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Good news and not so bad news ;-)
Apparently my insurance company will approve afinitor, but only if I am on aromasin and not femara. Since femara and aromasin are both aromatase inhibitors and very similar, I don't have a strong opinion one way or another. So, the great news is that I think approval for afinitor is pending. However, I would be lying if I…
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TexasCharlie needs the Pink Bus TODAY
Hi Everybody, I know it is extremely short notice, but our very own TexasCharlie is having his mastectomy TODAY. Please join me on the Pink Bus as I know he could use our support. Perhaps we can get TraciInLA to drive? Or maybe VickiSam? I will contribute a pitcher of margaritas and some chocolate. Looking forward to…
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Finally Filled Out POA for Health Care
After almost 3 years of wanting to fill out a Power of Attorney for HealthCare/Advanced Directive, I finally filled out the paperwork. Now I have to find two people that think I am of sound mind to witness me sign it LOL... I am also working on instructions for if or when I end up in a nursing home. I was a Certified…
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What kind of help will I need after bilateral mastectomy, SNB and reconstruction?
I live alone and am very independent. However I care for two loving big dogs and have been told that I will need help the first few weeks. I have rides to and from hospital but what else will I need?
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First time reaching out
I'm a new member and this is the first time I've reached out to other cancer survivors so I am flying blind here. I feel isolated and I want to know how others are coping with these same feelings of fear and the unknown. I was dignosised with breast cancer in November 2012. I had a lumpectomy in December and started chemo…
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Linda (Gabe N Abby Mom)
Has anyone heard from Linda lately? She is usually on the board every couple of days and I feel like I haven't seen a post from her in a long while. Just hoping that she is doing okay! Clementine
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This choice is not for everyone
My body cant handle this drugs. My weight alone has gone over 300lbs and the docs yell at me Dont tell me a dietain ot exerize been there I gain more on the meds. It is a quailty of life issue. I have gone from working 7 days a week on call to nothing to barely getting out of bed . To much pain to much damage done from the…
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completely lost in a medical circus
My baby sis (57) was diagnosed with stage 3 b or c Dec 2012 and in her rush for treatment, she hastily chose mastectomy without chemo prior to surgery. She was concerned about the cancer but also about the insurance deductibles going up in January 2013. After mastectomy she had complications whereas she woke up with an eye…
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Afinitor and Aromacin New meds....
Hello, I am Fawn a 36 yr old with stage 4 breast to bone cancer. I am about to go on to new meds starting April 1 and I am looking for anyone who has taken them or is now taking them. Afinitor/Aromacin. I hear there is a LOT of side effects and I am worried. Is there anyone out there that can help me? I feel so isolated…
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I still don't know what the pain is from
My pulmonary care doctor spent 1 and 1/2 hours with me yesterday and decided to treat me with antibiotics to see if the "abnormality" shrinks. He is thinking "perhaps" it is pneumonia even though I don't present with any symptoms. He did say the pain can be caused by this ailment. SO I will take the anti biotic for 10…
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Saw the onco
We had a long talk because my body is not taking to the anti hormonal pills well. Its a quality of life issue. My bllod sugar have been lousy the weight gain is to much I am barely eating it goes up. I am the heavyest I have ever been. I have enough being a guinea pig. This is my choice He told me I have a 5% chance of it…
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Newer Update
I saw and endo for my thyroid he was not interested at all with that part of my body more interested in my onj from zometa . As for my low blood sugar his answer was to see a dietation sorry about the spelling. I told I couldnt because I have almost no teeth left in my mouth . I hope later today to pickup my dentures from…
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(Diep) Deep Flap surgery
Has anyone ever had this surgery before and what was your outcome?? Thanks, cindy
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I just donated my wig
and unexpectedly I felt quite emotional. I thought it would just be drop it off and that would be that. Since I am on Tamoxifen now and no longer get my periods, I can't chalk it up to being hormonal. You know you are weird when you can't explain your own emotions! LOL! Pretty sure the people there think that I am nuts as…
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Questions about cytoxan/taxotere side effects
I just recently had my second rebound of cytoxan/taxotere. I was pretty out of it with my first round. This One seems to have gone better - fewer nerves, I think. However, I am having some pretty major hot flashes. Normal??? I'm also having a hard time finding anything to drink that tastes good. I'm month a big sweet…
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I’m so confused.
My mother was diagnosed with breast cancer 3 years ago. After radiation treatment, everything seemed fine. Last month she was told that she had two tumors; both were two inches, one on her liver and one on her pancreas. They did a biopsy on her liver, the results was that it was stage 4 cancer. She was told it was from her…
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Taxoter & Cytoxan Second Round Today
Today is my Second Treatment of Taxoter & Cytoxan! Hopefully it goes the same as the First round. I can handle it if it's the same and it helps now that I know what to expect. I did lose my hair on Day 16 after First Treatment, it was coming out so bad that I just got a buzz hair cut. My hairdresser was almost in tears so…
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Happy Birthday In Heaven Sweet Moopy/Lisa
Wishing my sweet friend Lisa, a very happy birthday in Heaven! I sure miss you, as does everyone that ever came in touch with you. Your favorite lil kitty, Noel
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Sorry for the scare. Thanks Greta
I am okay and glad to see the other garbage posts from that person were removed from the boards. They had posted some stuff about Chinese Health Medicine. Just suprised me that I received a PM(Private Message) Hugs Donna
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Anastrozole (arimidex) side effects can be managed
I have been taking anastrozole for 14 months now. I did not want to take it because of the posts about all the side effects. I have had a few, but honestly, I do not know if they are caused by the drug. I do have knee and hip pain at times. I also have gained weight, but I have gained weight before I ever took drugs and I…
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We can all use a few laughs, so here you go
Being correct in 2013 Due to the climate of political correctness now pervading America , Kentuckians, Tennesseans and West Virginians will no longer be referred to as 'HILLBILLIES.' You must now refer to them as APPALACHIAN-AMERICANS. And furthermore... HOW TO SPEAK ABOUT WOMEN AND BE POLITICALLY CORRECT: 1. She is not a…
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BAD POSTURE DUE TO DOUBLE MASTECTOMY??
I had a double mastectomy a few years ago without reconstuction surgery. I suffer from really bad posture and always thought it was contected. Has anyone experienced the same? Thanks, Sherry
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Want Your Opinion -- Treatment by Guideline?
Dear all, At last week's visit with my med. oncologist prior to my last chemo session, I asked her about follow-up care. I had Stage 1, Nuclear Grade 2, Invasive Lobular Carcinoma with no spread to nodes. I did four rounds of T/C chemo. I had a lumpectomy, followed by a double mastectomy, which yielded wide and clear…
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Adriamycin is kicking my butt!
I knew it wouldn't be easy. However, I thought that getting it weekly it might be kinder. I had my 2nd push on Thursday, was so hyped from the Decadron on Thursday and Friday that I went from 8a to midnight and had to take Ativan to relax and sleep. Woke up Saturday morning saw everyone off, and couldn't wait to crawl back…
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Have you read any good books lately?
I am all out of reading ideas! I have read some wonderful books that I really enjoyed but I'm out of ideas so let me know what you have enjoyed lately. I loved 'The Shoemaker's Wife', 'Tumbleweeds' and 'Roses'. Those were great. For fun I read the Janet Evanovich 'One for the Money' all the way through 'Notorious Nineteen'…
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Celebrex-O.T.
I was just prescrided Ccelebrex for my arthirtic hands. I had surgery on two fingers some year back. Hands getting worse by the day. I just bought arthristis gloves i wear most of the time. I also go parafin (wax) bath for my hands. (at suggestion of nurse at hospital) I also started taking Fish oil (suggestion of my sis)…
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Lymph edema in mastectomy site
i have about 300 to 400cc of fluid in my mastectomy site. I call it my "booblet". The surgeon said it should resolve on its own bit may take up to a whole year. I could have it drained, but this would probably need to be repeated 3-4 times. Since I am having no pain,I decided to wait and try some PT instead. I also had…
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Biopsy on Friday - can I please request Pink Bus again
I feel like I am getting greedy about hogging the Pink Bus, but could I maybe at least request the Pink Pedicab on Friday? I have never had a liver biopsy and could use a hand to hold.
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Surgery is Scheduled
I have been scheduled for surgery on the 21st. All chemo is done for now. They will do a mastectomy and a lymphectomy on the right side. The surgeon said the lymphectomy is for insurance. The cancer was barely detectable in the lymph nodes and it is gone now, however, they are coming out just to be sure. She also wanted…
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Tamoxifen Side Effects????
I've been on tamoxifen for about 1 month now and i don't know if the side effects i'm feeling is from the medicine or if it's the fact that my bc mets to bone is just giving me the usual pain. Can someone give me some advise? I have been experiencing so much stiffness, especially when i'm sitting down for a while then i…