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Tumor on Pineal Gland

Jeremiah Kirby
Jeremiah Kirby CSN Member Posts: 1
in Brain Cancer #1

Hi, I'm looking for other people that had a tumor on their pineal gland. 

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  • Indrie
    Indrie CSN Member Posts: 2
    #2
    My son has pineal gland tumor

    Hi jeremiah

    my son was diagnosed with Germ cell tumor at the pineal gland 5 yrs ago. He is now 13.We only did 4 cycles of chemo and refused other treatment. So we tried chnaging his diet n seek alternatives. but of course we followed up with Mri and blood tests mthly. Just in 2017, it started to grow and had two new tumors in the brain as well. Still running more tests to see if it relapse. Do you sharing yours now that its 2018? How do you do now?

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  • ahbaron67
    ahbaron67 CSN Member Posts: 1
    #3
    Pineal Germanoma

    In 1996 at the age of Twenty Nine I was diagnosed with a Pineal Brain Tumor Germanoma. This was a pediatric brain tumor. I had two surgerys chemo & radiation. March 28, 2018 I will be cancer free for Twenty One years. I have No Pineal Gland, pituitary gland or thyroid glands. I have been on hormone & thyroid medication ever since.

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