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Helpppp so much going on with my port
I have been sleeping in my recliner for four days tonight I tried to lay down in bed oh my gosh big mistake the port was pulling in my chest to my neck and my neck isn't looking to good it isn't hurting it just seems to be irritated how long will it be so I can sleep on my side or in my bed i am so frustrated.. please help…
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Anyone experience "jerking" of the body?
2 1/2 weeks out of my first treatment, I started having jerking of a leg, arm, finger when I went to bed. Did anyone else experience this sensation? Is it muscle spasms? I thought it was Paxil and quit taking it, but the jerking continues. Thanks for any advice.
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How many bone mets ladies are on Xgeva (denosumab)?
I am on zometa, but have been reading a lot about denosumab. Has anyone switched from zometa to denosumab? I began a conversation about it with my onc at my last visit and he was amenable to switching, but then my PET scan was so improved that he decided to leave my therapy alone. I have had no side effects (fingers and…
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packing up, doing the last of the laundry, heading for America!!!
Maybe I'll get questioned again in the Amsterdam airport! I would LOVE another round with those guys in immigration!!! *smile* Dutch hugs to you all, Kathi
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Rev. post op update (dare I say this?)
One week post op from revision surgery no. 2. Ps used bioderm (?) and stated that he did everything completely different. I didn't get sick and it's been easy, so far. Thank God! The previous rev was very difficult. In hindsight, I'm thinking lymphedema was at play. It was the node loss side, elbow through hand. Sound…
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Tomorrow is my LAST chemo treatment
I'm soooo excited. I can't wait to have this behind me. I am looking forward to feeling better and getting my blonde hair back. On the other hand, I'm kind of depressed because I know what the next step in this ugly journey is and I just don't want to have that surgery. I don't want to loose my breast. I know that everyone…
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Please post on CSN luncheons today with pix
I am anxiously awaiting reports from the lunches that you California girls had today - weren't there two different ones going on? Who was the mystery guest? We want pictures - lots of pictures! Linda
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Oncologist told me I'm dancing w/NED!
My oncologist said the CT scan showed that the nodule in my lung had not changed since having the PET scan so he believes my cancer is gone. I see him again in 3 months at which time he will do a chest exam. I will have another CT scan done in 6 months. I should feel happy and elated but instead I'm just feeling a bit out…
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Geraldine Ferraro has passed
I just heard it on TV - Geraldine Ferraro passed this morning to Multiple Myeloma which she had been fighting 12 years. For those too young to remember her - she was the first woman to be included on a major party Presidential ticket when Walter Mondale chose her as his running against Reagan/Bush.
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Lumpectomy results are in.
No cancer. I feel guilty posting this. I know that so many people are going through this. Cancer is horrific. I will continue to FIGHT this awful disease, and help find a cure! I am chair person for my town's Relay For Life event, and we have raised over 1/2 million dollars in 7 years. My purpose on life is to help find a…
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Modesty is no more!
My PS finally ok'd me going back to Physical therapy since i have been having alot of pain in my arm since surgery. So today was my first day back and im in the room with my PT and shes revaluating me so im half naked with my girls just hanging out. Then her PA comes in, then the student PA...pretty soon i had pretty much…
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Gentle Yoga thru the Cancer Wellness House
Yesterday I went to a Self-Help Jin Shin Jyutsu class followed by 'gentle yoga'. Both classes were really good. I left feeling so much more positive. The yoga is Monday and Thursday, the Jyutso on Thursday. They also set me up for a Theraputic Massage on Tuesday. I am so thankful that these instructors volunteer their time…
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going to the airport soon...
to pick up our Surprise for Saturday's NorCal lunch. And I'm looking out the window at blue sky with some white fluffy clouds!! We've been having rain, wind gusts up to 60mph, hail, etc for daaayyys and weeeekkssss! So blue skies and surprises make me very happy! Hugs for everyone! Linda
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I Feel So Stupid - THANK YOU FOR MAKING ME SMARTER
Thank you! Thank you! Thank you! I don't know where I got the idea that in order to send a private message you had to first be a friend. I joined this board on January 14, 2010. Today is March 25, 2011 and today I learned that you do not have to have a friend in order to send a private message. You have no idea how many…
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Anyone Ever Have to Have Blood Transfusions?
I am her2 and just completed my 5th round of chemo (taxotere, carboplatin, herceptin). After my 3rd chemo, my platelet and hemoglobin counts were so low that I needed a blood transfusion. I am currently having my third platelet/blood transfusion. This is not a big deal, especially since I have a port...just time consuming.…
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Today is DC Timmons Birthday!
Best Wishes for a GREAT Birthday and many, many more to come! CELEBRATE! -Jenny
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Finished Rads Today!!
Chemo: Done Surgery: Done Rads: Done!! I am happy report that I finished radiation today and will be meeting with my oncologist next week to begin taking tamoxofen...It was a great feeling to have those 6 weeks behind me and know that life is moving forward in the right direction... For those of you in the SoCal area, the…
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Waste Services of Florida Inc for the cause!
just posted a pix of the beautiful PINK waste pick up truck that I saw today in the Chasco Fiesta Street Parade in New Port Richey, FL. Makes me want to switch waste pick up companies :-) What a great effort they are making for all of us!
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Just had to share - my puppy
brought me her ball, but here I sit at the computer. So, I hear this noise.... She drops the ball down the stairs, fetches it and then, does it again. Made me chuckle! Aren't pets great? I got this little sweetie last year in the middle of rads, she has been a great source of comfort and joy ever since. Sue
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Tomorrow I start chemo, scarred to death
Tomorrow will be my first treatment of chemo. Don't know what to expect very nervous. I was wondering how long to expect to be sick? My first 4 treatments will be AC chemo.
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question about xeloda chemo pill
Is there anybody currently on Xeloda this is what my Dr is wanting to put me on cause the IV Chemo has not shrunk the tumor that is my lung. I was just looking for any suggestion how the reaction are and what to expect.
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Brooklyn Parents Diagnosed with Cancer in Same Week
I was so heartbroken by this story. With in 9 days of each other the father was diagnosed with advanced colorectal cancer and the mother with advanced breast cancer. They are both under the age of 40. http://www.huffingtonpost.com/2011/03/25/brooklyn-parents-cancer_n_840643.html
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mastectomy in 4 days
I am having a mastectomy in 4 days and have no idea what to expect after the procedure. It is an out patient surgery which in it self is scarey. How will I feel? I am healthy and in my 50's. I have invasive ductal cancer. I will not have reconstruction until later because they don't know if there are nodes involved and if…
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a belated balloon release
Sometimes if I just don't deal with it, I think it doesn't exist. But today, I had the strength to buy a pink balloon. For Moopy and my other pink sisters.
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Planning Session for Rads Friday
Hey You Guys, You know I made it through Chemo with your help. Now I'm on to the next phase of my journey: rads! This Friday I have my planning session. Thanks to all you wonderful folks, I know exactly what to expect and what to do! I thought I would be scared out of my mind, but guess what? I am not. I feel that has to…
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Facial Hair
Lost all my hair on the head, legs, "down there", lashes and brows. Now the hair on the legs is back, did my first shave; my brows are returning and the hair on the head is very slowly growing. Have "facial hair" along the sides of face by the end of ear lobes to chin growing. Anyone have a problem with "facial hair" and…
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Talking about taking me off Tamoxifen soon, I don't get it.
I have 2 onc. I saw one of them last week and I will see the other one who is at the cancer center in June. So, she told me they will test me in June to see if I have come through Menopause ( very late bloomer here )and if I have they are taking me off Tamoxifen and putting me on another drug, which I forgot the name,but…
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Hints for first prosthesis and bra fitting after bilateral mastectomy
I am going to be getting prosthetic breasts and mastectomy bras at some point. I am not sure when because I still have lots of pain and syptoms from the nerve damage from the bilateral mastectomy w/snb on 1/11/11 (surgeon is treating me for this).I have been reading on different types of prosthesis (which I rarely plan on…
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Hormone therapy
I have read misc times her about it...who and when or why would you need to take hormone replacement? Denise
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Radiation and cancer(rant/concerns)
I read alot on this and the tests we get with radiation are high.ESP CT Scans. I had one last year and refused one this year but had to get new doctor to do something else.Kinda upsetting when doctors don't listen to us cancer patients.It is there way. The thing the doctor wanted to test me for was "If I had more kidney…