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New Memeber on the Block
My world changed on June 7th 2011. Things have been moving pretty fast. June 3 colonscopy June 7 Anal Cancer June 10 CT/Pet Scan June 14 Meeting with my two wonderful doctors and results of PET scan June 16 Lymph Node biopsy in my right groin June 21 Results are great - node is clear - I get my tat's and I am simulated to…
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Follow up PET scan
Question for you all: I am now 5 months NED and my schedule for follow up is every 3 months scope with the surgeon. No more PET scan necessary so they say. Should I push for one after 12 months? My alternative doc told me that chances of it reoccuring at the anal area are slim to none since they radiated it. However, if…
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Doctors just love looking at my butt . . .
and I don't mind at all! I go back to Scott & White again on Friday. My radiation oncologist prefers to see me every month and a half for the first year. My surgeon oncologist wants to see me every three months and then my general medical oncologist has me on a six month appointment schedule. I'm not feeling ignored,…
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4 years bleeding before diagnosis
4 years of bleeding before diagnosis what the chance of survival hi i just been diagnosed. feel like i been hit with a brick anybody out there had long term bleeding before they got the cancer treated. stupidly thought it was piles
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Picc Line In - Sore-Pain-Help?
Good Morning Everyone I received my picc line yesterday and ........they said I would not feel anything after it was in.WRONG It hurt going in. Dr said my veins were small so he had to go with the large vein, I do not remember the name, that runs all the way down to my hand. I had tingling and twiching in my wrist and…
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Exercise
Hi All, Well I took it upon my self to start exercising, cuz I'm tired of waiting on my doc to set it up. I have decuded NOT to be an old woman at 50. So on Friday night I did 10, each leg, leg lifts. My joints still hurt, but I felt the muscle burn the next day. I can handle it...I know I'm not gonna stength in one time,…
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Losing it
Hey Y'all...has anyone ever gotten to the point I am at I am 8 months post tx and tonite I finally lost it. I totally understand that it,s hot out &nmy husband works hard, but do I need to be his scapegoat for the **** he goes thru at work? I'm going to apologize for any language I use, but I have f....... had it! At least…
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Life Expectacy Less Than One Year
I have stage 4 anal cancer that has spread to the liver, lungs, and groin area. My oncologists give me less than a year to live. I have tried various chemo drugs to date, and my tumors, though small, are not reducing in size. I am surrounded by great friends and have a loving partner. Unfortunately, he lives in Europe, and…
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new here
Hello everyone. My name is Suzy diagnosed with stage 11 anal cancer no spreading on May 6th. Will start six weeks of radiation and chemo starting Monday. Got my tats today. I have been lurking and just thought it was time to tell you all hello. Any advice appreciated. Sorry I dont know the abbreviations on things.
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HELP ME PLEASE, ANAL SURVIVOR, CT SCAN RESULTS
PLEASE SOMEONE HELP ME.....PLEASE HELP ME.......I AM SO SO VERY SCARED. Hello, My name is Nina, I have visited the boards in the way past. I am a 2x cancer survivor, of 9 yr breast and 6 yr anal cancer, neither were related. I am 50. I have other health issues and disabled housebound. Here is the recent activity with my…
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No Ovarian Cancer = June 15th surgery over
I had a genius surgeon who pulled multiple tumors out with my ovaries and fallopian tubes (I lost uterus to cervical cancer in 1976). Well much to his surprise, I think since he had take out lymph nodes in the surgery plan, no cancer in my ovaries! Whoo hoooo!So he left those lymph nodes right where they belonged. Now I…
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PET Scan
PET scan tomorrow morning with results on Wednesday. I am trying not to get to anxious about the scan, easier said than done, as you all know. The steroids seem to be helping with the radiation pnuemonitis. I am feeling some improvement, but it is slow. My face is as round as a moon and I cannot get enough to eat!!!…
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Radiation
I have read many of the stories throughout the discussion board and it seems everyone I have read states that people had between 2 weeks to 6 weeks radiation treatment. Did any of you have 12 weeks of treatment? I started my treatments towards the end of March and those treatments continued to the end of June. 5 days a…
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A good check-up
Hi, everyone. Just wanted to say that my scans showed all clear, so now I am 15 months clear since treatments. I have my next scan in 4 months. Today's doctor's appt was about the worst as far as waiting for results. Does it get any easier as time goes on? I think I get more nervous the longer I am in remission. I know I…
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Follow up appointment
Just need some reassurance. I am now 5 months post treatment. PET scan was clear and scope showed completed healing. I have another scope scheduled for July. I am feeling something annoying in my anal area. It's that familiar feeling of having something there... I am wondering if I am just getting nervous... I am feeling…
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Howdy Folks:) Sue Relays Asked Me to Post My Results Here
I'm sorry to butt in your territory, folks. I got to know Sue when she visited the Colorectal Board - she's been a good friend and terrific supporter to me. And since she does not get over to our side very much anymore, she asked me if I would post my results over here so she could see them. I hope you don't mind. From…
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'Bridesmaids' the movie
Oh, my. The bride-squatting-in-the-street scene definitely hit a familiar chord. :) :) Not a movie for the easily offended, but a GREAT escape for everyone else. Funniest movie I've been to in chemo-brain memory!!!! (Rated R for foul language and sexual content.)
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Checking In
Hi everyone. Well it has been an interesting 2 months. I finished radiation to my pleura at the end of March. It was ghastly and really knocked me to my knees. Rather than take the time to allow myself to regain my strength, I jumped in with both feet and resumed my regular activities about two weeks post treatment.…
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Ostomys - a subject seldom discussed
I cannot even fathom the idea of having an ostomy. Are there any survivors out there who are living with an ostomy? Is it standard procedure during surgery? If I could get some feedback perhaps some of my fears would be alleviated. I've not even seen any posts in regard to the subject. I take that back, I did see one when…
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first appointment
Hi, I finally had my first appointment and found out a lot about how little I understand doctor-speak. I had the ultrasound you must all have had. The doctor said the tumor was much smaller than the gastro doctor said it was - 3.5cm instead of "the size of a cigarette". That was such good news, I couldn't believe it at…
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worsening pain
As most of you that know me, you know that I have had a boatoad of side effects and have not improved. In fact, it's getting worse. I can't cook anymore unless it;s boxed or canned and the I can still only do that a couple times per week because I can't stand for the time it takes to cook a meal. I'm going for lab and an…
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Possible Anal Cancer
Hello All... I am concerned and worried. For two years in a row I had to have some growths removed in my anal canal due to HPV. Today my colorectal doctor found about a 3cm lump type thing in my anal canal and her words were that it didnt feel or look like a cancerous lump however she will cut this out (compared to…
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Keep up on your appts!!
Hi All I know I haven't checked in for quite awhile....I do read everyones posts when I have time though. I decided to just try to live life and forget about cancer for awhile. Unfortunately, that is not someone else's plan. When going for my recent scan to check lung, liver, pelvic area, they found a lump on my breast. I…
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My Wife just diagnosed
My wife has just been diagnosed with anal cancer via a colonoscopy. The whole tumor was removed during that procedure (I don't think that is standard is it?). I thought a biopsy was supposed to be done then radiation/chemo. The GI doc(kept referring to it as a polyp though-it is has squamous cells and is hpv positive) and…
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pelvic & hips
Hi y'all...I understand that pelvic and hip stiffness is common between those of us who have gone thre, or are going thru these treatments. Until I start PT does any one have have home remedies I can try? It's driving me crazy not to be able to cook, clean, hell...move. It's palnting season, I have my step daughters…
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Good results from 2 yr scan
Hi All: I usually just check in to read the posts; shudder at the memories; and say prayers for those still undergoing treatment. I wish this site had been around when I was going through treatment back in 2009. Be sure to tell your Doctors (or their NPs) of this site. I saw mine today at the office and asked her to please…
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A Place For Us
Hello everyone, I would like to take this opportunity to be the first to post on the new Anal Cancer Discussion Board. I have been posting on the colo-rectal board for a couple of months now and find that they are an awesome group of people to be connected with. While there are similarities for all of us fighting or caring…
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waiting for appointment
Hi, I've been diagnosed with Anal cancer, with a tumor that goes up my rectum to the colon - about the size of a cigarette. That was from biopsies taken after colonoscopy. CT Scan reveals some ovarian cysts also but that's about it. All reports have been sent to Sloan Kettering and I'm waiting to hear about an appointment.…
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pdees
Hello pdees, I noticed your post in the older ones and just wanted to welcome you to the board, but I'm sorry you had to find us. Just wanted to say this is a curable cancer, and you can do this. I wish you well. Lori
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going back to surgeon
Hey all, I'm going to see the surgeon again tomorrow am. For a long time I thought the pain was due to radiation, but I've been out of tmnts for almost a year. The surgery site has just not healed. I hope to god he can fix this without operating again, but something;s gotta give me some relief. I've tried every kind of…