-
Anyone had Hyperbaric Oxygen Treatment?
Hi, all, I haven't been around a lot since my treatment ended, but I do lurk a bit ;) . The last time I visited my colorectal surgeon, he recommended hyperbaric treatment. The way I understand it is that the increased oxygen therapy hastens the healing of radiation side effects and damage and gets those tissues back the…
-
Alone right now
Never thought I would do anything like this; last Thursday (on the 1 yr anniversary of my mother's death) I was diagnosed with anal cancer. Too embarrassed to have a "hemorroid" (or so I thought) addressed, I waited for a couple of years. Darn it! Biopsy results will be back Monday, but the surgeon said she has no doubt…
-
Finally!
CT done, showed lymphatic involvement and 1 small spot in r lung. Pet scan next. Did finally get to meet the Oncologist yesterday and will meet the radiologist this Thursday. Port placement scheduled for next Tuesday and chemo/radiation to start on the 18th. Finally a plan, just want to get this show on the road and be…
-
Good News today
We got the news we wanted to hear today, NED never sounded so good. Now hubby just has to hope a lot of the other issues will dissipate in due time. The oncologist did tell him the eye sight will not improve so we will be off for a new pair of glasses. Hope all the newbies are hanging in there, the tx was tough yet we are…
-
Another newbie to this "select" group
Greetings, all . . . . I'm thankful to have finally found this site after realizing what a "lonely" cancer this is to have, and how uninformed both the public and many medical personnel are. I confess to a bit of cyber-stalking over the last few days, as I've attempted to get my ducks in order. My story, I'm sure, is…
-
Another lump
Hello everyone my mil had a biopsy the other day and the dr said he was sure it was anal cancer but had to wait until the biopsy results came back before he could tell us anything else. we go in the 11th to find out. She just told us tonight that there is another lump in her anal region that was not there before. Should we…
-
question about internal pain
Has anyone experienced internal pain (not external) that's more or less constant (worse when I "go" but never really gone) starting at the end of week 2? My radio oncologist says that it can't be from the radiation and this seems absurd to me. Has anyone had more or less constant internal pain after week 2?
-
All Done :)
Well, my last treatment was last Thursday. So thankful to be done. I wanted to go over a few of my post treatment pains and side effects. Of course I still have internal pain when I have a bm. I'm still drinking a lot of my meals hoping I don't have to go as often. I suspect that will let up some in the next couple of…
-
New Study regarding link between dairy and bone health
I saw this on the news this morning and thought it was worth passing on considering our potential hip problems after radiation. Eat your Greek yogurt! http://www.sciencedaily.com/releases/2013/02/130201132336.htm?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+sciencedaily+(ScienceDaily:+Latest+Science+News)…
-
tapering off oxycontin
Hi everyone I will soon start to taper off the oxycontin I have been taking since October. I am curious to know how this experience was for other people. Was it easy? Was it awful? How long did it take as you tapered off to be off completely? Did you experience any withdrawal symptoms? I'd like to hear about any experience…
-
my mom was diagnosed anal cancer grade III A
Hello everybody.I 'm a new member of this gorgeous Forum.My mother age 58 was diagnosed anal cancer stage III a, it spreads into vagina rectum anus muscles but the lymph nodes hadn't been involved (yet).We live in Italy and here, in my country there are a few information regarding this rare cancer. My mother has just begun…
-
VOTE for Anal Cancer "Color" Now!
http://www.analcancerfoundation.org/news/vote/ The Farrah Fawcett Foundation and the HPV and Anal Cancer Foundation want your vote!
-
Results are in
Well some of them anyway, biopsy confirmed squamous cell. Now waiting for the navigator to call with staging/oncology/testing appointments and port appointment. This waiting is making me a little crazy(ier) but what a relief to be able to tell my family and a few friends last night.
-
YIKES! This is getting complicated....
I had a PET Scan on Monday. If any of you had seen my previous posts under GOOD NEWS BUT.... you will know where I was in this process. In short, after my original diagnosis nothing showed up at all on my CT or MRI. They put my case in front of the tumor board last Thurs. They called me after the meeting that day and said…
-
anal intraepithelial neoplasia grade lll
This is what they put on my MILs discharge papers from her biopsy it was under diagnosis can anyone tell me what this mean?
-
Result
Hi All just wanted to check in since ive not posted since my last post. Took MIL to the coloretal surgeon had a biopsy done yesterday. He said we wouldnt get the results for a week to 10 days but he told me and hubby that he is postive it is anal cancer. I asked him if the biopsy would tell if it had spread anywhere else,…
-
'Behind Cancer Campaign'
The UK's 'Behind Cancer' campaign is outstanding. http://www.behindcancercampaign.co.uk/ http://www.analcancerfoundation.org/2012/11/17/two-families-twelve-models-one-mission-de-stigmatizing-anal-cancer/ From what I understand they haven't launched anything like this in the US. Why not? This is perfect in helping…
-
Mucus
Hello, hoping for some feedback from someone. It has been a while since I posted, the answers to my last post to the board were most helpful for my husband. Now he is dealing with more unpleasantries. His last day of tx was 11/2/2012. The first few weeks in recovery were rough, thank godness healing happened way faster…
-
burns and radiation
Hello again-- Has anyone had 2nd or 3rd degree burns and NOT had to delay treatments? I have only 3 treatments to go, tomorrow, Friday, next Monday and Tuesday but I think the external burns may either be infected or simply "wet" and oozing, but I plan to tell no one because I just want to get this over with.
-
CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
-
Just a Quick Update
Hello everyone, I just thought I would give a quick update on my recovery. I'm 6 weeks post treatment and back to work for the past 2 1/2 weeks. I'm doing well..skin is easy to irritate but overall doing good. I'm not on any meds at this point including no Imodium and seem to be what appears to be normal other than the…
-
agony
Domobro, aquaphor, 100% aloe vera, silver sulfadine, all sting and make it worse. Just tried something OTC called Dibucane, which has knocked the pain down to a "10." Has anyone ever tried Magic Mouthwash on perinium burns? I'm in agony.
-
Off subject...UPDATE
But I lost my two Bichons this morning and I am so sad. I knew when I took Sam, the oldest at 16 , that he might (probably) not come home. At 16 he was deaf, blind abd generally ill. BUT I just thought Ginny had an upset tummy and would get meds and go home with me. Afterblood work it was determined that what we thought…
-
incontinence
I finished treatments in August last year so I am over a year out. But I cannot control my bowels. I have tried dietary changes immodium everything under the sun. Just wondering am I the only one. I am at my whits end. I tell the doctor and he just says this is your new normal. Thanks in advance for any info.
-
To move or not to move...
Considering moving to Dallas/FW area to be closer to docs and hospitals. In one way it makes a lot of since, in another it feels as if I am letting my illness run my life. I love the high desert...... Just far from good medical Opinions? ( do have daughter in D)
-
Post Treatment Anal cancer anal biopsy
Hi All, I completed treatment Oct 31.2012 for 4 cm anal cancer tumor with 3 pelvic nodes involves 2 close to the tumor and one by the tail bone. I had good news this past Wed, from the oncologist, with a clear CT ( after being denied PET scan by insurance) I was told I need a biopsy and have scheduled an appointment with a…
-
How is everyone?
Despite the fact that we seem to have been "Shanghaid" lol!, I hope everyone is still hanging in there and that the new year is off to a good start for each and every one of you. I was just thinking about some of our members who have not posted updates in awhile. The guilty parties know who they are, I'm sure! Please post…
-
Good News
Just wanted to share the good news I got today..... The PET Scan I had last week, 9 months post treatment, came out clear. Praise God from whom all blessings flow. Thanks to everyone on this site for the sharing of your knowledge and experience in this fight. My best wishes to everyone of you, especially those of you…
-
Voting for Anal Cancer Ribbon Color Has Been Extended thru 1-23.
Ok. My mission to spread the word is officially done.
-
pain pops
Hello again everyone, As some of you know, I'm experiencing pain now that I simply can no longer bear. I haven't taken painkillers because they make me sick. Can those who've had experience with pain pops (and what do you call them again?) can you tell me if you have some control over the dosage by either finishing or not…