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new here
i am new here i have just gone through a double mastectomy last thursday morning and i am having trouble looking at my scars or even allowing my husband to touch there
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Calling SIROD
Hi Doris, I am sorry I didn't wish you good luck as you started your Taxol treatment on Wednesday. I see that you are doing good so far and I wanted to send positive thoughts and hugs your way. I follow so many of your posts and you have given me such good advice since joining this board. I really hope you tolerate the…
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A Message from Katrina Larson's Mom...
I received the following message in a "Thank You" card from Katrina Larson's Mom: Dear Lorrie: I'm wanting to let you know how much you and all the other members of the BCSN meant to her. She was so grateful there was a place she could go where she could level about how she felt and also support others in their struggle to…
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Tomoxifen vs Hysterectomy
about 18 mths ago I had total hysterectomy (as stated in past posts) due to the tamoxifen (enlarging my uterus big time) Any how I didnt' realize I still need to see my gyno-I have an appt Monday. What exactly will he check? My breast have been checked more in past 4 yrs then I can count (like many i know) between all…
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I need the bus Tuesday also!!!!!!
Cypress Cynthia needs the bus on tuesday and since im riding along with her we can go to my oncologist appointment to get my bone scan results from where i had a bone scan on friday and forgot to get the bus sorry i drove my self,Linda im looking forward to the tea~~MollyZ~~
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double mastect -- dcis
I was diagnosed with Ductal Carcinoma in Situ in July. I have had two excisions(lumpectomies) and they have not been able to get clean margins. My surgeon was willing to try a third surgery, but I decided it was time to do more research. My DCIS is multifocal, low grade. Three additional surgeons have said that they…
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Biopsy scheduled
After a mammogram and ultra sound, I have a biopsy scheduled next Tuesday for 3 lumps/masses in my left breast. They are described as "abnormal" (?) about 1cm in size. The initial report to my doctor noted that it does not "look like" breast cancer... but says they are not calicifications or cycsts. I'm not quite sure what…
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???? How Did You Get Your Real Name and/or How Did You Pick Your Name On Here ????
I've always loved hearing how people got their names. Some of the stories of why their parents named them are meaningful, some are emotional and some are like " what were their parents smoking"? LOL And, I've always loved seeing the different names on here and wondered how you came up with them and why. So, why did your…
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We lost our Sweet Kat (Hootie Girl) today. Please PRAY for her soul and her family.
I just wanted to let everyone know that today, I read a post from Kat's facebook page that said: This is Lukas Larson. Katrina gave me her login credentials to inform everyone what is happening. Katrina Larson passed away today at 1:10 PM Central time from her cancer. She was in a comatose state for a little over 24 hours,…
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new here..first taxol friday
Hi ladies I'm new here. I love reading the blogs as they have helped me. I've gone through 4 A/C treatments and start 4 taxol on friday. I worked all through the first 4. I am just wondering what I will be up against for this next round?
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Holy Moly Cost of Cancer
Was looking at what Medicare was charged for my treatments so far, and crap, it's alot. Below are just a couple that were more expensive: Ultrasound/Biopsy/clip $6,248 Port $6,006 Pet Scan $10,183 Muga scan 1,273 Chemo 3,018 Neupogen shot 8168 (yep, that's right 8,000 for the med, 168 for the push) I don't know what people…
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For rjporter: We're here if you need us
For rjporter: I replied to your post earlier this morning where you shared some difficulties and sadness in your life, but it looks like either you deleted your post just as I was replying, or perhaps there was a technical snafu of some kind, because I don't see your post anywhere now. I just wanted you to know that the…
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March 3 2013 Triple Negative Breast Cancer Awareness Day
Hello Everyone, March 3rd, 2013 is Triple Negative Breast Cancer awareness day!!! Please tell your Triple Negative BC Story here and maybe we can get this page out to other sites to build awareness!!! My name is Patrice Sarnatora and I myself was diagnosed in March of 2011 stage 2A IDC. I had 3 months of dose dense chemo.…
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Explanation of what NED means... :)
I have noticed that some of the newbies don't seem to know what NED means. I didn't until someone told me. So, just so you know, NED is a good thing! NED means No Evidence of Disease! We usually post it after a check up of some kind or a test to let everyone know that they didn't find anything. ( no more cancer or…
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NED Has Changed to NEAD
I read this on Inspire a little while ago: I have been confused about NED and its meaning. Nothing lit up on my last Pet scan - but my liver tumor, which has shrunk by 60%, was still noted on the radiology report. So when I attend a Stage IV News seminar this week I asked on of the presenting oncologists to clarify the…
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How do you cope with a single mastectomy
I am now two weeks post op from my left sided single mastectomy. Today I tried to go out wearing a sports bra and a soft fiberfill form. I was so miserable, that I ended up removing both in the car. It was so uncomfortable and sore having it next to my skin. Will I always go bra-less with a uni-boob? Looks kind of wierd,…
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Did you see Robin Roberts on GMA today?
I thought she looked beautiful! It was good to see her back on after all that she's been thru. She is a true warrior in every sense of the word, isn't she? Debby
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New to Board
Hello, My names is Sharon and I was diagnosed with HER 2 BC Jan. 11,13. I just had a double mastectomy Feb 15,13 with reconstruction started. I will be starting my chemo/herceptin treatments around the first week of March. I'm a little afraid (ok alot) of the chemo treatments and the chance that this crap comes back. I…
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A pink sister to a pink angel
Mom passed away this afternoon. Her fight is over, her wings have spread and she is with all those who have gone before her. Remember that she is with you all and cheering all of you on in your fights against this terrible disease. warm regards KarLee
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DIEP method of reconstruction
I am considering reconstruction using the DIEP method, whereby the radiated skin is removed and replaced with skin, fat, and blood vessels from my belly. I need to wait ten months and lose twenty pounds, but I am looking forward to the procedure. Has anyone else had this procedure? What was your experience?
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I'm losing my hair again...
This is the 4th time I am losing my hair due to treatments. The reality is that I don't have much to lose...it's all less than an inch long and I have male pattern baldness from the brain rads. But the little bit there is, is falling out. It feels the same way it did the first time, both emotionally and physically. I hate…
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GRETA..I am having trouble posting in the Comment section HELP please
I finally switched to IE and it is letting me comment now, but, when I used Firefox, which I normally use, it wouldn't let me. And, I hate IE. I never use it. Can you let us know what that is all about and fix it please? Thanks, Leeza And, where is the DELETE key? Can the techs put that back too please?
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I saw the eye doc yesterday...
I wanted a second opinion because nothing was working with the original doc and she never seemed sure of herself and the treatments she was prescribing. This new doc is older, more confident, and more aggressive with treatment. His prescription is a stronger steroid drop every two hours I am awake. I go back in a week for…
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Trials on HER+ B/C
Hi Pinks: Finally stopped playing Spider Solitair long enough to tell you about an article in the Houston Chronicle dated 1/27 (chron.com). This is in part what it says: Trials are conducted at the Methodist Cancer Center in Houston and Carolina Hematology & Oncology ****. in Charlotte, N.C. on HER+ B/C. A new combination…
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I have a choice on Taxol treatments
I start taxol in 2 weeks. I have a choice of doing it in 12 once a week treatments, or 4 (1 every other week) if I can tolerate that. Of course the four would be stronger, but I would finish in 2 months rather than 3. And doc is gonna try me without nulasta shot. If you had a choice, would you do 4 stronger, or 12 weeker…
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Color hair
Hello! I just want to know when can I color my hair. My hair grow back and have a lot of gray. I'm done all my treatments 8 months ago.
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Maybe i'm worried for nothing?
Hey everyone, i'm not actually sure what to say and have never posted on a forum about a subject like this. I know this a "survivors network" but i figure i would get a lot more helpful answers from on here. I've been searching for forums, and came across this one. Last year of this month February i found a lump on the…
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A HA HA For You - Two Ladies Talking in Heaven - Are you Laughing?
Two Ladies Talking in Heaven 1st woman: Hi, Wanda! 2nd woman: Hi, Sylvia! How'd you die? 1st woman: I froze to death. 2nd woman: How horrible! 1st woman: It wasn't so bad. After I quit shaking from the cold, I began to get warm & sleepy, and finally died a peaceful death. What about you? 2nd woman: I died of a massive…
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Need help finding smaller mast. swimsuit
Anyone know where sells smaller sized mast. swimsuits? The 2 places here thst have certified fitters can not find any that sell smaller than size 8 and according to the measurements that it will fit is too big for me - a 4 should fit. Also - do not like one-piece so looking for a tankini. If I can't find a mast. suit I can…
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Sad day
It was a sad day yesterday. My husband's co worker and friend passed away from cancer.Started in his stomach not long after I was dx.So it's been 3 years for him.He had pneumonia in Oct and they found it had spread.Just the other day when he and I were talking,we laughed and laughed that day ribbing my husband. My husband…