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Rare breast cancer follow-up question?????
So.... one year ago I had a double mastectomy for Secretory Carcinoma of the breast. This is a rare BC accounting for less than 1% of ALL breast cancers! It is often missed on mammograms and was found when I had a follow-up PET scan for Anal Cancer (diagnosed and treated just 1yr prior). A while back I registered with NCCN…
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THANK YOU GRETA ☺
I just want to say a big thank you to you Greta for all that you've done for this board and for all that you're still doing for it. Today's clean up by you was much appreciated! Sue :)
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** Who Is Watching ⊙ ⊙ Dancing With The Stars? **
The first show is tonight and I can't wait! How about you? From the commercials I have seen on TV, it looks like the men are going to be amazing this year! So, are you going to be watching? I ♥ Dancing With The Stars
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I Am " Happy Dancing " with NED! I Got The Best News On My Tests!
That's right! NED is still swinging me around the dance floor! The techs didn't say NED, but, they said no change from my last mammo and ultrasound and that everything is fine! WHEW! Like so many of you, the tears came from me and my husband. The stress that comes from these tests is just horrible and I wish none of us…
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Sigh....SAT phones DO work on a ship!
Friday morning on our cruise (second day in Israel) at 3am, the phone by our bed in our cabin rang. It was my beau's son, and he was excitied to be calling on SAT...at almost $8 per minute, it is no bargain! He was calling to say that there was an attempted break-in at our California home. All worked out, the alarm went…
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Starting My Chemo ;/
Well Monday is the day that I start my chemo treatments. I'm not thrilled but I want to hurry up and get this crap over and done with. I had the pleasure of watching a "educational" video yesterday on the subject. Oh boy :( No green tea, no leafy veg., limited on certain fruits, if I want to make love with my husband he…
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Gyno appt-18 mth post hysterectomy
Happy to say all good! I honestly thought after the total hysterctomy no interanl exam-but I was wrong...! (surgery from tamoxifen) Denise
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Thanks Sirod
Thanks very much . A heck of a way to tell my new hubby happy 3 months married. He staying by me . The onco is telling he getting permission to use some european meds on me to see if I can handle them. I always wanted to travel so I might have to go over to see them . I will beat this thing . Now I am faced see the onco…
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Thanks Sirod
Thanks very much . A heck of a way to tell my new hubby happy 3 months married. He staying by me . The onco is telling he getting permission to use some european meds on me to see if I can handle them. I always wanted to travel so I might have to go over to see them . I will beat this thing . Now I am faced see the onco…
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ChenHeart update March 8, February 24 & 28
March 8 Hello all, I just got a little note and would like to share. Claudia has started her cycle # 3 with Xeloda today. It is too early to understand weather or not it has been working. She is also attending sessions at Santa Barbara Wellness Center. Your positive thoights and prayers have been helping her to stay…
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2 years from diagnosis and my eyes still tear
I am 2 years out from diagnosis and my eyes still are very watery.Does anyone else suffer from this??? ALso I get tired very easily....is this common??? Thank you, Patrice
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Need a Pink Bus Ride *UPDATE*
Tomorrow I go to my breast surgeon. I will have answers regarding the mammo I had 2 weeks ago. Keeping fingers crossed. I trust her with my whole being and I know she will tell me one way or the other if there is anything to be concerned about. This is the first time I have someone coming with me ... my sister. She is my…
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Question on Ports
Hi, I have severe post mastectomy pain syndrome and LE. I have been getting Lidocaine IV infusions since 2011 for the pain. Since I finally got my official LE diagnoses all IVS need to be in the foot. I get Lidocaine IV infusions about every 2-3 months. My pain doctor is HORRIBLE at starting IVS. He constantly has to do…
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Had Lumpectomy 3 years ago Now mastectomy
Hi ladies, I had a lumpectomy 3 years ago and now I am in severe pain. My scar tissue is huge. I am having a mastectomy in Dec. they are using tissue from my back to reconstruct me. Has anyone had this done? Any issues with recovery? Thank you Darlene
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A typical Dutch weekend....loooooong story *smile*
On a lighter note...*grin*....thought I'd share my typical European (the Netherlands) weekend...you might be surprised at the differences... It starts up on Friday morning, when we go to the market in town. This is a working market...stalls for everything from fruits and vegies, cheese and meats, fish, baked goods to…
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PET on March 13th
Calling on my kindreds to ride the pink bus with me next Wednesday. Trying not to think about it until then. We are busy looking at wedding venues, so I have that distraction :-).
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Four-Wheel Drive Pink Bus Available?
I'm supposed to have my final round of chemo on Friday. They're calling for a winter storm here Tuesday into Wednesday that could lead to significant amounts of snow. I am so worried that I will not make it to my oncologist for labs on Thursday and that they will delay my chemo session on Friday. Anyone have a pink bus…
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hysteroscopy
After many visits to the Dr, PCP, PS, OBGYN, finally someone did the US and found a chestnut sized polyp or fibroid indside my uterus. That would explain all the bloodloss, and why I am feeling so bad lately. I have been telling them about this for 3 years now. Last month, my bleeding was so heavy, I can barely tolerate…
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Hello All - Sorry to blab....
Good Morning Sisters, I hope you're day is off of to a wonderful start! Emotional day, I just took my steriords for #5 of 16 chemo rounds, UGH do some of you feel like your Lou Ferrigno after taking them? I'm so pumped, geeze i feel like a boy. And my cheeks, it looks like I'm storing nuts for winter. This is one awesome…
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Please support the Breast Cancer Patient Protection Act
Hello all! It has been a very long time since I have posted, although I do periodically check in to read what is new. Today I am posting because about a week ago I stumbled upon an article to support the Breast Cancer Patient Act. This is a petition that will head to our US government leaders asking them to pass an act…
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Chemo canceled again.
Hi everyone, My chemo was canceled again on Tues. And yes, again it was low WBC. My doc and I are working to find a regular neupogin pattern/dose that will work for me. I'm hoping to do this round of chemo on Friday...I'm still playing phone tag with the chemo schedule person. Hugs, Linda
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BC 10 yrs. later in bones ( new to site )
Hello ladies, at first I was shocked and now I'm relieved and thanking God everyday that it's not in my main organs. So I was just wondering if any of you have it in the bones and how are you doing? I can't believe that they need a cat scan every 3 months, when my counts all went down cat scans are all looking good. Could…
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FDA Approves Another Treatment for Metastatic HER2 Breast Cancer
The FDA just approved the new treatment for about 20% of breast cancer patients who have a particular form of the disease that overproduces the protein HER-2. The drug now called Kadcyla, combines the Herceptin with a powerful chemotherapy toxin and a third chemical linking the medicines together. The chemical keeps the…
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Prayers worked/UPDATE
I asked for everyone to pray for my daughter-in-law.The very next morning she responded to the nusre.Thank You Thank You Thank You to everyone.The nurse said her name and asked her is Kelly your name.She Nodded YES.Our son asked her questions.He asked her where he worked."She said you tell me".Then he asked her where her…
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Message safely in Western Wall...more later...just got home...Internet was AWFUL!!!
I am going to bed... But I posted one pic in expressions!! Many more to come....we had a GRAND time!!! Hugs, Kathi
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UPDATE Would like the bus today in like 2 hours! Laugh-short notice???
It was the chemo, insurance denied it! I am on the fence for her2 and even though I have been on it for 16 months, Insurance said because the biopsy showed inconclusive in 2010 as far as -/+ they would not approve, and I can no longer get herceptin, even though that is what is believed to have kept me here this long. It…
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Stage II B Breast Ca Survivor, Hello
Hi There, My name is Tara and this is my first time to the site. I am attending my 5th round of chemo tomorrow. I had a unilateral mastectomy on my right side in December. I just wanted to reah out and say hi to somebody.
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Stage II B Breast Ca Survivor, Hello
Hi There, My name is Tara and this is my first time to the site. I am attending my 5th round of chemo tomorrow. I had a unilateral mastectomy on my right side in December. I just wanted to reah out and say hi to somebody.
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Latissumus flap questions...surgery scheduled
Hi,I am new on this site although I am 5 years out from my diagnosis of DCIS. I had 2 lumpectomies in the same spot which have left me uneven, followed by radiation. I learned insurance will pay to make women even after breast cancer surgery. I have seen a plastic surgeon who wants to do a latissimus flap, and although I…