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CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
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Just a Quick Update
Hello everyone, I just thought I would give a quick update on my recovery. I'm 6 weeks post treatment and back to work for the past 2 1/2 weeks. I'm doing well..skin is easy to irritate but overall doing good. I'm not on any meds at this point including no Imodium and seem to be what appears to be normal other than the…
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agony
Domobro, aquaphor, 100% aloe vera, silver sulfadine, all sting and make it worse. Just tried something OTC called Dibucane, which has knocked the pain down to a "10." Has anyone ever tried Magic Mouthwash on perinium burns? I'm in agony.
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Off subject...UPDATE
But I lost my two Bichons this morning and I am so sad. I knew when I took Sam, the oldest at 16 , that he might (probably) not come home. At 16 he was deaf, blind abd generally ill. BUT I just thought Ginny had an upset tummy and would get meds and go home with me. Afterblood work it was determined that what we thought…
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incontinence
I finished treatments in August last year so I am over a year out. But I cannot control my bowels. I have tried dietary changes immodium everything under the sun. Just wondering am I the only one. I am at my whits end. I tell the doctor and he just says this is your new normal. Thanks in advance for any info.
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To move or not to move...
Considering moving to Dallas/FW area to be closer to docs and hospitals. In one way it makes a lot of since, in another it feels as if I am letting my illness run my life. I love the high desert...... Just far from good medical Opinions? ( do have daughter in D)
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Post Treatment Anal cancer anal biopsy
Hi All, I completed treatment Oct 31.2012 for 4 cm anal cancer tumor with 3 pelvic nodes involves 2 close to the tumor and one by the tail bone. I had good news this past Wed, from the oncologist, with a clear CT ( after being denied PET scan by insurance) I was told I need a biopsy and have scheduled an appointment with a…
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How is everyone?
Despite the fact that we seem to have been "Shanghaid" lol!, I hope everyone is still hanging in there and that the new year is off to a good start for each and every one of you. I was just thinking about some of our members who have not posted updates in awhile. The guilty parties know who they are, I'm sure! Please post…
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Good News
Just wanted to share the good news I got today..... The PET Scan I had last week, 9 months post treatment, came out clear. Praise God from whom all blessings flow. Thanks to everyone on this site for the sharing of your knowledge and experience in this fight. My best wishes to everyone of you, especially those of you…
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Voting for Anal Cancer Ribbon Color Has Been Extended thru 1-23.
Ok. My mission to spread the word is officially done.
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pain pops
Hello again everyone, As some of you know, I'm experiencing pain now that I simply can no longer bear. I haven't taken painkillers because they make me sick. Can those who've had experience with pain pops (and what do you call them again?) can you tell me if you have some control over the dosage by either finishing or not…
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"sunburn" in groin area and hemoglobin questions
Well. Tomorrow, the needle comes out for the last time (and I have 5FUs for the FU). Tuesday this blessed port comes out. And oi nothing goes wrong, the last radiation treatment is scheduled for the 29th. I still have off-the-chart pain when going to the bathroom, has me screaming into a towel so the neighbors don't hear…
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I finally got some good news
Last Tuesday I had a surgical biopsy as a follow-up to my first post-treament PET scan. The scan had shown a very small area with an SUV of 6.6, high enough to need the biopsy. Well, my surgeon told me today that my pathology results show no residual cancer. I feel like I can breathe again!
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I was healed of Ovarian Cancer
First I would say no one understands what it means to have cancer or have a loved one who suffers from this disease. My name is Pamela velafuert I was diagosed with Ovarian cancer 5 years ago and I thought my world was over. I went from one specialist to the other and nothing worked and then I decided to turn in for…
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Newbie and already grateful.......
I have been reading posts on here for over an hour and I'm already grateful to have found this site! I was literally diagnosed several hours ago. I had rectal bleeding along with hemmorhoids and constipation. I went to the colorectal surgeon last Monday and she felt something during exam. She had me scheduled for…
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To move or not to move...
Considering moving to Dallas/FW area to be closer to docs and hospitals. In one way it makes a lot of since, in another it feels as if I am letting my illness run my life. I love the high desert...... Just farthings good medical Opinions?
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Voting for Anal Cancer 'Color' Deadlines tomorrow, Jan 15th!
Vote here: http://www.analcancerfoundation.org/news/vote/
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Cancer is back..On phase 1 clinical trial MPDL3280A
My last scan reflected cancer had returned.....several nodes in my lungs and found a mass in left pelvic area. My Oncologist sent me to SCRI in Nashville and I qualified for a Phase 1 clinical trial .....drug is MPDL3280a, given every 3 weeks. I would really appreciate if anyone on the trial has had good results. At this…
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questions
Hi I am new to the board and i have a few questions im hoping someone will be able to help me with. My MIL was recently diagnosed with anal cancer, she went to a general Dr for what she thought to be hemroids, that dr sent her to a proctologist who looked at her and said it was cancer. there was no biopsy or anything done…
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weird, weird, question, anybody ANYBODY......??????
Ok, so I know how this sounds but has anybody ever passed the tumor while going to the bathroom? I think I just did. I was able to retrieve it and have saved it and will show it to my gastroenterologist, but I swear, I think that's what happened. I've been saying all week that I can feel the tumor, I knew the location and…
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Appetite
Hi all, Have completed 18 radiotherapy treatments and 1st round of chemo. Due to start second round of chemo Tuesday with 10 more radiotherapy treatments. I have had to start using analgaesia regulary over past 4 days and now have lost my appetite. Anyone else experience this? Also my ALT levels are raised, but consultant…
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Will I be able to work during treatment?
I will be starting treatment soon. IMRT twice a day for a total of 26 treatments. Chemo with FU5 and mitomycin C the first four days and possible the last 4 days. Was wondering if it would be better to work or take sick leave with short term disability? Anyone have experience with treatment and working? Wondering if the…
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csn email ?
I had a couple of e-mails on the csn email link from last month but they are gone, I go into e-mail and it shows I have no e-mails or sent e-mails that were there a few weeks ago, has this happened to anyone else ? Maybe I am doing something wrong but it seems everything has been wiped out
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Passing Blood
Seems like I've read thiis is normal before but for the first time today I passed quite a bit of blood. I just had my 9th treatment this morning, stopped at Michaels on the way home and hand one of those emergency trips to the bathroom. The blood was a little shocking to me. What has your experience been and do I need to…
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Tumor size/stage help desperately needed!!
Hello, I have just been diagnosed with squamous cell carcinoma....anal cancer. However, due to the holidays, I am having a terrible time getting in to see specialists. So all I know right now is that I have a 4cm tumor. From my research, I know that I am at least stage II. I am absolutely terrified I am stage III or IV.…
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Intense burning and pain prior to hospitalization
Has anyone else experience severe burning pain following the 25 and in my case final radiation treatment? The following is the description of the pain: If you were a man, place your balls in a mcrowave oven on high for 3 minutes, then take a cattle prod that has been heated in a fire and insert it nto your anal cannel and…
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Good news but...........
I finished my scans right after the holidays and yesterday I had both of my oncology consults yesterday. I met with the rad doc first. I had my sister with me and my 18 year old daughter with me. Needless to say the three of us were a nervous wreck. I was nauseated and light headed. So the doc comes in and asks me how I'm…
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anemia and transfusions
hHmoglobin is 8.7. Feel like crap. For those who have received blood transfusions, how low did your hemoglobin go before they transfused you?
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HAPPY NEW YEAR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HAPPY NEW YEAR to all my anal cancer survivors. May 2013 bring each of us continued health and great test results. NED rocks!!!!!!!!!!!!!!!!!!!!!!!!!! Mike
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gray dosage
Anyone know if 53.6 grays (total for treatment) is a large dosage?