Osteosarcoma in an adult

mocass
mocass Member Posts: 1
edited March 2014 in Bone Cancers #1
I was diagnosed in Feb 08 with an osteosarcoma in my chest (usually a cancer found in kids, not adults). The cantelope-size tumor started in my right ribs. I had surgery to remove the tumor (they also took my entire right lung, 3 ribs and some lymph nodes). I then went through 5 months of brutal chemo (cisplatin and adriamycin). I had my first post-chemo CT scan in Sept and got the all-clear. I am just looking for other adults out there who may have had a similar experience so we can talk about our treatment experience and life going forward. Are you out there? Thanks!!
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Comments

  • msheida
    msheida Member Posts: 1
    Osteosarcoma
    Hi,
    I`m sorry you had to deal with cancer and congratulation to your clear scan. I whoud like to recommend you this site witch is great. www.abc-survivors.net( Adult bone cancer survivors)

    Love,Shida
  • ercc81
    ercc81 Member Posts: 1
    OSTEOSARCOMA
    HELLO, IM SO GLAD YOU RECOVERED FROM CANCER!! MY DAD WAS DIAGNOSED DEC. 08 WITH OSTEOSARCOMA ON HIS RIGHT HIP BETWEEN PELVIS AND FEMUR HE IS 61 YEARS OLD, HE IS UNDER CHEMOTHERAPY RIGHT NOW BUT IS BEING TOO DAMAGING ON HIM BECAUSE THEY ARE USING SAME TREATMENT AS A CHILD S ONE BUT HE IS LESS TOLERANT BECAUSE OF HIS AGE.. THE ORTHOPEDIC ONCOLOGYST SAID THAT THE TUMOR IS IN SUCH A COMPLICATED PLACE SO THEY CANT REMOVE IT THEY WANNA SHRINK IT AND IF IT WORKKS, THEN THEY WANNA TRY SURGERY, BUT IM TRYING TO FIND SOME OTHER SPECIALIST AND SEE OTHER OPINIONS IF SOMEONE CAN HELP ME I WILL APPRECIATE IT A LOT... THANK YOU SO MUCH!!!!
  • SGW
    SGW Member Posts: 1
    ercc81 said:

    OSTEOSARCOMA
    HELLO, IM SO GLAD YOU RECOVERED FROM CANCER!! MY DAD WAS DIAGNOSED DEC. 08 WITH OSTEOSARCOMA ON HIS RIGHT HIP BETWEEN PELVIS AND FEMUR HE IS 61 YEARS OLD, HE IS UNDER CHEMOTHERAPY RIGHT NOW BUT IS BEING TOO DAMAGING ON HIM BECAUSE THEY ARE USING SAME TREATMENT AS A CHILD S ONE BUT HE IS LESS TOLERANT BECAUSE OF HIS AGE.. THE ORTHOPEDIC ONCOLOGYST SAID THAT THE TUMOR IS IN SUCH A COMPLICATED PLACE SO THEY CANT REMOVE IT THEY WANNA SHRINK IT AND IF IT WORKKS, THEN THEY WANNA TRY SURGERY, BUT IM TRYING TO FIND SOME OTHER SPECIALIST AND SEE OTHER OPINIONS IF SOMEONE CAN HELP ME I WILL APPRECIATE IT A LOT... THANK YOU SO MUCH!!!!

    Similar Story
    Your story sounds very similar to ours. My husband who is 52 was diagnosed with osteosarcoma in late February. His tumor is in his left thigh and is high grade. We are being treated at the Mayo Clinic in Rochester, MN. My husband Karl has just completed two cycles of very difficult chemo and next he will have 5 weeks of radiation to try to shrink the tumor. If that works, he will have surgery to remove the tumor. We have been told that our doctors are some of the best in the world for treating this type of cancer. You dads protocal sounds the same as ours. Where does your dad live? There are several places around the country that have doctors who specialize in the treatment of osteosarcoma.
  • louisevruiz
    louisevruiz Member Posts: 14
    10 years remission from fibroblastic/osteogenic sarcoma!
    Hello,

    I will celebrate 10 years of remission in August 2009. My final diagnosis was fibroblastic/osteogenic sarcoma. My orthopedic oncologist surgeon is located at USC Health Sciences campus in Los Angeles. His colleague and my oncologist is located at UCLA! Both men are incredible. They saved my leg and then my life.

    I had 10 months of cysplatin and adriamycin, direct chemo into the 15 cm. tumor on my fibula then limb salvage surgery! I lost my fibula and perineal nerve. I then had Interferon treatments for 2.5 years to rebuild my immune system. I have to wear an orthotic on my leg to facilitate walking, but I walk well.

    It has been an uphill battle. I am happy to be alive and cancer free. Continue to ask questions and seek information. Aggressive advocate for yourself or for the patient you are supporting!

    Louise
  • cesrod
    cesrod Member Posts: 3
    Osteosarcoma in her right lung
    My wife was just dignosed with osteosarcoma in her right lung, she has not had yet any treatment yet, the tumor is so big that is covering almost all the lung, she is debasted, getting recomendations from somebody that has gone through similar case would be extremely helpful, please help!
  • martyr@tsixroads.com
    [email protected] Member Posts: 2
    Periosteal Osteosarcoma of the Rib
    I was diagnosed in April of 2005, with a periosteal osteosarcoma of the rib. This was followed by a tough regiment of chemo.

    I do hope and pray that all is well with you.
  • janetannchadwick
    janetannchadwick Member Posts: 11
    ercc81 said:

    OSTEOSARCOMA
    HELLO, IM SO GLAD YOU RECOVERED FROM CANCER!! MY DAD WAS DIAGNOSED DEC. 08 WITH OSTEOSARCOMA ON HIS RIGHT HIP BETWEEN PELVIS AND FEMUR HE IS 61 YEARS OLD, HE IS UNDER CHEMOTHERAPY RIGHT NOW BUT IS BEING TOO DAMAGING ON HIM BECAUSE THEY ARE USING SAME TREATMENT AS A CHILD S ONE BUT HE IS LESS TOLERANT BECAUSE OF HIS AGE.. THE ORTHOPEDIC ONCOLOGYST SAID THAT THE TUMOR IS IN SUCH A COMPLICATED PLACE SO THEY CANT REMOVE IT THEY WANNA SHRINK IT AND IF IT WORKKS, THEN THEY WANNA TRY SURGERY, BUT IM TRYING TO FIND SOME OTHER SPECIALIST AND SEE OTHER OPINIONS IF SOMEONE CAN HELP ME I WILL APPRECIATE IT A LOT... THANK YOU SO MUCH!!!!

    Your Dad
    I just came back from a second opinion at Mayo. I have parosteal sarcoma. It's gotten into my groin lymph nodes. I have had it 5 times now. They're recommending a hemi-pelvectomy. They are extremely impressive. I can give you a phone # to call if you're interested.

    Janet Chadwick
    http://www.caringbridge.org/visit/janetchadwick
    [email protected]
    417-343-2909
  • janetannchadwick
    janetannchadwick Member Posts: 11
    SGW said:

    Similar Story
    Your story sounds very similar to ours. My husband who is 52 was diagnosed with osteosarcoma in late February. His tumor is in his left thigh and is high grade. We are being treated at the Mayo Clinic in Rochester, MN. My husband Karl has just completed two cycles of very difficult chemo and next he will have 5 weeks of radiation to try to shrink the tumor. If that works, he will have surgery to remove the tumor. We have been told that our doctors are some of the best in the world for treating this type of cancer. You dads protocal sounds the same as ours. Where does your dad live? There are several places around the country that have doctors who specialize in the treatment of osteosarcoma.

    Mayo
    I'm very impressed with Mayo! I'll be back up there starting the week of July 12th for about a month.

    Janet
  • aykt36
    aykt36 Member Posts: 28
    thanks
    thanks



  • charlottekt
    charlottekt Member Posts: 1
    Osteosarcoma also
    Hi Mocass! I was diagnosed in May with the same thing in my chest. Mine is in my left ribs and recently had surgery to remove the tumor along with 6 ribs. I see that this was in 2008 for you and I would love to talk with you more about this since I am having a hard time finding an adult with the same thing. I am a 28 year old female. Could you please email me? [email protected]

    I really need someone to talk to about this and would appreciate any help or advice you could give me!

    Charlotte
  • balsarbi
    balsarbi Member Posts: 1
    adult osteosarcoma
    Looking for a cardiothoracic surgeon to operate on my niece (42 year old ) for osteosarcoma in the chest. please advice - who operated on you
  • tadamsen
    tadamsen Member Posts: 1
    Osteosarcoma in an adult
    Hi Mocass. Very glad to hear of your story. Keep up the great work! I am a survivor of Osteosarcoma at the base of my skull in 1992. Went through 9 months of Chemo, long surgery to remove tumor and fuse 2 vertebrae then 4 more months of chemo. Seems like so long ago now. Since then I'm fully recovered and playing soccer 4-5 times a week. A full and happy life afterward is definitely possible. I've gotten to where I hardly ever notice any effects from the cancer and surgery. I hope everything is still going great for you and your recovery!
  • MiaAmor
    MiaAmor Member Posts: 1
    balsarbi said:

    adult osteosarcoma
    Looking for a cardiothoracic surgeon to operate on my niece (42 year old ) for osteosarcoma in the chest. please advice - who operated on you

    cardiothoracic surgeon
    Balsarbi I understand how frightening it can be to choose a surgeon for such a delicate surgery. My surgeon, Dr. Mark I. Block is part of the Memorial Healthcare System in south FL. He was my life saver; literally. I was diagnosed with a rare type of osteosarcoma in my left lung. The lung and a few ribs were removed followed by an intense chemo regiment (supervised by MD Anderson in TX). Dr. Block has been a constant source of support and encouragement. Unlike other surgeons, his concern did not end when the stitches healed. He stays informed of all my follow up visits with my oncologist. He encourages me to email him with any questions or concerns. I couldn't have asked for a better person and lucky for me he happens to be a gifted surgeon as well. Good luck in your search, and if I may suggest, give Dr. Block's office a call they are a great source of information.
  • aykt36
    aykt36 Member Posts: 28
    thanks
    thanks you admin










  • tapcat
    tapcat Member Posts: 1
    tadamsen said:

    Osteosarcoma in an adult
    Hi Mocass. Very glad to hear of your story. Keep up the great work! I am a survivor of Osteosarcoma at the base of my skull in 1992. Went through 9 months of Chemo, long surgery to remove tumor and fuse 2 vertebrae then 4 more months of chemo. Seems like so long ago now. Since then I'm fully recovered and playing soccer 4-5 times a week. A full and happy life afterward is definitely possible. I've gotten to where I hardly ever notice any effects from the cancer and surgery. I hope everything is still going great for you and your recovery!

    Osteosarcoma at base of skull
    Tadamsen,

    Where did you have treatment? My husband has osteoblastic osteosarcoma in C2 & C3. He's had 2 surgeries and aggressive chemo. Then he had radiation and cyberknife. But it has grown back. We are about to meet with a new oncologist to see what our treatment options are. Thanks.
  • Erico
    Erico Member Posts: 2
    Osteosarcoma of the mandible
    Thank you for your posts. I especially appreciated tadamsen since he is a nearly 10 year survivor and has a cancer in a similar location to what I had. I was diagnosed with Osteosarcoma in Sept 2011. The tumor was in the right infra temporal fossa originating from my right jaw joint. We prayerfully explored several options for surgery and finally landed at Mayo Clinic. They seemed to have more experience in operating in this area than others we looked at. My surgery was on Oct 17th 2011. The tumor was about he size of a baseball. My right jaw was removed and rebuild using my right fibula. My recovery has been amazing. I feel pretty good all things considered and it has been only 3 weeks. We meet with the chemotherapy doctors here locally today. My chemo was designed at Mayo and we plan on receiving it here locally in Utah. I am 50 but healthy (except for the cancer of course). I have run 11 marathons in the last few years. Because they think that I am healthier than most my age they are suggesting that I have cysplatin, adiamiacin and also high dose methotrexate. I was wondering if any other adults have had any experience with high dose Methotraxate in treating this disease.
  • Erico
    Erico Member Posts: 2
    tadamsen said:

    Osteosarcoma in an adult
    Hi Mocass. Very glad to hear of your story. Keep up the great work! I am a survivor of Osteosarcoma at the base of my skull in 1992. Went through 9 months of Chemo, long surgery to remove tumor and fuse 2 vertebrae then 4 more months of chemo. Seems like so long ago now. Since then I'm fully recovered and playing soccer 4-5 times a week. A full and happy life afterward is definitely possible. I've gotten to where I hardly ever notice any effects from the cancer and surgery. I hope everything is still going great for you and your recovery!

    Thank you
    Thank you for your post. I had high grade osteosarcoma diagnosed at the right base of my skull in September. Tumor was about the size of a baseball. Surgery was three weeks ago. I am just about to start chemotherapy. I really appreciate hearing the words of a survivor. You lifted my spirits. Thank you.
  • Jp2011
    Jp2011 Member Posts: 5
    Erico said:

    Osteosarcoma of the mandible
    Thank you for your posts. I especially appreciated tadamsen since he is a nearly 10 year survivor and has a cancer in a similar location to what I had. I was diagnosed with Osteosarcoma in Sept 2011. The tumor was in the right infra temporal fossa originating from my right jaw joint. We prayerfully explored several options for surgery and finally landed at Mayo Clinic. They seemed to have more experience in operating in this area than others we looked at. My surgery was on Oct 17th 2011. The tumor was about he size of a baseball. My right jaw was removed and rebuild using my right fibula. My recovery has been amazing. I feel pretty good all things considered and it has been only 3 weeks. We meet with the chemotherapy doctors here locally today. My chemo was designed at Mayo and we plan on receiving it here locally in Utah. I am 50 but healthy (except for the cancer of course). I have run 11 marathons in the last few years. Because they think that I am healthier than most my age they are suggesting that I have cysplatin, adiamiacin and also high dose methotrexate. I was wondering if any other adults have had any experience with high dose Methotraxate in treating this disease.

    Hey I'm a girl and I had
    Hey I'm a girl and I had Osteo in my lower left mandible and I had my surgery in April to remove the whole left side
  • Jp2011
    Jp2011 Member Posts: 5
    Erico said:

    Osteosarcoma of the mandible
    Thank you for your posts. I especially appreciated tadamsen since he is a nearly 10 year survivor and has a cancer in a similar location to what I had. I was diagnosed with Osteosarcoma in Sept 2011. The tumor was in the right infra temporal fossa originating from my right jaw joint. We prayerfully explored several options for surgery and finally landed at Mayo Clinic. They seemed to have more experience in operating in this area than others we looked at. My surgery was on Oct 17th 2011. The tumor was about he size of a baseball. My right jaw was removed and rebuild using my right fibula. My recovery has been amazing. I feel pretty good all things considered and it has been only 3 weeks. We meet with the chemotherapy doctors here locally today. My chemo was designed at Mayo and we plan on receiving it here locally in Utah. I am 50 but healthy (except for the cancer of course). I have run 11 marathons in the last few years. Because they think that I am healthier than most my age they are suggesting that I have cysplatin, adiamiacin and also high dose methotrexate. I was wondering if any other adults have had any experience with high dose Methotraxate in treating this disease.

    Hey I'm a girl and I had
    Hey I'm a girl and I had Osteo in my lower left mandible and I had my surgery in April to remove the whole left side...oh yeh I had a side effect on my 21 cycle in October I became paralyzed from the head down from methotrexate and they called it a toxicity poison apparently I was not quick as i have been with urinating and it stayed in my body to long but it lasted it about seven days
  • tweenlives
    tweenlives Member Posts: 1

    Periosteal Osteosarcoma of the Rib
    I was diagnosed in April of 2005, with a periosteal osteosarcoma of the rib. This was followed by a tough regiment of chemo.

    I do hope and pray that all is well with you.

    Osteosarcoma of the rib or in the chest area
    I am curious as to how many adults posting on this subject happen to have COPD and are/were using Advair or another corticosteroid before the cancer diagnosis. Osteosarcoma is rare enough and, of course, in the rib and chest is even more so.