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My Dad
Hi, I need extra prayers for my dad. Today he meets with Dr. Gibson to get his new test results. I REALLY hope and PRAY the chemo is doing it's thing. He was in a really good mood yesterday and has been eating really well, so I think it's a good sign. For the past few days I though he was giving up, until I spoke with him…
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treatment plan
Hi, Well spent way too many hours yesterday getting my treatment plan. Saw 4 drs, all were nice. I will have 5.5 wks of radiation and two bouts of chemo, but this was the surprise, in the hospital. The chemo dr said they had to admit people so much during chemo that they now put you in the hospital for 5 days at the…
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WE ARE CANCER FREE-
To all My Cancer site friends, I just wanted to share with you that we went to the doctor today and my husband JEFF lab reports all came back negative yes I said negative, the tumor site, all 11 lymph nodes, the surrounding areas, all is gone, WHAT GREAT NEWS!!!, will he have to do radiation, we don't know, we have to see…
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AL IS HOME
MY THANKS TO ALL OF YOU FOR YOUR PRAYERS, AL IS HOME ALITTLE WORSE FOR WARE BUT I CAN FIX THAT WITH EXTRA TLC. I DID GET SOME REST FOR A FEW DAYS SO NOW I CAN CARRY ON WITH THE TASK AT HAND----GETTING HIM TO SURGERY. THANKS AGAIN TO EVERYONE, I REALLY DON'T KNOW WHAT I WOULD DO WITHOUT ALL OF YOUR SUPPORT GOD BLESS ALL OF…
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ONE MONTH SURGERY ANNIVERSARY TODAY
WOW!!!!!!!!!!! HOW DO I BEGIN THIS !!!!!!!!!!!!!!!! One month ago today my husband Jeff age 45 went through this terrible surgery we call ESOPHOJECTOMY (OR HOWEVER YOU SPELL IT) would he do this again, Probably not, the surgery itself went well, the afterwards was not the greatest, as many of my onsite friends know jeff…
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surviving adenocarinoma of esophagus, newly dx squamous cell lung cancer help
I feel like i know everyone on this board, we have been reading along since my husbands dx of distal adenocarcinoma in Nov. 2007. He is fighting and is a survior. We have had so many complications that just when you think you are getting to a high, you get more bad news. My husband had resection surgery were they removed 5…
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Dr called not good
Hi, Well the dr called he did not say he talked to an actual tumor board but had talked to 2 of my drs and I got an upgrade or what I would call a definite downgrade if we are going by the mood I am in. The pathologists did another test on the lymph node and found cancer cells so now I am T3N1MO after starting out with…
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Chemo
Hey everyone!!! I'm getting chemo right now as I am typing this. I am receiving Taxotere and Irinotecan. Hopefully these will kick my cancer's a$$. :0) The taxotere has ran all the way through, waiting for the iv to finish flushing, then on to the Irinotecan. So far I'm not feeling much for side effects...with the next one…
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New Antibody Therapy
Has anyone started/tried/heard about this new antibody therapy used to treat some forms of esophageal cancer. It uses a drug used to treat breast cancer called herceptin. I am about to start and would like some feedback.
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Not so good...
Just wanted to let all of you know that the cancer is back, the fluid they removed is full of tumor cells. I start a new chemo regimen next Friday. We just got home from Mayo, and a bit wore out...so headed to bed. I'll be on more later on this weekend. Cathy
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LINDA IS HOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1
Just took linda home this AM Still a bit of pain has to sleep in the recliner for now Glad to get out of hospital Has an appointment to see sergon in 2 weeks LIFE IS GOOD!!!!!!!!!!!!!!!!!!!!
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Got EUS, not good news, no removal done
Hi, Well the dr did the EUS and it was not in situ even though my PET/CAT scan showed no lighting up in esophagus. So right now the dr is saying T2 or T3 thru to the muscle wall and it might be 4cms. He is going in front of the tumor board today to get input about what treatment. He mentioned chemo and radiation and then…
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Just checking in
Hi All, Just checking to make sure all is well. The site has been quiet for a couple of days, I guess thats a good thing. Al has his weekly appt. tomarrow at Hillman and I hope he has gained some weight or at leas for the most part has stayed the same. This is he off weak so no chemo. I always get extra anxious on Tues. I…
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Just an FYI regarding the "about me" page
CSN has been having problems with the "about me" page. I know I entered our info many times, saved it, but yet it didn't appear. After corresponding with the CSN staff they finally told me they fixed the problem. So if you have entered your info within the last few weeks, you may want to check it...and you may have to…
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any squamous cell ca of esophagus people out there?
Hi, I was just diagnosed on 7/30/09 with the squamous cell variety luckily right now I am being told in situ. I have had a long history of achalasia and apparently was retaining food in my esophagus which probably has caused this problem. I get an EUS on the 19th and the dr is going to do more biopsies and hopefully…
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So far....
I suppose I should post about what is going on with us. Layne has been in chemo, and now proton radiation and chemo. He has two weeks to go. Then home for 5 weeks and back for pet scans, and other testing to confirm he is a go for surgery. The celiac nodes resolved themselves and the original tumor and node near it are…
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LETS ALL TAKE A SILENT PRAYER FOR OUR DEAR FRIEND KITTEN0385
As we all know our dear friend Kitten, which is an inspirational to all of us, did not get good news on her test today, her cancer is back I do not know where, but she will be on later over the weekend. All I am asking is when you read this e-mail please take a moment and say a special prayer for her and her family. It can…
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Choosing between more chemo/radiation or Surgery
My father was diagnosed with EC in May and has already received 2 rounds of chemo and 6 weeks of radiation. Now, he has to decide whether to have surgery or go for more rounds of chemo and one more round of radiation (and if so, lose the opportunity for surgery altogether). You can imagine this is a very, very difficult…
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BIG GIRL PANTIES AND MOE'S SHOES IS RETIRING-FEEDING TUBE OUT
Our feeding tube came out this morning along with rest of the staples. Our surgeon told my husband this morning that "SON I DIDN'T THINK YOU WOULD SEE ME AGAIN" meaning he was knocking on heavens door. My husband now knows how close he came to death. He has now been released to eat whatever he wants when he wants it. That…
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Results
Hey everyone.... Well, the CT scan showed fluid around my liver and lungs, so I am having further testing the next couple of days here at Mayo to find out if it's a residual effect from chemo/radiation or if it's cancer. I will update when I know what's going on! :0) Cathy Hey, as I always say..."Life's not about waiting…
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New Member, New Group and New Fight In My Life
Greetings All, I hope everyone is doing well, under these circumstances. I am Mike, the 'Wild Goose7' and was diagnosed with squamous cell cancer above the nipple line. I am being aggressive with my treatment process and ask a ton of questions of the doctors. I've given the doctors a 'curve ball' because of my 29 years in…
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PLEASE SAY A SPECIAL PRAYER FOR KITTEN 0385
As you all know our dear friend Kitten, had to go for testing today, when you read this please stop and say a special prayer for her and her husband. Her tests don't look good, and I am worried. She has only been married 1 year, and hasn't even reached a 1 year anniversary from her last surgery. Her spirits are good, and…
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Feeding tube problems
Is there anyone out there who has problems with there feeding tubes. I would really like to get some info from others who deal with this problem.
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NOT FEELING WELL TODAY
Jeff, is not feeling well today, I guess we will have those days, he ate oatmeal yesterday and he never threw it up, but made him sick, I bought the kind of Brown Sugar and Maple and we think it was just either too sweet or just not for his body. I know we are going to have days like this, but only being home 5 days I…
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KITTEN0385
To all the esophogeal survivors/caregivers, please pray for her tonight she has a CT scan tomorrow to make sure everything is going well. She is very nervous and scared since it hasn't been a year yet. PLEASE SAY A PRAYER THAT THERE IS NOTHING THERE. thANKS LORI AKA MOE
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ITS A SLOW PROCESS
We have been home since Saturday, and doing semi well, he still cant do alot of things by himself, but I let him do what he can. I am blessed that he is doing as well as he is. I am also blessed that my work is letting me work from home, so that I still bring in a paycheck. Jeff had a very hard and rough road during…
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WE ARE IN A ROOM NOW ONLY HAVE 4 TUBES NOW
Well we got moved to a room today after 14 days in ICU, Jeff is doing very well, he still has the NG tube and the feeding tube, we took the swallowing test and no leakage which is great news, but we are still too swollen to tolerate food so we are on meds for that first probably in the next few days we might be able too.…
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WE ARE HOME!!!!!!!!!!!!!
It is Saturday evening around 7:30 pm, we are home from a 3 week stay at the hospital. As you all know we started this journey on July 23, at 7:43 am, the surgery went well, on friday July 24, he was knocking on heavens door, I truly lost my husband but the angels upstairs was not ready to accept him yet, so they set him…
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My dad is now home
Wow, yesterday the hospice let us take my dad home. We felt thats where he wanted to be. He kept trying to bolt for the door, regardless of wether he had strength or not. Thats my dad.Last night was his first night home. He had been an avid bicyclist so it was clear this morning he thought he was gonna start his routine…
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CT Scan
Hey everyone!!! I have a CT scan coming up in just a few days, and I just wanted to ask everyone to say a little extra prayer (If you pray)...if not just cross your fingers and toes...for me these next few days...I could sure use it!! There was a spot of fluid they were watching by the surgical site that they're not sure…