter as I was going to drop her off…
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I Think My Doctor Lied to Me
Hello Everyone, Just back from a lung wedge resect. Doing fairly well. So...I think my colorectal surgeon lied to me? My story in a nutshell is colon cancer, surgery/ostomy..chemo and radiation...radiation almost killed me..failed surgery...hospice...sucessful surgery..ileostomy...months of hospitalization etc...ileostomy…
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seizure
My husband had a gran mal seizure. Thank god the hospice aide was here. We got him stabilized and then the nurse came and gave him some Ativan. He is sleeping now, they don't think it will be much longer. So much for all my prayers for a miracle. Sandi
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My brother's CT results
2 new pulmonary nodules left lung which may represent progression of metastic disease. There is a 3mm subpleural nodule right lower lobe which is overall stable in size but slightly increased in solid appearance compared with prior study. The other nodules are stable. I believe he has 7 nodules now that are spread out in…
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CT scan and move
We just got my brother's CT scan results. I guess they were a mixed bag. They think his liver tumor has improved, but they will do an MRI next week to make sure. They said his lung nodules have progressed. I didn't think to ask exactly what that meant. Not sure if there are more of them or if they got bigger. Any ideas…
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The Plus Side to Neuropathy?
Since my second to last chemotherapy treatment, I have been dealing with neuropathy in my hands and feet. I guess I should consider myself "lucky." Some folks get it straight away. Some after a couple treatments. Mine waited until after the 11th cycle and then hit me like a truck. I'm still confused by this. My…
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My visit with Dr. Edward Lin in Seattle
I saw Dr Lin yesterday. He is as kind and passionate about treating colon cancer and the patients themselves as I have read about him. First I would like to say that the Seattle Cancer Center was by far the nicest hospital I have ever been in. When I called to set up the appointment a couple months ago they told me they…
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Prayer for those in Hawaii, particularly ****, Kathleen and family
I have just read that the Big Island of Hawaii has been hit with a 4.5 earthquake, even as they prepare for back to back hurricanes. Please send all good wishes and prayers to those folks, particularly our own Kathleen, **** and family. Marie who loves kitties
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Anniversary
Today is my 5th anniversary being NED. I hesitated to post because there is no reason I should be NED and others not. My every day begins with a prayer for everyone on this forum and those they love. I needed to post because all of you understand more than any one else. Thank you for supporting me these last 5 years. hugs,…
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Husband now stage 4 liver biopsy Friday
Hi everyone, I has posted a while back when husbands cea began to rise, he got a clear PET scan in June of 2013 but the cea kept creeping up. I knew it was coming back, he began having gallbladder type pain in December of 2013. In the process of trying to find out what that was they noticed the spot that flagged them last…
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good news for me
had a ct scan with some bad tasting stuff last fri my onc called today she said didn't see no cancer. i just had my 7th cocktail she said still have 5 more to go, these should go a lot easier with a new mind set. thanks sue
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Take a minute and look at this..
http://www.change.org/petitions/petition-for-briggs-for-cancer-immunotherapy-for-all?recruiter=137590710&utm_campaign=signature_receipt&utm_medium=email&utm_source=share_petition
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6th Folfox out of 12
Well, we had a very nice weekend. My cousins came and visited from NorCal. We took the boat out to Catalina. It was such a fun filled weekend. It certanly took my mind off of everything! I had my first taste of ice cream in six months. I just totally enjoyed myself. Now tomorrow starts the 6th cycle of 12. There is…
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Calling hospice tomorrow
Hi Dear Friends, Thank you so much for your wonderful words. They mean so much. You give me such comfort. I know you are here for us. **** went to the onc today and told the onc that at times he was having trouble breathing. Sitting his O2 was around 95 but with any walking it went down to 83-85. That is a very scary…
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update from Crain in Cyn's thread
Scroll down in the mentioned thread ( http://csn.cancer.org/node/284231 ) to August 7 and you will see an update from our resident Lion!
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Pain on left side at bottom of ribs ????
Anyone have any ideas what ths is????? 3 Drs don't... nothing on the CT in that area. Not h Pylori, not Gluten sensitivity. no pacreatic or liver enzymes out of wack.. Pain coms when I exert myself or when I try to lie down. I checked today with Xeloda nurse and they advised 7% report upper abdomen pain ad 14% general…
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Diarreah help
My mum had 2 weeks worth of chemo post bowel cancer op and she has now been in hospital for a week with constant diarreah. She has a stoma and it is constantly filling up every half hour with liquid faeces. They say it's just the chemo after doing various tests... She hasn't taken the chemo for over a week now I can't…
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Remarkably brave story
This man is my dear friend's brother. He has been so inspirational to me. http://www.armytimes.com/article/20140805/NEWS/308050074/Captain-terminal-cancer-has-one-final-mission-help-vets
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After potentially avoidable hospital interventions, Mom's doing better
I don't like smugness, especially having an "I told you so" feeling over anything relating to my mom's cancer, so I hope the scare of the past few days will convince my parents to take my concerns more seriously going forward. My mom finally relented and agreed to see her oncologist two days earlier than she was scheduled…
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I'm desperate for some help
I'm desperate for some help, my husband has improved a bit and has said we can try some cannabis oil - so I need someone to help me get some or send me some. Thank you, Thank you, Thank you. Sandi
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At that point: clinical trial or hospice
Dear Friends, I just haven't been able to write this because I guess it means it's really true. **** is having a very, very difficult time. We are waiting to see if any immune therapy trials come this way in the next few days (honestly not likely) or we will be calling hospice. **** has been at this fight (and he does…
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Just a quick update
Hi Everyone, Please know I am always around. I have chosen to just lurk on this site the last year.. I am sorry. I have been having a hard time trying to separate myself from dwelling on cancer.. I have it I know that . I will have it forever most likely - but you never know. I am trying to live a life of happiness and…
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Tada!
I"m new to this board and a friend from Facebook recommended that I get involved. I'm a survior of Stage 2a Rectal Cancer as well as Stage 3 Thyroid cancer. I was "lucky" enough to get both within a 14 month period. I'm now 19 months out from my initial diagnosis and feeling pretty darn good after surviving my two epic…
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Stanford
Got back from Standford and they tell me cyberknife is on hold until October 3, when I get my next scan to see how the chemoemobilization worked. My lesions on my lungs and lymph nodes are not growing, and I hope it's due to my meditation, my pretty much raw diet and my morning greens that I juice and my afternoon…
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Gelclair
Does anyone else here know anything about or have any experience with Gelclair? I am thinking of asking my mother's oncologist about prescriibng it to my mom for the pain and swelling in her mouth and throat. She is drinking fairly normally (Gatorade by the gallon to hear her tell it) but she hasn't eaten anything beyond a…
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How do you insert a picture into a post? Thanks.
How do you insert a picture into a post? Thanks.
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I need help with my diarrhea
I am in so much pain with the soft unformed painful stools that just come out without any warning/sensation. My anus is inflamed, bleeding and intolerably painful. Please help me.