Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Anal Cancer

pain, falling, weak legs and swelling
I can't thank you all enough. My doctors all made me feel like I was going crazy, everyone of them said "I never heard of such a thing" and some were like are you blaming us or radiation on it?? I am not trying to blame just trying to understand, I am so very thankful to be alive and have the cancer gone. And in the wee…
radiation side effects
I have been reading about "Pelvic Radiation Disease" and the list of long-term side effects is very discouraging. I thought the worst was over but that may not be the case. Most of the articles, however, stated that the late radiation side effects only affected a small per cent of patients. I was wondering: Is there anyone…
Charleston, WV Cancer Doctors
My husband and I are purchasing a home in my childhood home town near Charleston, WV. I am wondering if anyone can recommend cancer care in WV, I would need a whole new team, medical oncologist, radiation, surgeon, etc. Am I crazy to reevaluate my life after cancer and try a different lifestyle? I had 2 biopsies after…
Want to TY all
Thank you all for your support during my treatment, and all of your posts about how to handle situations I was diagnosed Oct 2012 after a so called "hemmy" at that time I didnt think I would see another birthday (all the crazy stuff that runs through your mind when you are told you have Cancer) Whether you know it or not,…
Good news!
I had another six month check up with oncologist today - lab work was fine. I didn't have a PET scan this time but will have one in November and another six month check up. I see the colorectal dr next week for one of those "fun" exams. I'll be 2 years post treatment June 1. Hard to believe it's almost been two years and…
Long day at hospital
Well, I have one more day of tests tomorrow. I spent the day at the hospital today. I like going there. When I go, I always feel that I am in good hands and if there is anything wrong they will find it and treat it, the best that they can. I know that cancer treatment is in its infancy, and there is much to learn in the…
Five months post treatment and still having trouble urinating.
Hi, I'm just curious if anyone else has dealt with difficulty urinating post anal cancer treatment. It's been five months since I finished treatment, and to this day it's difficult for me to urinate. I am a 52 year old male. I still have to sit when urinating, which is not a big deal, but I'd like the option back of…
Mom just diagnosed
My mom was diagnosed with AC 10 days ago. It's a 13cm moderately differentiated squamous cell carinoma tumor. She's 69. Very scared at all that she's facing- especially at her age. This forum and all of you are invaluable. I'm tentatively planning on taking a leave of absence from work to help my 78 yr old stepdad with her…
Recently diagnosed at 28yrs old
Hello. I am new to this site but I just wanted to reach out to people who are or have experienced what I am now going through. I was recently diagnosed with AC 3 weeks ago and I just had my PET/CT scan and MRI done this past Thursday and Friday. I don't know what to expect from here. I will be sitting down with my doctor…
life expectancy
what are the chances of surviving 25 years after successfull treatment. every where i look and everyone i speak to who has been through this seems incredibly brave but nobody talks about life expectancy.
Pregnancy after radiation???
First off I want to thank everyone thus far on your support from my 2 previous posts. I truly appreciate all the input and advice. It really is comforting, I can't stress enough to be talking with people who are/have been in my shoes. So thank you so much! I just got back from my SIM appt which was very interesting to say…
Flatulence after AC TX, anyone?
Hey all my anal friends! There has to be humor in what we must endure before, during and after anal cancer, right? Have any of you experienced a bothersome little noise post treatment? I am almost a year out of treatment and those noisy little farts never cease to amaze me. My 2nd graders would find them most amusing if…
Proliferation rate
I am wondering whether anyone here was told the proliferation rate, as measured by ki-67 test, for their tumors. I have not heard it mentioned for anal cancer. I have a second cancer and patients all seem to know the rate of proliferation for that cancer. Just wondering.
Getting shorter
This may be coincidence, but I have shrunk since treatment. When I started treatment I was 5 ft. 7 inches and this week I measured 5 ft. 5 inches. Right after treatment my daughter kept insisting that I had shrunk. Wondering if this could be a result from treatment? Anybody else have this happen so close to treatment?
Update on the HPV vaccine
Very interesting. http://www.philstar.com/opinion/2013/05/12/941075/fda-committee-considers-gardasil-anal-cancer
Advice needed
I have asked questions on this site about my MIL before and have some more now that she is in treatment. She is doing the radiation daily for 6 weeks and the mitomycn(SP) and fu5 too she did that the first week and has to do it again the 5th week. She is now finished with her 3rd week of radiation. We are having lots of…
Good news...I think
Hello everyone. So I had my appt with my onc and she told me that all my scans looked good! There were no distant sites found and I was given a stage 2. Although still scary and makes me nervous, from all the research i've done stage 2 is a good diagnoses. Afterwards, I met with my radiation dr and I got scheduled for…
Pain Control
I just saw a report on CNN about controlling pain with video games. I posted some time ago that during and after treatment for this cancer, I used video games on an ipad (thanks to my daughter) to control pain. I never took meds at all. Although I felt a little foolish sharing this method, it seems there is actually…
Has anyone else had this problem?
Hi, I'm curious to know if anyone on this discussion board has dealt with what I am dealing with now. I finished chemo/radiation therapy in December of last year. I was given a clean bill of health this year, with one proviso. My oncologist for chemo told me that in order to be absolutely certain that there was no cancer…
Good news and better news..
My tests all look good .. If I stay on track after my Oct scans etc I will be able tochange to every six months! Yeah!, And for better news, there is a 6 year old little boy who has been fighting cancer for the second time, who used up all the chemo rad treatments with no luck. He was put on one of the trial programs and…
Awesome Ostomy Video!
For any of us who fear an ostomy (that would include me!), please check out this video! http://www.youtube.com/watch?v=jqsguzwEh2E
Post treatment pain and questionable integrity of the anus
Hi, my name's Mitch. I am 4 months out after chemo/radiation treatment for anal cancer. The reason I am writing is that I am trying to figure out why I have so much fatigue and pain in my anus. I received a clean bill of health, no cancer, as of 2 weeks ago, but the the way I feel is awful. I have so little strength that…
Butterfly tears...
I am here at MDA.. A wee bit scared, and more than a wee bit bored.... I am called into my docs office for vitals etc and I'm talking to the same young woman who has been helping care for me these last two years when she saw the cancer survivor butterfly tattoo on my foot and tears begin to gather in her eyes.... She told…
Swollen Anlkes
I think I read something about this but can't seem to find the post again.I'm almost a year post treatment and my feet and ankles have suddenly started swelling. Although both sides are swollen, the left ankle is almost two inches bigger than the right. It's been less than a month since my last check-up and all was clear.…
melanoma of the rectum
My best friend just had her rectum, part of colon and part of vagina removed this week and colostomy put in. Is there anyone else out there that has melanoma of the rectum? They said that it is rare and that there isn't any chemo treatment for this type of cancer they are going to do radiation. If anyone has had this type…
Psychiatrist?
Hello again, I am just wondering if any of you saw a Psychiatrist when you were going through this treatment? Also, after you finish your treatment, are you then let be for a while, until your follow up scan that is, or is there ? I am sure the side effects continue on for a while but as far as treatment goes? Many thanks.
Squamous cell cancer, should we use a sunblock in the summer?
Since squamous cell anal cancer is a skin cancer (correct?) and I've been told my anal cancer was from using a tanning bed for years, I'm wondering how to cope with activities in the sun. My farmer brother wants me to spend days horseback riding, also to help bail hay (seriously!) by driving a truck for him. I just…
Good News
Hi Everybody, I hope you are having a happy Easter. I am doing fine. I received my results from my chest X-ray and they were negative, my blood test results were normal except for my liver function and I am slightly anemic which my family doctor said is normal after what I have been through.Although my liver function…
post treatment pain
Anyone have sudden onset three-month-post-treatment pain where the tumor was (more or less) when going to the bathroom?
Cleanses
I am getting really frustrated with my digestive system and I am thinking it is time to start fresh. I have never done a cleanse and know nothing about them, but my thoughts are that I will do a cleanse and then introduce one food at a time to see what triggers symptoms. Sort of a reverse elimination diet. I think someone…

Anal Cancer

Discussion List

Discussion Boards