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Cary Johnson?
Hi. Just curious to see if anyone knows how Cary Johnson is doing these days? His web site is: "Esophageal and Cancer Insight" http://esophagealcancer.org/cancerstory.html I tried emailing him twice with no response back. Thanks, Shelly
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HUSBAND RUSHED TO ER, I HAD TO PUT MY BIG GIRL PANTIES BACK ON AGAIN
well hello to all my site friends, I had to rush my husband to the hospital this afternoon, we had the grandkids for the day and I left to take them home and got a call about 3:30 and said hurry get them off, i need to go to the emergency room, I have something stuck in my throat and cant even swallow my own spit.Now keep…
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bad news regarding my dad
I'm so shocked. As most know, my parents and I live in Maryland and I have my dad in a clinical study at the Hillman Center in Pittsburgh. So, my parents have travelled up there without me. I've had concerns regarding my dad's health, he has been so sick, not eating and hardly getting out of bed. The tumor is shrinking,…
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Any ideas?
Hello, I'm new to this board. I'm a daughter-in-law of an esophageal cancer victim. He, Willie, is 81, was supposed to have surgery on July 12 to have it removed. They started then found some spots on the abdomin wall and aborted. He is on hospice care. He can't eat and has no desire to. His voice is crackly. His 2 most…
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Good News for us too!
Hi all, Charlie had his PET scan on Monday and we just got back from the getting the results. No change in 4 months....when he he had his last PET. So we are still in remission. Thank you God. We got the news 6 months ago Charlie had stage iv EC. We didn't think he would every see another autumn....not that we really have…
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My Status Update and a Minor Success
Well, I've a really grueling week this past week. It was the completion (almost) of 3 weeks of radiation as I differed 2 days due to being out of town and in another hospital, and the start of the third week of chemo. I continue to get constant 5FU and daily radiation. Surprise surgical consults, and a procedure in Kansas…
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hi i am new my husband has esophageal cancer
hi we need help my husband was diagonised with cancer june 12 tried chemo couldnt take made him to sick just finished radiation a month ago surgery not an option lost 50lbs no energy now having problems digesting food any help would be greatly appreciated
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Countdown to Operation
Just joined about a week ago. This whole EC for me started around April of this year. I've had Radiation and Chemo therapy and well now on to surgery. Okay, so I'm having my surgery on the 10th of october, 2009. I am very nervous, not quite sure what to expect afterwards. I haven't had anything to drink or eat for the last…
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Quick update
Hi All, I just wanted to give everyone an update. We are doing very well Al has gained a little over 2 pounds in a week and is getting stronger by the day!! We go back to the surgeon on Oct.1st Al does not need another PET scan since he had one just a few weeks ago and as you know everything is shrinking. The Dr.s have…
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Headed back to MD Anderson this weekend
Next week Layne will undergo all his tests for restaging. We will see alllllll our doctors. We are excited and terrified all at the same time. Our doctors believe that Layne will do well, but you never know with EC. We believe the Lord is doing some big things. Please keep us in prayer. We are so busy getting ready I am…
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Today is the day
Hi, My parents are in Pittsburgh getting ready to see the Dr. today to see if my dad's liver is now involved or not. Please pray we get some good news for him!! There has been so much good news on this site lately, so I'm really praying my dad will be in that group as well!! I'll update everyone when I can. Just please say…
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how do you get private messages?
Hi I got an email saying I had a private message but don't know how to get it? Does it mean just a new posting on a post that I wrote? my brain is not working on all cylinders lately!! thanks in advance! Donna70
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Not having such a good time!!!! any suggestions?
Hi, Well Mike did good except for the separated rib which is no ball in the park. This is my status report: Had diarrhea and had to have IV infusion on Wed. All tissue in my mouth is ulcerated including lips which you can actually see, can hardly eat but trying. Diarrhea stopped Thursday, came back Thursday night, woke up…
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HELP PLEASE
Well, we were doing fine, but we are having a little set back, when Jeff eats certain things it tears up his stomach, he starting throwing up only brown looking foam stuff, and makes his stomach totally hurt, and then immediately heads to the bathroom to sit on the toliet, and this wipes him out. I am totally worried. Is…
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Back from Mayo
I had appointments at Mayo today, and all went well. I get to start my chemo again in two weeks after I have healed a bit more from surgery. Also, the colon blockage was NOT caused by a tumor. The blockage was caused by the cancer cells floating around, they were basically trying to attack the colon and made it stop…
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Week 2 Status - Most Accidents happen Where?
All I've concluded 2 weeks of radiation and 1 week of chemo. Only suffering from some fatigue and neuropathy from the oxaliplatin from last Friday. I get my next round of that stuff next Friday. Now for my accident: Possible separated rib. How it happened: shifting position in my office chair to answer the phone! I think…
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My boyfreind just had his feeding tube removed, heres the problem, he has very little to no saliva a
Are there any suggestions as what I can do to help him eat. He is picky about what he eats. Hes been eating bananas, jello, pudding and milkshakes mostly. He says he cant eat meat because there is no saliva to dissolve it so he cant swallow the meat. Even if I blend it in a blender. What foods do you suggest. Please help,…
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UPDATE ON LINDA
Surgery was 3 1/2 weeks ago Linda is CANCER FREE!!!!!!!!!!! Doctor told me it was the man upstaires I clutched his hands and told him THESE are why linda is still with me today Was crying when I told him that It seems I cry a lot these days When I was in that ****-Hole in the Nam many years ago could not let myself cry I…
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how to support parents from a distance?
Hi all. I feel I am getting to know you all through this website. God Bless you all for helping & supporting each other and for those fighting this cancer--know that you are in our prayers. My dad is a "young" active, (otherwise) healthy 70 year old. The doctors were surprised at his general health. He is at Duke in his…
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thanks for all your help
Although we are not esopageal we hoped some one in this room would be of assistance ...guess we were mistaken
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Meeting The Nicest People in the Hospital
All About 9 am this morning, I thought about calling Lori's and my friend Cathy P. just to chat and give her a status. Cathy and her husband stored one of Lori's cars from March to July. I had not seen them since I was an in patient in Kansas City 6-10 July as they took care of my dogs during that time. Lori was back in…
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GOD ANSWERED PRAYERS FOR KITTEN AND HER FAMILY AND FOR ALL OF US
I just want to say this "KITTEN WELCOME HOME" we are so glad you fought the fight once again, you are truly an amazing woman, you have had so much happen in your adult life and you are only 24. You have truly wore out your DANCING SHOES, and ready for a new pair of MOE"S BIG GIRL PANTIES, so please help yourself these are…
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Newbie
Hi, I've been a lurker for a while and decided to join the group. I'm a caregiver to my husband Tom, who was diagnosed with Esophageal Cancer in May, 2009 and it was staged at T3,N1,M0 at Moffitt Cancer in Tampa, FL. Being that Moffitt is an hour away we decided to do the chemo/radiation locally. The oncologist we were…
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Another Update
Still in the hospital, will be for at least another couple days. I got my chest tube pulled out today, so feeling much better in that regard. I have been throwing up a lot of bile though, and the reasoning behind it is that my bowels aren't functioning quite correctly yet, so the bile keeps building up in my stomach and it…
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Thank-you, Bill and Loretta!!
This is a HUGE thank you to Bill and Loretta (our EC Board "Marshalls") for all the time and effort that they spend on this discussion board. Two years ago, they fought hard to have this board reinstated, after the ACI elected to remove it, because Esophageal Cancer was not as "popular" (for lack of a better word), than…
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Update!!!!!
I'm Home!!!! :0) Cathy
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Treatment Plan Set For Kickoff
Friends Sorry that I've been tardy, but my wife, Lori, had me doing the heavy lifting stuff trying to finalize the move-in process. I get pretty tired early on in this game. I'll start radiation and chemo this coming Tuesday. I'll be getting Oxaliplatin and Flourouracil (5-FU) as the chemo. I have sighting targets on my…
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Barretts esophagus , " removal"
Don't know if I fit in this discussion board , but must talk to someone ,as I'm worried about my up and coming future. Starting from the begaining 15 or so years ago I was told that I had Barretts Esophagus and that I would have to get checked every couple years ,which I did for 12 years , then because of having lot of…
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back from chemo
Hi, Came home this morning, very tired and wiped out, hope I get my mojo back after I sleep a night at home. Did not have too bad a time except for food getting stuck where my tumor is and it finally resolved and some bad nausea but compared to my heroine, Kitten, I had a walk in the park. Trying to get my hopes back up,…
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PET SCAN IS GREAT, BUT NO DATE SET YET
HELLO ALL, IT WAS A LONG DAY AT HILLMAN DR.LUKETICH WAS CALLED AWAY TO DO SURGERY RIGHT IN THE MIDDLE OF CLINIC JUST BEFORE IT WAS OUR TURN TO SEE HIM. SO WE WAITED AND WAITED AL WAS GETTING TIRED SO WE GOT HIM A BED IN THE TREATMENT ROOM. DR. LUKETICH FINALLY CAME TO SEE US AT ABOUT 2:00 WE HAD BEEN THERE SINCE ABOUT…