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At MDA....
Started testing this week and wll continue Monday.....boy oh boy ... Will be glad to know where I am going from here! I don't mean to sound "poor me", just nervous... Happy for Liz
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colonoscopy
i just had my first colonoscopy since tx over 25 months ago, yesterday. my colo rectal surgeon used a pediatric scope. sooooo much easier. no pain . no bleeding. unbelievable because i still have pain and bleeding after some BM's, walking, sitting, proctoscope, etc. the peds scope is nice. so suggest it if any of you are…
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Rectal To Liver Cancer
Hello, all. I'm brand new. tpmack37's post on the Rare Cancer Support Forum (which I read yesterday)... http://www.rare-cancer.org/forum/viewtopic.php?t=3626 ...brought me to Google his alias and it brought me to this place, specifically his thread @ http://csn.cancer.org/node/190358 So here I am. My family is currently…
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urgency after 2 years
Hi: It's been almost two years since radiation and chemo and I still occasionally get caught off guard, where I have to find a bathroom right away or go on the street. I'm still not used to this; I feel humiliated. Does anyone else have this challenge?
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what caused this?
I have read some other opinions. Has anyone taken prescription meds. for GERD? Not to use brand names but you know the acid reducers? And how many of us suffer from IBS prior to this diagnosis? Just wonder is that may be a factor.
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New guy
Hello - New guy here. Diagnosed Feb 15 with rectal cancer and told It would be taken out as I was waking up from Colonoscopy / Biopsy. RE-Diagnosed the next morning with Anal Cancer. The doc really thought it was a rectal tumor growing down into the anus, "but I was wrong" he says: "it's anal tumor growing up into the…
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Scared....
I woke up this morning with my stomach in knots! All of a sudden I am scared to death! I report to MDA on Tuesday week and every thing is suddenly real. I have cancer. I do not know what stage. I do not know what the treatments will be. I don't even know if it has been caught in time to really do any thing about it! I…
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Ideas for Pain???
Im looking for someone to please tell me how to help with the pain from radiation. My mother has Stage III rectal cancer and the site where she is receiving radiation is so badly burned. I just feel so helpless when I see her crying from all the pain. She is taking oral pain medicine around the clock and putting Silvadene…
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1.6 chance in 10,000 - WHY??
I have always been a questioning type of girl. So, I just have to ask 'WHY'. Why me? Why us? 5000 new cases per year for 308,000,000 people in the USA = 1.6 in 10,000 chance. I was diagnosed in May 2011 at 49 years old and have completed treatment. I was completely flabbergasted when I received my diagnosis!! Like so many…
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Feeling good until..
The mother of one of my son's high school friends ( an RN of many years) asked the old "what kind of cancer" and responded "well...good luck with that!!!). Doesn't give an already scared woman any sunshine feelings..... I know my tumor is the size of a walnut, invasive, etc. Two weeks til my apt at MDA. I may be crazy by…
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Neutrophils dropped and Lymphocytes increased
Am worried as my neutrophil count went to 36 (normal is 41-81) and my lymphocytes count up to 47 (normal is 13-46) and basophils up to 3 (normal 1-2). I am 7 months NED. I feel more tired but don't have a cold or anything. Did you experience your counts up and down still?
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Good Morning
Hi everyone hope you all are feeling good well i will be meeting my cancer doctor today and see what she says fri i get my CT scan i got me a folder to put all my info in from all of this so that the doctor can ask for things and all i have to do is pull it out for her my son is still worried that he is going to lose me i…
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Perineum
Hello, I just had a biopsy on my perineum, the space between the vaginal opening and the anal opening. My perenium was taut after tx and whenever I had a dre or used the dialater a small opening would form and a little blood, this happened about 5 times, but would close and heal. Now about 4 months ago I had a pabst and…
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things are moving fast!
Hi everyone hope all is feeling good well i saw my reg doc today and she and i talked about what is going on and what i have to do now she told me what they will look for on the CT scan which i will have done fri she gave me a cancer doctor which i called and will see wedsday i thought to my self that wow things are moving…
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Post Treatment Regimen
I am working with a clinic combining Western and Eastern Medicines. They have recommended to me a regimen for the next two years to support the non-recurrance strategy. Basically support my body to make sure that the cancer has little chance of returning. I have not seen any posts about this type of protocol and wanted to…
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new here
Well hi ya'll. I am new here-been reading some of your posts and it is good and bad to know there are others out there like me. I was diagnosed in mid-July after a routine colonoscopy-I had blown off symptoms as hemorrhoid related (maybe there should be a t-shirt "But I thought it was just hemorrhoids...."). I am T2n0m0,…
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Shame...anyone else feel this way?
Dear Friends ... I never knew I had HPV until I was diagnosed with cancer. I feel shameful and am having a hard time dealing with my shame and sense of "causing" this in someway. My husband (second husband) loves me unconditionally, however I'm having a hard time with accepting myself right now. Can you share your feelings…
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Curiosity question
Did you lose your pubic hair with radiation, and if so, did it come back? Just curious ... certainly not a big issue. Ooops ... I found this info in another discussion item in March ... however, would still like to hear your experience.
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Constipation????????
I know just started treatment Chemo and Radiation this week only 4 days in, and I'm so constipated. Eating well, no nausea, lots of gas, and burping. Taking colace in small doses for two days, along with prunes. Lots of water and fluids. Sat in a bath of Epsons salts someone suggested. Didn't work. I don't know if I should…
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CEA levels
I am 11 years out from having anal cancer and every 6 months when I get my tumor markers checked my CEA has always been up and down, but above the normal.... it goes from 3.3 to 4.3 to 5.2 and down to 4.2, now it's 5.7. Pet scan clear last year... just went for CT. Does anyone else have fluctuating CEA levels?
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lymphedima
I am a 9 months post tx for stage 3 anal canal cancer survivor and have recently developed lymph problems Nodes were involved in my groin area). Does anyone have any info on this. My Dr. said it can last for years. I have a thickening of the skin on my abdomen (Dr. called it orange peel), and lots of bumps on my pubic…
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Tattooed and Ported
Hi = just posting to complain I got my port today and feel like I got shot in the shoulder. I was very irritable last night. Tried hard to be upbeat but I just confessed to everyone around me, especially my dear husband, "please forgive me as I know I am irritable." So I guess I am still a little irritable and tired. Also,…
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Frustrated with a friend...
She was diagnosed with Stage I anal cancer a year ago. Instead of having the tumor removed and starting the Nigro protocol, she traveled to Germany and then to a clinic in Mexico for alternative treatments. Two weeks ago, she was told the cancer had returned and metastized to her peritoneum and a couple of lymph nodes. Now…
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Internal Radiation
My last radiation treatment will be this week. It is a two minute internal one. Has anyone experienced this type of radiation?
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3 days in hospital
Hi - I finally escaped from being in the hospital three days. It started with just my counts being low and getting a transfusion, but my blood pressure dropped really low and I got fluid around my heart and lungs and had to be admitted. This is where everything went really bad for me. They had to handle the meds of course…
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Books
Someone mentioned an e-book related to anal cancer and I can't find the entry! Can someone help me? Thanks! Lorie
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How many years for pet/ct scans?
I am now 5 years post anal cancer treatment...everything is fine...feel great. Have had annual Pet scans and now my Dr. wans me to get another. It is hard to find Info on this subject. Anyone know how many years we have to get these scans?...Do we ever stop them?
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port vs pick line
First timer, can anyone tell me the pros and cons of port vs pick. Thanks in advance.
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Follow-up testing
I'm curious about what kind of follow-up studies your oncologists and colo-rectal surgeons are doing for you after treatment is done? Do get a DRE, EUS, PET CT, CT only, PET only? And how often? Also, my oncologist requests a PET CT every three months for the first year ... I fear my insurance won't cover this. What are…
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giving it up
I'm done y'all. now they want to start trestments all over. I can' do it. Good luck to you all, Melodie