The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Protecting your privacy

Marynb
Marynb CSN Member Posts: 1,118 Member
in Anal Cancer #1
I think it is worth noting that when you go on to websites like NCCN, you will be asked to give your personal information and once you do so, you have no reasonable expectation of privacy. Some of us have no problem with that, and that is fine. If you have a reason or a desire to keep your cancer diagnosis private, it would be best for you NOT to give your personal information. In my opinion, the guidelines for treatment of all cancers should be available to the public without having to surrender your privacy. Just a word to the wise, if you are employed or hope to be employed, you may want to think twice about your privacy. Once it is out there, anything could happen.
Like Care

Comments

  • LaCh
    LaCh CSN Member Posts: 557
    #2
    marynb

    what's nccn?

    Like Care
  • NYinTX
    NYinTX CSN Member Posts: 64
    #3
    email scam/ spam

    see my earlier post re: receiving scam/ spam $$ solicitation through private email through CSN

    Like Care
  • RoseC
    RoseC CSN Member Posts: 559
    #4
    LaCh said:

    marynb

    what's nccn?

    NCCN

    NCCN is the National Comprehensive Cancer Network. Description from WebMD:

    'The National Comprehensive Cancer Network (NCCN) is a nonprofit alliance of 21 cancer centers throughout the U.S. Experts from NCCN cancer centers diagnose and treat all cancers, with a particular focus on complex, aggressive, or uncommon cancers.

    The National Comprehensive Cancer Network also develops the NCCN Clinical Practice Guidelines in Oncology, a set of recommendations designed to help health care professionals diagnose, treat, and manage cancer patient care. These guidelines have also been translated into the NCCN Treatment Summaries for People with Cancer, which help people with cancer better understand cancer diagnosis and treatment options.'

    Like Care

Discussion Boards