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Hummingbyrd Please Help me?
For the first time I saw there were 2 people in the chatroom while I was actually on the computer and I could not join in. Is it because it was a private chat? I felt so excited and then nothing. Maybe I am not doing this right or like I said earlier on this post it was a private or even its the computer. Anyway, I am…
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BRING THE OLD FORMAT BACK!
Like most of the other survivors, I am unhappy about the new format. The old format was colorful and like a personal note from the writer. You could open it or not. It was fun to open each note, if you wanted to, and you could read about the author by clicking on her name. It was sort of private and a surprise! The new…
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Hi Pam
I just wanted to say how nice it is to see your name back on the post board Pam. I have been wondering how you are doing? I still am not big on changes Tony. One change many of us asked for and still didn't get is for us to press enter or return instead of HAVING to press submit. That would help us spead up entries and the…
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Belly Laugh
Hi, I was in chat and learned "Gallery" also had images. Well, I tried and managed to get one posted. It's call Belly Laugh. Check it out. This was my summer project that kept me focuses and going when nothing much else was. Hugs, Iris
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Questions about Taxol effects.
Hi all, I was just wondering how long the side effect of hurting joints last? It has been about a month now and my joints are still hurting..and my hair is falling out now??? It started to fall out again after about my first month of Taxol..then kinda slowed down..now..a month later..it is falling out more and more. Has…
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Could someone help me
I seem to not understand something I know someone can help me. Someone in post mentioned the fact that they had very invasive stage three breast cancer with no lymphnode involvement. But correct me if I am wrong I am always wrong according to my mate and if not in lympnodes wonder why so high of stage. Lymph node…
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New Format--Not all that bad
It's been quite awhile since I visited this site. At first I was confused and frustrated. I read some of the other messages and found I wasn't alone. Then I noticed at the top of the screen a place that said "Layout of messages" and just below that an option box. The default in the box said "nested". I clicked on the arrow…
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new format
Dear Friends: I know a lot of you do not like this new format, and I agree that it is a bit confusing. I have been using this site for about two years now, and this is the second time it has changed. I remember when the former one first started, and the old gang who were used to the original one, did not like this past…
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IT IS A MESS BUT HANG IN THERE
HI TO ALL OF MY SISTERS: THE WEBMASTER SURE ISNT LISTENING TO ALL OF US IT MUST BE A MALE. LOL THIS IS A TRAVISITY TO TRY TO FIGURE OUT HOW TO GET THROUGH THIS SITE. THEY NEEDED TO ADVISE EVERYONE WITH A E MAIL WITH STEP BY STEP INSTRUCTIONS. I WAS UP UNTIL THREE AM LAST NIGHT TRYING TO FIGURE IT ALL OUT. I LIKE THE OLD…
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IT IS A MESS BUT HANG IN THERE
HI TO ALL OF MY SISTERS: THE WEBMASTER SURE ISNT LISTENING TO ALL OF US IT MUST BE A MALE. LOL THIS IS A TRAVISITY TO TRY TO FIGURE OUT HOW TO GET THROUGH THIS SITE. THEY NEEDED TO ADVISE EVERYONE WITH A E MAIL WITH STEP BY STEP INSTRUCTIONS. I WAS UP UNTIL THREE AM LAST NIGHT TRYING TO FIGURE IT ALL OUT. I LIKE THE OLD…
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What A big MESS!!!!!
Dear ALL, Maybe someone needs to explain this all to us {or at least me}like I'm a 4 yr old! I was having a hard time getting into the chatroom! Now I may never be able to navigate my way thru this new site.....Hummingbyrd, if I do figure it out, I will let you know ASAP...... Looks like you will get there before I do.....…
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Thanks from Marty
Egad! How much further can the site tread into alien territory here?!? Like we need a big change in our comfort spot, eh? *cocks head* Anyway- Thanks all for your kind words and thoughts. 3 days after the "mystery of the black thigh" and it looks and feels normal. *puzzled look* Nobody can figure it out. For those…
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the new board
i really dont like this new board it is to complicate for most people to find there way aroud/ the old method was just fine please go back to the old way or you will have alot of dis-satisfied people
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Appointment with surgeon tommorow
Dearest Sisters, The results I was waiting for finally came back. My sonogram shows benign changes on my scar, or what it appears to be bening changes and a 1.2cm lymph node structutre on the axila on the other side. The radiologist asks the attending physician to evaluate both and to order more tests if he is in…
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New Layout
WHAT A MESS!!! Enough said. Tony fix this please or you will lose a lot of people who need help out there. They are already lost & confused & scared & don't need a website they can't navigate. They need our help & advice. Please fix or re-instate old format. Love & hugs Pam Triggs
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Got to LOVE this...
They could of made one change and that would of been to the chat to let us use enter or return instead of submit all the time. Instead they changed the format of entire website and still we have to put up with this slow useless chat, it isn't like they haven't been told about that. Go figure. Tara
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Got to LOVE this...
They could of made one change and that would of been to the chat to let us use enter or return instead of submit all the time. Instead they changed the format of entire website and still we have to put up with this slow useless chat, it isn't like they haven't been told about that. Go figure. Tara
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New Site Format
Hi all, I agree with everyone, don't like this at all. A lot of information is now gone. I complained too. They should have left it alone. Emmi
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What's up with this?
Sorry to complain, but I feel like I just landed on another planet. I can't find the chat, our last week of messages seems to be lost, and the resource I listed on my web page goes to MY web page here, it's supposed to go too the one I have on the internet. OK, OK so I don't like change guess I'll get used to it. Sevey and…
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USER UNFRIENDLY!
Hi: Just posting to say that this new format seems to be one big glitch. I'm finding it very user unfriendly and confusing. My mail box shows, as NEW messages, e-mails, which were already read and replied to, over two weeks ago. I seldom ever go to chat, but WHERE is it, for those ladies who frequently use it? Postings…
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I'm new and need some support/information.
Hello. My name is Jeremy. I have a very unique situation and am in need of information and support. My girlfriend was diagnosed with breast cancer at around age 18. We are now 20 and after the cancer went into remission it has now returned as stage 3A. Let's start with the story. I talked to this girl on the phone and we…
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Beating the odds
I'm a 'stage 4' myself, I'd be 6 feet under by now if my MDs had it there way. No joke, not that they wish me any harm, but one surgeon said "IF you make it through chemo you need to have a bilat mastectomy." Encouraging statement 1 week after diagnosis. Happy to say that was June 2000. Sad to say he was right about the IF…
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Latest amazing moments of Marty
Hello all! Yesterday (Sunday) was started with the sheer terror of my right thigh turning black/purple whilst I was showering. A visit to the emergency room, ultrasound and the Doctor's "Hmmm, odd."... Not terribly reassuring but we were eventually released and told to rest until the Oncologist saw me for my last chemo…
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sevey it's not a private chat
I saw your name but nothing entered if still here post a note
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Ouch! Let's not say terminal re:staging
OK Tara you ready, tell hubby he doesn't know what he's talking about! LOL 1=1 11=2 111=3 1V=4 Stage 1: tumor < 2 cm (about 1 inch) has not spread outside of the breast Stage 11A: < 2cm and in lymph nodes OR 2-5cm but not in lymph nodes 11B: 2-5 and in lymph nodes OR >5 cm but not in lymph nodes In 1 and 11 lymph nodes…
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Hummingbyrd ??
How did you get herceptin? Are you in a clinical trial. I am curious, as the only way I can get it is to go in to a trial where there is a 1 in 3 chance of getting it. Also, any suggestions as to ease nausea during chemo? How sick can I expect to be. I know everyone is different, but is it as bad as I think it will be?…
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anxiety after surgery
Hi I made it through my second but with breast cancer on Nov. 5 with a lumpectomy and no node involvement (1 cm invasive)..after surgery that night in the hospital, developed panic/anxiety attacks despite the good news...insomnia since and being treated by counselors and GP for anxiety with zoloft and sleeping pills...any…
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Herceptin
I would love to hear from any HER+ breast cancer patients who have used Herceptin. Would it be advisable for everyone? I know that is a broad question but any info you have on HER+ recovery stories with or without Herceptin would be appreciated. Also, has anyone taken chemo with the drug Taxotere? I need to make a…
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pregnancy after breast cancer?
Has anyone here had a baby after breast cancer? My hormone receptors were all positive and so i know there are some risks, but need some more info. would be grateful for any help out there...I had a mastectomy with 1 lymph node positive and am now on tamoxifen but they are saying that they will let me off it to have a kid.…
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hummingbyrd
Thanks for sending me your message re: herceptin. Was your original cancer in the lymph nodes. Mine isn't however, I had invasive breast cancer at stage 3. This would be a blind study so I may not actually receive herceptin. This takes an additional year of treatment. I'm still confused. What do you mean by bone mets?…