A Place For Us
I would like to take this opportunity to be the first to post on the new Anal Cancer Discussion Board. I have been posting on the colo-rectal board for a couple of months now and find that they are an awesome group of people to be connected with. While there are similarities for all of us fighting or caring for someone fighting any cancer, the specifics of treatment, side effects, testing, etc., do differ from one type to another. This results in different concerns, questions, and dialogue. I contacted Greta here at CSN and she agreed to open a discussion board for us, it will be a on a trial basis to see if participation warrants its continuation. It is my sincere hope that it will and that we will all benefit from connecting and sharing.
Blessings to all,
Joanne
Comments
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Joanne,
I have several
Joanne,
I have several friends on another forum that have anal cancer and feel they have no place to discuss their concerns. I'm going to head over there right now and invite them to join you.
Thanks for thinking of others!
Diane0 -
Great!
Joanne,
Thanks for doing this! I think it is wonderful that you were able to get us a board. One of the reasons I searched elsewhere was because it was so hard to find others with the same type of cancer.
I will be here to help support the discussion board. Thank you! You don't give up and that's what I like about you. It's that same preserverance that will get you through ridding your liver of that one tiny spot!!!
God bless,
Liz0 -
Thank you for getting thisKathy09 said:Good Luck
Im sure people will join you. I have bc but noticed this new cancer topic on the board. Best to you.
Thank you for getting this network together for support for us anal cancer people...
When I was diagnosed in 2002, I could not find a support group just for anal caner and I am so happy to see many sites opening up. We all need to know someone understands us.0 -
anal canceer
WOW - this is fantastic! This is exactly what I've been looking for since 1992 when I was diagnoised with anal cancer. When I was going through my treatments of chemo and radiation, I sat with the breast cancer ladies, but I felt out of place. I ended up with the men who were going through prostate cancer. Our radiation treatments and the unfortunate problems from radiation were more similar.
You have opened a very important link for me and I'm sure there will be many folks that will follow.
Off I go to work, but I'll check in more frequently and be an avid supporter.
Blessings to you and all that are on the CSN connection.0 -
Thank You!
Joanne--
As an anal cancer survivor, I want to thank you for your successful efforts in establishing this forum. There are few places such as this for those with this cancer to connect with others going through the same experience. Anal cancer continues on the rise, so I hope there will be good participation, allowing this board to remain. I look forward to participating on this forum and sharing my experience to help others.
mp3270 -
Marciaunknown said:This comment has been removed by the Moderator
Glad you found us! My initial treatment was in 2008 and thank goodness the radiation was successful in treating the mass. However, that was not without awful side effects on all things pelvic! My bowel issues were lingering but not constant. The effects of the radiation can take a long to time run their course. If I recall correctly, it is still "working" for a year after the treatment ends. Mine was worse as I introduced spicy and rich foods back to my diet. I still have episodes from time to time. Do you find that yours is constant or random? Is it improving or remaining pretty much the same? I am sure that others will be on shortly to add their opinions and expertise in this area.
Blessings,
Joanne0 -
GREAT idea!!!!
Good job!!!!
Don't forget to keep us posted on the colorectal board, also!
Anal cancer is so different, you are correct! I had a mix....squamous cell carcinoma (anal usually) in the first rectal fold (rectal...lol). Then, I also was 'lucky' enough to find stage II breast cancer (unrelated...adenocarcinoma) 6 months after my first dx...So I guess I will add this board to my favorites, as well...
Hugs, Kathi0 -
Stomach Problemsunknown said:This comment has been removed by the Moderator
Marcia,
I completed treatment 6-30-09. I had urgency and several bathroom visits a day. Evenutally the urgency and frequancy lessoned and I'm basically back to normal. Maybe 2 bathroom visits a day, as compared to 1 pre treatment. It will get better, as the radiation, I've been told continues to work for up to 6 months after treatment is completed, therfore your colon and anal canal are recuperating. I did have an infection in my colon after treatment, which I was told is common after radiation. I was given antibiotics to solve that problem, in which the antibiotics worked. I hope your doctor can help you with your colon. I wish you well. Lori0 -
stomach problemsunknown said:This comment has been removed by the Moderator
Here's what worked for me after some recent surgery that took 3months to get me back out the door with reasonable confidence. The BRAT diet - banana, rice, applesauce and toast. See a Nutritionist or Dietician that can guide you slowly into a normal diet and confidence that the bathroom is suppose to be an occasional place you go - not live there. It took a couple of weeks and some big changes, but my colon healed and it is my life again with some foods that I've learned to just eliminate from my diet.
Once your nutritionist gets your tummy on track, then you see how quick the rest falls into place. I also see a Gastroentologist (spelling may be wrong) - they can help with the meds your on and help to manage better the meds that can aid in stopping loose uncontrollable bowel movements.
I'm going to be here so let me know how you make out!
Blessings to you!!0 -
Howdy all..................KathiM said:GREAT idea!!!!
Good job!!!!
Don't forget to keep us posted on the colorectal board, also!
Anal cancer is so different, you are correct! I had a mix....squamous cell carcinoma (anal usually) in the first rectal fold (rectal...lol). Then, I also was 'lucky' enough to find stage II breast cancer (unrelated...adenocarcinoma) 6 months after my first dx...So I guess I will add this board to my favorites, as well...
Hugs, Kathi
CRC or anal cancer are all mostly pain in the butts anyway ya slice it...Is it ok if we CRC people refer to ya'll as "cousins or cuzs" cause we are all pretty close in dx and in spirits also......Yeah, I just had to peek in here.....Love and Hope to us all, Buzz0 -
Be Patient!unknown said:This comment has been removed by the Moderator
I can certainly relate to your ongoing bowel and intestinal issues. I had treatment back in July - September 2008 and still have urgency and frequency at times. Mine is mostly diet related and happens when I get off course and eat something I shouldn't. Overall, though, I am much improved and these issues no longer keep me homebound like in the beginning. You are not that far out from treatment, so the best advice I could give is to keep working on tweaking your diet (with the help of a dietician or nutritionist, if necessary) and be patient. My rad onc also told me it would be fine to take an Imodium AD routinely once a day--you might try this. My best wishes to you--I hope you see improvement very soon.0 -
mthomas and stomach problemsunknown said:This comment has been removed by the Moderator
I was diagnosed with anal cancer 5/08. Like you,I also had 31 rounds of radiation and 2 courses of chemo.I am now 17 months out from last treatment and feeling pretty good.I just had a scope today and am clean...Thank god. The bathroom problem will get better. You also have to learn which foods trigger the bathroom dash.0 -
Stomach Problemsunknown said:This comment has been removed by the Moderator
Congrat's on being ned and welcome to this board. I am so glad that CSN opened up this board to anal cancer.
I too had 5 weeks of rad and two tx of chemo, My last rad was end of June 09, I am still having some problems with stomach, bowel and urine problems. Just had surgery to open up the vagina. I highly recommend that you start using dilators know that you are just a few months out of radation. I wish my radation doctor or oncologist would of ordered them right off the bat. I ended up going to a gyno to help me with my vigina problem. Also reference the inflammation to colon will settle down.
Brenda0 -
JoanneJDuke said:Marcia
Glad you found us! My initial treatment was in 2008 and thank goodness the radiation was successful in treating the mass. However, that was not without awful side effects on all things pelvic! My bowel issues were lingering but not constant. The effects of the radiation can take a long to time run their course. If I recall correctly, it is still "working" for a year after the treatment ends. Mine was worse as I introduced spicy and rich foods back to my diet. I still have episodes from time to time. Do you find that yours is constant or random? Is it improving or remaining pretty much the same? I am sure that others will be on shortly to add their opinions and expertise in this area.
Blessings,
Joanne
Yes I believe its
Joanne
Yes I believe its much better then before because I had no control over it and the stomach pain isn't as bad as last month. When I eat food it's constant bowel movements.
My doctor gave to lotomil pills to slow the loose bowel down and hyoscyamine pills to help with the stomach pain. But taking the lotomil can made me not have a bowelment for 3-5 days
Last week my GI doctor did a upper GI my test results showed I have a hiatal hernia and also a lower GI that test results showed colonic mucosa with mild hyperplastic on the sigmoid
Marcia0 -
stomach problems and loose bowelsphillyAC said:stomach problems
Here's what worked for me after some recent surgery that took 3months to get me back out the door with reasonable confidence. The BRAT diet - banana, rice, applesauce and toast. See a Nutritionist or Dietician that can guide you slowly into a normal diet and confidence that the bathroom is suppose to be an occasional place you go - not live there. It took a couple of weeks and some big changes, but my colon healed and it is my life again with some foods that I've learned to just eliminate from my diet.
Once your nutritionist gets your tummy on track, then you see how quick the rest falls into place. I also see a Gastroentologist (spelling may be wrong) - they can help with the meds your on and help to manage better the meds that can aid in stopping loose uncontrollable bowel movements.
I'm going to be here so let me know how you make out!
Blessings to you!!
PhillyAC
This make my fourth month on the Brat diet and on TPN I been seeing a nutritionist also that long.
Thank u for sharing I really need all this help from others.0
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