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Things are looking up ?
It took me forever to write a concise version of what I wanted to post and ask the members here yesterday. My work promptly disappeared when I put it in for a preview read. So no preview today and hope whatever it is makes sense. I have been grateful to have found this site. Esoph. Cancer is a tough one to locate for…
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My Dad ate a BIG MAC!
WOW--isn't that something weird to be excited about??? My dad who was Dx'd with stage 3 or 4 EC (long story) in August just finished 6 weeks of chemo-radiation at Duke. He gets to go home today (3 1/2 hours from Duke)!! HE so needs to get home to rest and recuperate. He sailed thru the first 3 weeks, but week 4 & 5 did him…
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help CSN FEEDBACK--this is affecting real people
I sent this to CSN feedback---maybe it will make a difference???: K_ann1015 sent a message using the contact form at http://csn.cancer.org/contact. Hi---you may have gotten this info already but for that last few days the Esophageal cancer area of this web site is getting unknown posts from "anonymous" or "username 32",…
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What to take to hospital
So, I am going to be leaving in a week or so for Houston. I got to thinking--some of you would know better what I should take with me! Soooo...what should I take with me? Of course, we will have jammies for him, a robe and slippers like the hospital said. I have jammies and a sports bra to sleep in...I am also taking some…
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I am not the spammer or the stalker or any other ridiculous ignorant creaton thank you very much for
I said I would not post again, but got one, yes 1 positive reply to my blogs. to you who think I am some weirdo, thanks for the support. If you read my posts, actually read them, you would be ashamed of yourself for attacking me. I have a loved one who is battling for life as I type this to those of you who insulted me. I…
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What is up massive posts on this website???
yesterday it was username 32 and today anonymous-- what a shame to minimize the posts of the nice people on the website by whoever is doing this????
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WILLIAM WILLIAM WHERE ARE YOU I NEED SOME ENCOURAGMENT
Well, just wanted to post a few things, Jeff is doing good since surgery, but still sore and the doctor said its becasuse of his extensive surgery, I am a little down tonight I had a car wreck on wednesday night coming home from work, some kid pulled out in front of me and here in OKLA. was a wet misty rain, and I had no…
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We have decided to try the Xeloda
Hello all, We saw the dr today. We have decided to try the Xeloda. Charlie has already had 4 rounds of chemo (5-FU, Taxotere, Cisplatin.) He is not a candidate for surgery.....stage 4...mets to lung, liver, lymph nodes, and peritoneal cavity. Dr suggested we try Xeloda to try to keep the EC in remission. We figure it is…
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In the Hospital
Hi everyone, I just thought I'd let everyone know that I am in the hospital again at Mercy, in my local town. At this point I don't have any surgical needs so we are staying in town because they did not think I was stable enough to make the trip to Mayo. As for why I'm here....I was throwing up bile all night (Thurs.…
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SURGERY
Had my MIE Surgery on 6-15-09. No problems.Awoke next day in icu.Toke me up to room on tuesday afternoon. Was released from hospital on saturday afternoon.Sore and stiff but feeling better every day.Had one swallow test and passed willbe back 25 for second swallow test if pass will be allowed regular food. Thank you to…
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"stalker dude"/concerned woman who has a loved one with cancer attempting to show good will..sheesh
ok, now i have heard it all. "stalker dude" really??? sheesh, never in a million years would i have gotten that type of negative response to a such a positive blogging. my heart felt blog was just that and hopefully brought some peace and smiles and hope. I really like the new song "Happy" by Leona Lewis and the lyrics are…
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WE ARE DOING GOOD
Just wanted to update everyone on our status. Jeff has been home one week today from the hospital and doing so much better, you would never know he was knocking on heavens door about 2 weeks ago. He wasn't eating nothing but vegatables until thursday, when his surgeon took out his feeding tube and said eat whatever you…
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MOE'S UPDATE ON SURGERY AND HOW WE ARE DOING!!!!!!!!!!!
I just wanted to update everyone on Jeff and his surgery, when I first started this site i was scared chitless, and to think my husband of only 3 years had CANCER, and esophogeal on top of that, we found out on him in April, and by May I was at my wits end, until I joined this site, and have met so many nice people, but my…
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pneumonia making Al very weak
Hi all, Al is on this antibiotic called Avelox, it is one strong antibiotic. It is making him weak and moody. He knows that he is supposed to be resting and drinking lots of fluids. He keeps arguing with me that He is going to stop this medication if its going to keep making him feel like this. I'm so confused he never…
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My Brother Stage IV giving in............
May 2008 my 44 year old brother was diagnosed with stage 4 andmnacarsonoma(?) at the junction of his stomach and esophagus with cancer in the omenum ,well when the first doctor said no hope we left there immediately and never went back so he went to another hospital which gave some hope and they treated him for several…
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Just Diagnosed - strap me in
On the day of my 51st birthday(12/29), I received the diagnosis of Stage IV regional esophageal cancer. It has been a hellish end to the year. In early November I started to experience a lower leg cramp, been on the treadmill too long to prepare for a 2nd honneymoon with my husband. Treated it as tendonitis - went to the…
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EC with mets to liver and lymph nodes
My husband had been scheduled for surgery on 7/21/08, but after another MRI and liver biopsy, it was cancelled. He now has mets to liver and lymph glands. He will start a different kind of chemo this Friday, 8/08/08. Has anyone been through this or knows of someone that has? I am wondering how they are doing.
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Has anyone used Xeloda to keep Esophageal Cancer in remission??
Hello, This is my first time posting on any kind of discussion board so I apologize in advance if I am not submitting this correctly. My husband was diagnosed 4 months ago with stage IV esophageal cancer. The tumor is very close to the opening into the stomach. (He had NO symptoms.) The cancer had spread to the lung,…
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OUR PET SCAN IS NEGATIVE WHAT MORE COULD I ASK FOR THAN A LOVING HUSBAND WELL!!!
Well we had our follow up appt with the radiogist and everything looked great, he could not see any tumor, cancer, anywhere around the esophogus, he said no radiation, in his opinion, we could have not gotten better news than that. Once you have cancer no matter if its been a week, a month two months or a year, you always…
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Fatigue and diarrhea
John is now finished with his chemo and radiation treatments. He finished up with chemo on 9/25 and radiation on 9/28. He did pretty good through his 5 weeks of treatment but now it seems like he is being hit with fatigue and diarrhea. He was infused with fluids on the 25th, the 28th and again on the 30th. He is now taking…
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My Dad
Hi, I don't have any real new news to report on my dad. He finished his 6th round of chemo and is home resting this week. They will fly back up to UPMC next week. He'll have a new CT done to see how this clinical study worked on him. We are really praying for no liver involvement. His spirits are good. He's a little tired.…
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the meaning of life and remembering all we ever really have is this moment
I think that Joseph Campbell put it best: "Life is without meaning. You bring the meaning to it. The meaning of life is whatever you ascribe it to be. Being alive is the meaning." To All Who Read This: You are love and you are loved. You are heros and you have heros. Today is what it is, a moment in Time where we beautiful…
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going back to hospital on 10/5 for last chemo cycle
Hi, Well I am getting ready to wear an extra pair of my big girl pants!! Cant believe I have to go back for 5 days of no sleep and no baths etc. My last chemo cycle will be the old 5FU and cisplatin and keep up my radiation treatments also. I have had a bumpy ride and sitting here wearing a Holter monitor for my heart…
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Biopsy results
No cancer in the esophogus at all. There are remnant cells in an adjoining node, but they are not active nor growing, and they are coming out on Oct 29. Yippee. We are cleared for surgery and we are hearing only good news, which we LOVE. Have hugs to our nurse and our onc who are so amazing, and we are headed to Louisiana…
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a song for Kitten from Terry in SLO : )xxoo
someone once told me that you have to choose what you win or lose you can't have everything don't you take chances you might feel the pain don't you love in vain cause love won't set you free i could stand by the side and watch this life pass me by so unhappy but safe as could be CHORUS so what if it hurts me so what if i…
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a poem for my EC friends on this site
I shared this with my mom & dad to day---I and they needed it and I find it refreshing. Nothing new, just reminding us of something we may forget when things are tough. I think it is perfect for this group.. Kim “WHAT GOD HAS PROMISED” God has not promised skies always blue, Flower-strewn pathways all our lives through;…
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WE HAVE A DATE!!!!
HELLO EVERYONE, AL HAS A DATE FOR SURGERY!!!IT IS OCTOBER 19TH AT UNIVERSITY OF PITTSBURGH MEDICAL CENTER. WILLIAM YOU KNOW IT WELL. THANK YOU EACH AND EVERYONE OF YOU FOR ALL OF YOUR KIND WORDS AND PRAYERS!!! I KNOW IT WON'T BE EASY BUT I'LL HAVE MY BGP'S AND SHOES SO I SHOULD DO JUST FINE. GOD BLESS KATH
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UPDATE ON HUSBAND AND HIS ER VISIT
Well, just wanted to let everyone know that he is doing great according to his gastro doctor, he has no tumor, no masses or no CANCER!!!!!!!!!!!!!!!! he said he looked really good other than his esophogus has to be stretched, he is a 10 and needs to be a 18, so they stretched him to a 12 today and he goes back in 3 weeks…
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Husband diagnosed with possible EC
My husband just had an endoscopy this morning. I was expecting the results to be an ulcer. I felt like someone dropped a house on me when the doctor lead us into a private room to tell us that he did not like what he saw during the procedure. He found a swollen lesion at the base of the esophagus above the stomach. He did…
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TOMARROW COULD BE THE DAY!!!!!!
Hi All, Tomarrow is Al's Appt. with Dr. Luketich this hopefully will be the day that we get the date for surgery!!!!! Our appt is at 9:20 am, so that means we may get to see him by noon. I am so excited as most of you know we have been waiting for this day to come for some time now. Al has gained about 7lbs which is a big…