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going back to surgeon
Hey all, I'm going to see the surgeon again tomorrow am. For a long time I thought the pain was due to radiation, but I've been out of tmnts for almost a year. The surgery site has just not healed. I hope to god he can fix this without operating again, but something;s gotta give me some relief. I've tried every kind of…
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House cleaning
In case there are people out there that do not know what kind of services are available to chemo patients. There is free cleaning service for patient going through chemo, it's called Cleaning for a Reason. It is available for any type of cancer and is available in almost every state. Just look them up online and fill out…
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In our first month
Hi everyone, First off I would like to say I hope everyone here going through treatments or family/friends assisting loved ones with them all the best. My wife was diagnosed with T3 N1 rectal cancer at Shands. Luckily after dealing with a few doctors in our town and months of testing without results we were able to go to…
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PET Scan CLEAR!
Great news. My first PET scan after treatment is clear! I am so happy. Doc said its all gone... nothing left and they don't even want to do another follow up PET scan. He said just a little inflammation at the bladder from the radiation. That's it. I will talk to my oncologist... looks like every doctor is different as to…
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bladder; frequency
I am one year and eight months post treatment. I have urinary urgency, fequency and seems like I have to push to urinate. I also seem to have chronic urethral irritation. I know it's post radiation stuff. Does anyone else have this?
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Is this normal now?
After reading many of the discuss boards for anal cancer survivors I feel "normal" now. I have had episodes of "was it really worth it to survive if I have to live like this". And after reading many of your stories I now see that I am not alone. I chose to wean myself off of the pain meds as quick as possible so that I did…
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Flipping port-a-cath
I am one month, 2 weeks post treatment and now I have another problem. My port-a-cath keeps flipping over. Does anyone else have this problem? When will they take this thing out?
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PET Scan CLEAR!
Great news. My first PET scan after treatment is clear! I am so happy. Doc said its all gone... nothing left and they don't even want to do another follow up PET scan. He said just a little inflammation at the bladder from the radiation. That's it. I will talk to my oncologist... looks like every doctor is different as to…
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33 months post treatment
Hi all...I just had my six month "look see" yesterday at the colorectal surgeon .Thank goodness all clear!!! I don't have to come back for another six months.This memorial day is the three year anniversary when the tumor was diagnosed and 33 months NED.It's hard to believe. I haven't been left with out residual effects…
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Non-healing surgery wound
I had an APR (permanent) last May and the anal wound from the surgery will not heal. I have had an in-home health nurse since, had a wound vac for 5 months, some improvement but still not healing. Now pending hyperbolic treatment. Is anyone else going thru this? Also I am surviving on pain killers oxycodone and oxycontin…
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Not sure about the symptoms I'm having...please help
I went to a surgeon today, thinking I had hemorroids and a fissure (my regular doctor sent me to him)I had surgery before on both of those situations. However, for quite a while now, I've had bleeding both on the toliet paper and in the toilet, not a lot, but some. I have also had a lot of pain in the butt area, and its…
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sorry, just a few more questions...
Thanks everyone for answering my other discussion. I am going to the VA clinic tomorrow. I told them what was going on with me and they said they wanted to see me ASAP. This is just with a regular doctor, but then they said they would send me to another VA Hospital to do further testing. I just have a few more questions…
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Reclast IV for osteo porosis
has anyone used this Reclast IV for osteoporosis??? I am 20 months post tx for anal cancer. my osteopor. has gotten worse in spine ( all the radiation ) . i am afraid of the side effects---pain being one of them BUT I do not want to bend over as i get older or break anything. my mom had osteopor. and broke hip, knee,…
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3 months post scope
Hello! Had the scope done by my surgeon 3 months post treatment and only scar tissue left! oh my god... it felt so good to hear that. I looked at the doc and gave him a big hug. We left to Europe the next day for vacation with family. Now the PET scan is scheduled for May. I am hopeful it all turns out ok especially…
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Pet Scans
I am out 27 months post treatment. Just wondering how frequently everyone has had Pet Scans post treatment. My oncologist has been performing Pet Scans every three months post treatment. Now he is doing Pet Scans every six months. My SUV(Standard Uptake Value) is reading 3.3-3.9.
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Pet Scan SUV(Standard Uptake Value)
Does anyone have information on their SUV reading from their Pet Scan? Mine has been running 3.3-3.9. I am 27 months our post treatment.
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Blood in the toilet
This morning I had a painful bowel movement, kind of a ripping, stinging feeling. I had a moderate amount of blood on the toilet paper and in the toilet bowl. Im guessing its the delicate anal tissue probably or it could be my hemrhoid, but Im a little freaked out. I havent had this much blood before, I didnt eat anything…
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horse serum
Well I finally went in for the horsey juice, which the clinical name is Atgam. I went in on Tuesday, I had 4 daily 8 hour treatments, plus 2 more blood transfusions, 4 more platelette infusions. I got out Saturaday, but while I was in there I had rectal bleeding, so they called in the doc who did my hemmy surgery...which…
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2 months out
I am two months out from treatments. Doing good. My energy level is still to be desired. I was diagnosed with Stage 1 anal cancer. I went through 2 rounds of chemo (mitomicin and 5FU) and 6 weeks of radiation. I went through the side effects of mouth sores (severe), constipation, diarrhea, nausea, burn from the radiation,…
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new to cancer, need information
HI my husband who is 34 yers old just got diagnosed with stage 2 colon cancer. The cancersious tumor cannot be removed yet for medical reasons which leads to a stool bag and 6 months of chemo before any removal can be tried. no insurance and unemployed and having no clue to handle this and still be strong while the bills…
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7 months out NED
So, my ct scan and endoscopic ultra sound are clear!!!!! Wishing you all the best. Norma
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Now It's the Liver
I completed the 5Fu/Mitomyicin in Feb. 10 and scans in May showed spots on the liver. Had a PET and MRI and the results were inconclusive. Had another CT in July and no change. CT in December shows lymph node near the original tumor site in the rectum. EUS confirms cancer in the lymph node. PET scan also shows activity in…
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19 month check up
just got back from MDA with no evidence of disease. no real explanation for the inflammation, pain, and pimple that is on my left exterior anal side. but i will count my blessings and keep hoping that time will heal my complaints and stop the daily pain. do not have to go back for 6 months. yea!!!! sephie
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insomnia
I can't stand this. I'm awake all day, I am so tired at night that I feel like I'm gonna fall asleep in my chair, and then I go to bed and I toss & turn. I've tried Melatonin, cuz it's non-narcotic, but I break out in a rash. If I take anything stronger, I sleep for 13 hours unless my husband wakes me up, but then I'm…
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Coming out of the dark
I finished radiation to my left pleura two weeks ago yesterday. It was absolutely a miserable experience. Relentless nausea, frequent vomiting, severe rash, hungry but the thought of food was disgusting, extreme fatigue...yada, yada, yada. This week finds me feeling much better. Still run out of energy pretty quickly but…
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just wanna give up
I can't do this anymore. My husband **** cuz I don't go to the grocery store, I can't be that far from a bathroom that long. The house is clean...I do a little at a time, but God it takes more energy than it used to. Laundry kicks my ****. I have severe insomnia and then when I do fall asleep he wakes me to ask if I…
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Radiation Burns where the sun don't shine - ever
Hi All. I am post-treatment almost two weeks now and am having issues with radiation burns between my butt cheeks, where my legs meet my torso, and inflammation/breakdown of tissue in my vaginal area. My dr. prescribed lidocaine cream to numb the area and silvadene cream to keep the wounds clean. Anybody else have any…
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recouperation
Hey Y'all. It's Melodie. I am going into 7 months post treatment. But...I have developed a rare anemia that is eating my bone marrow. So I've been doing treatments for that. I had a blood transplant on the 28th, hoping that I would be good to go till the 11th, when my kids left, but, no had to go 4 another oner one this…
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vaginal staph
I've been complaining to a handful of different doctors now (gyn, pcp, onco, rad, urology) about this green and pee-looking discharge from the vaginal area. I finally was able to "collect" some of each of these discharges (gross!!!), and took them to my pcp. She's been "lab analyzing" them both for a week now and initial…
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fissures
Hi everyone, I am new here and have not yet been diagnosed with anal cancer, but seem to have all of the symptoms. Did anyone get diagnosed with fissures (multiple times) before the actual diagnosis of anal cancer? I had a colonoscopy in early 2009 and had no polyps (have had them before). I have had rectal bleeding for a…