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Lymphedema
Sorry my information on the web site was incorrect, for info on lymphedema type in National Lymphedema Network. It is a good site for prevention and help love Pippi
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Lymphedema
Help, I am 20 months post surgery for recurring Breast CA. I did okay following chemo and radiation. I'm back at work getting on with my life and my hand started swelling. Lymphedema! I visited a Ocupational Therapist, refered by my doc and she was sweet, etc. I did the wrapping day and night.....The puffy hand and very…
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discomfort after bilateral mastectomy please help
Hi, My name is Laura. I had a bilateral mastectomy (no reconstruction) on November 15. At the same time I had pelvic surgery. I am 33 years old. Since age 17 I have had numerous surgical biopsies, lumpectomies and partial mastectomy. So I thought I was prepared for this. When I first woke up from the surgeries it was the…
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metastasis to the endometrium?
Hi, just found out I am showing abnormal uterine cells and have to have an endometrium biopsy monday. I finished eight months treatment for lobualr breast cancer in June. Has anyone else experienced metastasis to the uterus? I hadnt read that it was a likely place for it to spread..Hope to hear from someone..thanks Susan
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Treatment Update
I have just had results of some tests & they are not too good. My CA15-3 marker numbers are rising rapidly again & I have had to have new x-rays on shoulder, chest, ribs, pelvis & left femur which all show signs of renewed activity again after having only just finished my last chemo. The pain is horrendous. I had an…
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ridiculous question
Hi everyone, Have any of you had difficulty realizing your breasts no longer physically exist? I am not experiencing phantom breast pain. I still have pain in my upper chest and neck, but I have absolutely no feeling where my breasts were. In fact I can put an ice cold can on the incisions and I don't feel it. It seems…
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Breast Cancer Survey
I am a breast cancer survivor and a gifted science teacher in Moultrie, GA. One of my students is doing a science project on the Correlation of environmental effects and breast cancer. She needs to have as many breast cancer survivors as possible to complete a survey. Would you possibly be interested in helping her? If so,…
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Hypnotherapy
My name is Chris Bathum and I am a hypnotherapist and master hypnotist in Los Angeles. I offer hypnotherapy at no charge to cancer patients who are working with an oncologist/radiologist in any kind of treatment plan. I work mainly with treatment motivation and also to block negative suggestion from well meaning care…
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organ donor
Hello everyone, There were some posts here recently about those of us with breast cancer not being able to donate blood. Does that also apply to the organ donor program? My family decided a number of years ago to have 'organ donor' placed on our PA. driver's licenses. Maybe I should try to have that removed? Like some of…
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Feeling blue and also excited!!
Hello, I just finished chemo, had my port removed and I'm on tamoxifen for five years. I have not had any real bad side effects(besides hot flashes) and consider myself very lucky to be done with it all.I find myself tired still but other than that I feel great. I am looking forward to going on with life cancer free!! I…
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George Harrison
Dear everyone. Just to say that we should all remember George Harrison who died from cancer on Friday. To all of us especially those in their 50's like me who was bought up with the Beatles he gave us fun & great music . He died strong in his faith in his God as a Hare Krishna knowing he had a new life to come . Let us all…
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Update
Hello my friends, I am sorry I haven't written lately. I have been in an emotional flux. I have been experiencing quite a bit of pain between my shoulders and down both arms. Doctors haven't found out the cause yet. Tests scheduled are bone scan, nerve tests, MRI, and something with an orthopedist. Additionally, my blood…
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Waiting for results of my bonescan!!
I was diagnosed with breast cancer a little over a year ago and had surgery November 2, 2000. I had 17 lymph nodes removed and 13 contained cancer. I am finished with my 4 Adriamycin and 4 Taxol treatments, but I am still receiving Herceptin once a week until March 2002. I also had my mamo and everything came out well. I…
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My Thanks to all of you
I just wanted to say thank you for th encouraging words from you ladies.I'am new at this we just got our computer and I was searching and found this network. It is such a blessing to share your fears and thoughts withothers that have been thru the same thing and really understand what you say and how you feel. So far all…
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Have been away from CSN for awhile
Hello all, Want to apologize for being away for about 4 months. Got really involved with our local Relay for Life and didn't have time to log on and read postings. Noticed alot of new names have come on. Recently had PAP smear and doctor recommended pelvic ultrasound since I have been on Tamoxifen for over 2 year. Tests…
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where's tiger
hi, i too have liver mets and once tiger emailed me with her home email. I didn't use it for a long time but recently emailed her , but no response, maybe i had it written down wrong or something. does anybody know how she is doing?? I'm worried she too has passed away as some of our friends with this ugly disease. thanks…
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Right drains removed and I have some relief!!!
Hi everyone, I had an interesting day yesterday. I started out at my doctor who handles pain management. She had been wanting to try cortisone injections in each hip to see if that would bring any relief to the pain in my legs. I currently take a combination of max. doses of celebrex, ultram and motrin. I don't want to…
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Good bye, friends !
Hi everyone, I have taken the decision to spend less time on my computer and more time doing things I always wanted to do. I want to learn how to draw and paint. I want to take walks and take pictures. I have also signed up for parent-child activities : Audrey and I made bread figurines yesterday at a farm. It was fun ! I…
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Results: Normal!!!
Hi to everyone. Just popping in to share with you that all my test results are NORMAL! The mammo (my first 6 month follow up one)was fine and they gave me the results right away...even before my dr. got them! That was a first! Ha. My PAP test was also NORMAL! My gynecologist called me, so I wouldn't have to wait for the…
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Need info on tram flap surgury
Hi, As some of you recall my best friend that went through treatments with me had breast cancer. Well she didnt have reconstruction surgury done at that time. Now they have her surgury date as Dec 9th. Im going fly up a few days and help her out after surgury. Drive the kids to school cook and whatever else she needs. I…
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It's ME
I got all the test result back on Friday and wanted you all to know what they found. As it turns out, once again it isn't in my head and I have a herniated bowl. It must be causing the irritable bowl syndrome into overdrive. Where it is situated must be pushing it up into my side and ribs. We will try medication to calm it…
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what date to use for survival time
Hi Everyone, I asked about the date from my onco for counting the years and found out that it is NOT AGREED ON as to whether to count from the day of diagnosis or the day we ended our chemotherapy. what does anyone else know about this - there isn't anything on the internet, as far as I could find. Thanks, Jean
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HAPPY THANKSGIVING!
Just want to wish everybody a Happy and Healthy holiday! You're all in my thoughts and prayers! HUGS!! Cathy
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Sorry
Hi everyone, I am so sorry I haven't written or responded to all your nice emails. The day after they took my drains out I was in the ER with a high temp and inability to move the whole right side of my body. I could barely walk and could not sit up by myself. Once there they found I had developed a very serious infection.…
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Tamoxifen vs. Raloxifene
Is anyone taking Raloxifen? I have read a bit on the internat about it but have never seen anyone mention it here. I am having a lot of joint and muscle pain and am blaming the Tamoxifen. I don't want to take it but I don't want to risk more cancer. Anyone "opt" out of Tamoxifen? Thanks Jamie
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Long-term survival and disability problems
I have been living with Breast CA for 20 yrs. now. I was stage 3 when diagnosed, had a chest wall reoccurrence 4 yrs. later and mets to bones and large tumor in my chest behind my sternum 8 yrs later. It is now another 8 yrs. later and the denomination in which I am a minister is dropping me off their disability program…
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My update
I am still out here ladies, plugging along. I have been having allot of tests but haven't got any results yet. I still am not well and having problems. I am back in contact with cancer clinic and will be seen by one of their doctors. I had to find a new doctor a couple of months ago so feel a little vulnerable out here,…
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Mets in liver
Hi everyone it's lilmermaid. In February I was diagnosed with mets in my liver. My doctor put me on Taxol. I was supposed to stay on Taxol for the rest of my life but a cat scan in June showed the tumor got bigger and an MRI also showed that the mets in my spine got worst so the doctor took me off of Taxol and put me on…
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Vacation during cheeeemo
Hi everyone it's lilmermaid (Sylvia). I am from upstate New York and I just returned from vacationing in south Florida for 15 days. It was 15 days of heaven. The weather was perfect except a few days of rain. I was in the pool almost every day. My sister has a condo down there and when you walk out her back door you walk…
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Healing Art
Healing Art Foundation was started by Tatdude to bring together some of the most talented tattoo artist together with breast cancer survivors to add a little beauty to their lives. If anyone is interested please visit http://www.tatdude.com/healing_art.html for more info email me at sugar@tatdude.com