So far....

Betty in Vegas

I suppose I should post about what is going on with us. Layne has been in chemo, and now proton radiation and chemo. He has two weeks to go. Then home for 5 weeks and back for pet scans, and other testing to confirm he is a go for surgery. The celiac nodes resolved themselves and the original tumor and node near it are shrinking considerably.

I asked about post surgical chemo. They indicated this is not normally done. Wouldn't that be good to wipe up any leftovers?

mumphy

Sounds like a plan
Hi Betty,

I'm glad that Layne is doing well and it's great that the tumors are shrinking!!!
Our Dr. also believes in cleaning up the left overs.

Kathy

kitten0385

Betty,

I am so happy that Layne's coming along well. In my opinion, and from what I've heard...post-op chemo is typically done. Good luck!

Cathy

Unknown

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Betty in Vegas

unknown said:

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i haven't updated the care pages this week
it has been a tough week. Layne's job went away thursday...and his insurance of course. So we are struggling with all that. But that is where we are right now. Midway through Proton. Also, there are things about EC that everyone here knows that I don't post on the carepages...because well, people don't understand a lot of these things. They seem to assume you have cancer, they take it out, you are healed! I used to think that as well.

Getting EC in the family is a lot like getting a college education in cancer.

mumphy

Betty in Vegas said:

i haven't updated the care pages this week
it has been a tough week. Layne's job went away thursday...and his insurance of course. So we are struggling with all that. But that is where we are right now. Midway through Proton. Also, there are things about EC that everyone here knows that I don't post on the carepages...because well, people don't understand a lot of these things. They seem to assume you have cancer, they take it out, you are healed! I used to think that as well.

Getting EC in the family is a lot like getting a college education in cancer.

You said that right
Hey Betty,

I'm so sorry about Layne's job & insurance loss! I have personally been there. Trying to
get another insurance to pick you up well lets say!#@#^&^%*, and trying to get medicaid or
disability is a big hassle, but fight for it he has been working all of his life and has a right to get it. If they tell you no contact you local congressmens office they may be able to help you. They helped me.

If you need any more pointers let me know!\\
Kath

MOE58

Betty in Vegas said:

i haven't updated the care pages this week
it has been a tough week. Layne's job went away thursday...and his insurance of course. So we are struggling with all that. But that is where we are right now. Midway through Proton. Also, there are things about EC that everyone here knows that I don't post on the carepages...because well, people don't understand a lot of these things. They seem to assume you have cancer, they take it out, you are healed! I used to think that as well.

Getting EC in the family is a lot like getting a college education in cancer.

AMEN
I agree with you so much and I am sorry that your husband lost his job and insurance i hope it isn't from having cancer. Yes EC is a hard thing to have and be a caregiver for, as you know I have posted several things about our journey of course our journey is not finished but we are half way. Please know I am here if you need to vent at anytime I think I have posted several things, about EC and what to expect, from 'BIG GIRL PANTIES" TO MOE'S SHOES, and several on there about Jeff's surgery and each day i knew something. Please feel free to read them, I also posted a long arcticle under caregivers, you might want to read it. just know I am here for anything

You are so right we are getting a college education in cancer.

Hang in there
Lori