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Anal Cancer

Anal Cancer Color Survey
Below are the anal cancer color survery results I received from The HPV and anal Cancer Foundation. ============================================================== Dear Mike, We are excited to announce that purple and green won the anal cancer ribbon vote! It was a close call. The final tallies are: Purple and Green 46%…
Deciding treatment
I was wondering if anyone out there had IMRT instead of the full pelvic radiation. I am recently diagnosed and waiting for a PET scan to verify if the cancer was in my lymphnodes as one lymphnode across from were the tumor is was slightly "puffed" 7mm. My doctor told me about IMRT and that it was not used enough nor long…
genetic testing?
I've been asked by one of my siblings if I'd had any genetic testing as a part of the whole diagnosis/treatment biz. We have another sibling who has survived colon cancer. My sister's gynecologist is interested in testing her because of the two of us having had colon and anal cancer. I know that I reported my brother's…
Just thinking...
I just have to say this....I HATE CANCER. I am having one of those weeks filled with thoughts of metastasis, recurrence, getting affairs in order, bucket lists. I just hate it. This is the first time it has really gotten to me. I don't let on to family and friends because I don't want to worry them. I am sure you can all…
Martha's low residue diet
Hi Martha, I am interested in exactly what you are eating and about what size portion. I have not had the success that you are having with thenlownresidue diet. I have just had another partial blockage and itnwasnextremely painful. I am also interested in what you are drinking and how much. I really appreciate your help.
NCCN guidelines re. Suveillance
Well, given the week that I have had, I finally broke down and registered with NCCn to read guidelines. If I am reading this correctly, scans are NOT part of the accepted protocol for surveillance for stage 1-2 anal cancer. It appears that what is recommended is DRE and anascope every 3 - 6 months for 5 years. So, given…
Aldara ???
Has anyone had an experience or heard of experiences of using Aldara internally as a topical treatment for anal lesions ?
Survey on Variation in treatment protocol for SCCA by MD and/or treatment facility & anal cancer=ve
I have been reading posts since joing CSN in Feb. I am at MDAnderson, Houston, TX, with t3n0m0 squamous cell anal cancer. Biopsy shows HPV16...getting 1 shot of mitomycin + 5FU x 4 days chemo + Variant Trilogy radiation daily x 54 Gy....+ second round of 5FU chemo x 4 days at wk 5 without Mitomycin + daily…
multiple recurrence after surgeries ?
not sure if I am having another recurrence, was diagnosed by the gastro doctor in 2009, thought I had a hemmoroid so I finally went to check it out, he immediatly reffered me to a colorectal surgeon to be seen that same day, the surgeon said it appeared to be anal cancer and concurred with the gastro that it was not a hem,…
Good news today
Hello Friends I have never posted on this site before, but I have read posts from members and learned to be more at ease with my anal cancer diagnosis. Like many of you, my doctor was treating me for hemorroids, although I had never had a hemorroid in my life, even during my pregnancies. My doctor finally referred me to a…
Will I ever have sex again? I'm so scared
My chemo and radiation will start after New Year and I am so scared. Not just the treatments themselves, but the vaginal aftereffects, shrinkage, using a dilator, and all of that. I got married in July and I am worried that we may never have sex again. I wonder if it's best, or even possible, to begin using the dilators…
???!!! More?
I don't think SCC can metastisise to the breast can it? I just got a call fro MDA to come in for additional mammogram films and ultrasound. I really don't think it will be anything but am paranoid..... Wonder why?BTY, ITS a good thing I'm in Dallas right now instead of home! 4 hours travel vs 2 days?
I'm so tired
still.........
First "Analversary"!
I just celebrated my first "analversary" of completing my treatment! I am doing really well overall. I'm able to eat a regular diet and can tolerate high fiber foods again. I have normal stools once a day (after many months of going 3-4 times/day). I can hike for 3+ hours, ride my bike (using extra seat padding) and have…
Protecting your privacy
I think it is worth noting that when you go on to websites like NCCN, you will be asked to give your personal information and once you do so, you have no reasonable expectation of privacy. Some of us have no problem with that, and that is fine. If you have a reason or a desire to keep your cancer diagnosis private, it…
Good news today
Hello Friends I have never posted on this site before, but I have read posts from members and learned to be more at ease with my anal cancer diagnosis. Like many of you, my doctor was treating me for hemorroids, although I had never had a hemorroid in my life, even during my pregnancies. My doctor finally referred me to a…
email spam/ scam through CSN private email
I only participate in this forum, and just received a lengthy private email through CSN from Nigeria/ Cape de Verde soliciting donations...........thought I would warn others....CSN should have some sort of quality control over being spammed through our private emails.
Treatment
Hello again. Wondering if i could get an idea from some of you how long it was from the time of diagnosis till the commencement of treatment please? Also, is it possible to work over the six week treatment program my sister will be going through. She is very worried as she is having sharp stabbing pains in the ovary area…
Post TX questions
Hi, I finished TX on Jan 10th. I have several questions about followup TX I have already been to see RAD ONC 2 weeks after TX ended and was told all looks great, i am healing well and they want to see me again in 4 months (is this appt necessary) or I am just going to go there and they will say yup you have some nice scars…
One month Post Treatment And Pain Is Back
I'm a little discouraged. I was doing pretty well, and I'm scheduled to start work again tomorrow. I'm starting with short four hour shifts but they are from 9 to 1:00 and I work the front desk at a library. I'm not sure how this is going to work out. I am still making about four trips to the bathroom in the mornings and a…
Anal cancer ribbon color???
Greetings, all . . . Does anyone know the results of January's vote to choose an anal cancer ribbon color?
Zofran vs Phenergan
Zofran or Phenergan for nausea? I've taken Phenergan for migraines but didn't know which is better for this?
Messed around
Hello again, again and again! Seems I posted 3 times, so sorry. My sister seems to have been messed around in the system. She was sent along to her second appt at the hospital only to find no one knew why she was ther eand could not confirm her diagnosis, she got teary so they told her to come back the next week and they…
Newbie
I am 42 years old and was diagnosed Feb. 20, 2013. Luckily, I am stage 1. I would love any input on what to expect. When did you start feeling really bad? I will start chemo and radiation March 4 for 6 weeks. Were you able to continue to work through week 3? I'm frightened but so so hopeful because of the stage and it's…
Vaginal Dialator
No one in the radiologists office has mentioned using one of these so I am going to broach the subject tomorrow. I know many of you have used them, is it something you have purchased/educated yourselves with or more a part of your medical treatment plan and provided/educated as such? Thanks in advance
myelodysplastic syndromes
I had my semi-annual checkup with oncologist this week. It seems that my white blood cell count has been dropping. Six months ago it was 3.8 - now it is 3.5. From what I've read, normal is 4.5 to 10. My anal cancer was diagnosed in April 2009 and I completed treatment in June of that year. I'm a bit concerned because one…
Am I imagining things?
I'm three weeks into the combo platter (5FU+mitomycin+radiation) and lately I've started "almost" noticing a very vague warm feeling during my radiation treatments in the affected area. Is it possible the area is becoming sensitive enough to actually feel the radiation, or am I imagining things?
marking a milestone - anyone else?
I'm going back to work today! I'll be half-time for a while but it's so good to know that I can do this. I'm excited and apprehensive. I've been away from work for seven months and now it's over. Thinking about my milestone - last day of treatment, hearing that my tumor is gone, getting my straggly short hair cut and…
My biopsy results are NED!!!
My doctor called today and told me that my biopsy results show no signs of cancer!! I was at work and cried like a baby. Hats off to a clever coworker who knew I was waiting on the results and thought to ask me "Is it good?". At that moment all I could do beyond crying was shake my head YES!! She yelled for me..then the…
Tumor pain after radiation
I completed my radiation treatment 3 weeks ago and am still having pain at the tumor site. Burns are healing quite nicely. Has anyone else experienced pain at the tumor site post radiation?

Anal Cancer

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