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"stalker dude"/concerned woman who has a loved one with cancer attempting to show good will..sheesh
ok, now i have heard it all. "stalker dude" really??? sheesh, never in a million years would i have gotten that type of negative response to a such a positive blogging. my heart felt blog was just that and hopefully brought some peace and smiles and hope. I really like the new song "Happy" by Leona Lewis and the lyrics are…
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WE ARE DOING GOOD
Just wanted to update everyone on our status. Jeff has been home one week today from the hospital and doing so much better, you would never know he was knocking on heavens door about 2 weeks ago. He wasn't eating nothing but vegatables until thursday, when his surgeon took out his feeding tube and said eat whatever you…
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MOE'S UPDATE ON SURGERY AND HOW WE ARE DOING!!!!!!!!!!!
I just wanted to update everyone on Jeff and his surgery, when I first started this site i was scared chitless, and to think my husband of only 3 years had CANCER, and esophogeal on top of that, we found out on him in April, and by May I was at my wits end, until I joined this site, and have met so many nice people, but my…
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pneumonia making Al very weak
Hi all, Al is on this antibiotic called Avelox, it is one strong antibiotic. It is making him weak and moody. He knows that he is supposed to be resting and drinking lots of fluids. He keeps arguing with me that He is going to stop this medication if its going to keep making him feel like this. I'm so confused he never…
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My Brother Stage IV giving in............
May 2008 my 44 year old brother was diagnosed with stage 4 andmnacarsonoma(?) at the junction of his stomach and esophagus with cancer in the omenum ,well when the first doctor said no hope we left there immediately and never went back so he went to another hospital which gave some hope and they treated him for several…
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Just Diagnosed - strap me in
On the day of my 51st birthday(12/29), I received the diagnosis of Stage IV regional esophageal cancer. It has been a hellish end to the year. In early November I started to experience a lower leg cramp, been on the treadmill too long to prepare for a 2nd honneymoon with my husband. Treated it as tendonitis - went to the…
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EC with mets to liver and lymph nodes
My husband had been scheduled for surgery on 7/21/08, but after another MRI and liver biopsy, it was cancelled. He now has mets to liver and lymph glands. He will start a different kind of chemo this Friday, 8/08/08. Has anyone been through this or knows of someone that has? I am wondering how they are doing.
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Has anyone used Xeloda to keep Esophageal Cancer in remission??
Hello, This is my first time posting on any kind of discussion board so I apologize in advance if I am not submitting this correctly. My husband was diagnosed 4 months ago with stage IV esophageal cancer. The tumor is very close to the opening into the stomach. (He had NO symptoms.) The cancer had spread to the lung,…
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OUR PET SCAN IS NEGATIVE WHAT MORE COULD I ASK FOR THAN A LOVING HUSBAND WELL!!!
Well we had our follow up appt with the radiogist and everything looked great, he could not see any tumor, cancer, anywhere around the esophogus, he said no radiation, in his opinion, we could have not gotten better news than that. Once you have cancer no matter if its been a week, a month two months or a year, you always…
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Fatigue and diarrhea
John is now finished with his chemo and radiation treatments. He finished up with chemo on 9/25 and radiation on 9/28. He did pretty good through his 5 weeks of treatment but now it seems like he is being hit with fatigue and diarrhea. He was infused with fluids on the 25th, the 28th and again on the 30th. He is now taking…
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My Dad
Hi, I don't have any real new news to report on my dad. He finished his 6th round of chemo and is home resting this week. They will fly back up to UPMC next week. He'll have a new CT done to see how this clinical study worked on him. We are really praying for no liver involvement. His spirits are good. He's a little tired.…
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the meaning of life and remembering all we ever really have is this moment
I think that Joseph Campbell put it best: "Life is without meaning. You bring the meaning to it. The meaning of life is whatever you ascribe it to be. Being alive is the meaning." To All Who Read This: You are love and you are loved. You are heros and you have heros. Today is what it is, a moment in Time where we beautiful…
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going back to hospital on 10/5 for last chemo cycle
Hi, Well I am getting ready to wear an extra pair of my big girl pants!! Cant believe I have to go back for 5 days of no sleep and no baths etc. My last chemo cycle will be the old 5FU and cisplatin and keep up my radiation treatments also. I have had a bumpy ride and sitting here wearing a Holter monitor for my heart…
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Biopsy results
No cancer in the esophogus at all. There are remnant cells in an adjoining node, but they are not active nor growing, and they are coming out on Oct 29. Yippee. We are cleared for surgery and we are hearing only good news, which we LOVE. Have hugs to our nurse and our onc who are so amazing, and we are headed to Louisiana…
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a song for Kitten from Terry in SLO : )xxoo
someone once told me that you have to choose what you win or lose you can't have everything don't you take chances you might feel the pain don't you love in vain cause love won't set you free i could stand by the side and watch this life pass me by so unhappy but safe as could be CHORUS so what if it hurts me so what if i…
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a poem for my EC friends on this site
I shared this with my mom & dad to day---I and they needed it and I find it refreshing. Nothing new, just reminding us of something we may forget when things are tough. I think it is perfect for this group.. Kim “WHAT GOD HAS PROMISED” God has not promised skies always blue, Flower-strewn pathways all our lives through;…
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WE HAVE A DATE!!!!
HELLO EVERYONE, AL HAS A DATE FOR SURGERY!!!IT IS OCTOBER 19TH AT UNIVERSITY OF PITTSBURGH MEDICAL CENTER. WILLIAM YOU KNOW IT WELL. THANK YOU EACH AND EVERYONE OF YOU FOR ALL OF YOUR KIND WORDS AND PRAYERS!!! I KNOW IT WON'T BE EASY BUT I'LL HAVE MY BGP'S AND SHOES SO I SHOULD DO JUST FINE. GOD BLESS KATH
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UPDATE ON HUSBAND AND HIS ER VISIT
Well, just wanted to let everyone know that he is doing great according to his gastro doctor, he has no tumor, no masses or no CANCER!!!!!!!!!!!!!!!! he said he looked really good other than his esophogus has to be stretched, he is a 10 and needs to be a 18, so they stretched him to a 12 today and he goes back in 3 weeks…
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Husband diagnosed with possible EC
My husband just had an endoscopy this morning. I was expecting the results to be an ulcer. I felt like someone dropped a house on me when the doctor lead us into a private room to tell us that he did not like what he saw during the procedure. He found a swollen lesion at the base of the esophagus above the stomach. He did…
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TOMARROW COULD BE THE DAY!!!!!!
Hi All, Tomarrow is Al's Appt. with Dr. Luketich this hopefully will be the day that we get the date for surgery!!!!! Our appt is at 9:20 am, so that means we may get to see him by noon. I am so excited as most of you know we have been waiting for this day to come for some time now. Al has gained about 7lbs which is a big…
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Cary Johnson?
Hi. Just curious to see if anyone knows how Cary Johnson is doing these days? His web site is: "Esophageal and Cancer Insight" http://esophagealcancer.org/cancerstory.html I tried emailing him twice with no response back. Thanks, Shelly
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HUSBAND RUSHED TO ER, I HAD TO PUT MY BIG GIRL PANTIES BACK ON AGAIN
well hello to all my site friends, I had to rush my husband to the hospital this afternoon, we had the grandkids for the day and I left to take them home and got a call about 3:30 and said hurry get them off, i need to go to the emergency room, I have something stuck in my throat and cant even swallow my own spit.Now keep…
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bad news regarding my dad
I'm so shocked. As most know, my parents and I live in Maryland and I have my dad in a clinical study at the Hillman Center in Pittsburgh. So, my parents have travelled up there without me. I've had concerns regarding my dad's health, he has been so sick, not eating and hardly getting out of bed. The tumor is shrinking,…
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Any ideas?
Hello, I'm new to this board. I'm a daughter-in-law of an esophageal cancer victim. He, Willie, is 81, was supposed to have surgery on July 12 to have it removed. They started then found some spots on the abdomin wall and aborted. He is on hospice care. He can't eat and has no desire to. His voice is crackly. His 2 most…
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Good News for us too!
Hi all, Charlie had his PET scan on Monday and we just got back from the getting the results. No change in 4 months....when he he had his last PET. So we are still in remission. Thank you God. We got the news 6 months ago Charlie had stage iv EC. We didn't think he would every see another autumn....not that we really have…
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My Status Update and a Minor Success
Well, I've a really grueling week this past week. It was the completion (almost) of 3 weeks of radiation as I differed 2 days due to being out of town and in another hospital, and the start of the third week of chemo. I continue to get constant 5FU and daily radiation. Surprise surgical consults, and a procedure in Kansas…
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hi i am new my husband has esophageal cancer
hi we need help my husband was diagonised with cancer june 12 tried chemo couldnt take made him to sick just finished radiation a month ago surgery not an option lost 50lbs no energy now having problems digesting food any help would be greatly appreciated
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Countdown to Operation
Just joined about a week ago. This whole EC for me started around April of this year. I've had Radiation and Chemo therapy and well now on to surgery. Okay, so I'm having my surgery on the 10th of october, 2009. I am very nervous, not quite sure what to expect afterwards. I haven't had anything to drink or eat for the last…
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Quick update
Hi All, I just wanted to give everyone an update. We are doing very well Al has gained a little over 2 pounds in a week and is getting stronger by the day!! We go back to the surgeon on Oct.1st Al does not need another PET scan since he had one just a few weeks ago and as you know everything is shrinking. The Dr.s have…
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Headed back to MD Anderson this weekend
Next week Layne will undergo all his tests for restaging. We will see alllllll our doctors. We are excited and terrified all at the same time. Our doctors believe that Layne will do well, but you never know with EC. We believe the Lord is doing some big things. Please keep us in prayer. We are so busy getting ready I am…