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my dad
My dad had an upper GI series done today due to feeling like he has trapped air in his stomach. Well, the radiologist or the technician, that part I'm not sure, told my dad the esophagus appears to be fully blocked. He can eat, it just takes a long time for the food to go where it needs to. I'm so upset. Why can't he just…
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Feeling not as helpless and hopeless
Well I fianlly convinced the ER Dr. to admit my husband and find out why hes not eating and losing weight. In the ER yesterday he weighed 120 pounds. They did a CT today so we are waiting for those results. My husbands friends flew his daughter in from out of town in hopes that he will listen to her, and so that she can…
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Ahhh we found his kryptonite!
Well, it's milk. Being the smartypants that he is--while I was gone, Layne decided to have not one but TWO glasses of milk instead of introducing it slowly as he was told to do by the docs. And he spent last night in the bathroom. :) Dumping. He has promised to be good henceforth. Doing well, drainage on the incision…
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Update on my hubby
Hi all. My hubby had the ultra-sound scope done today to see if the cancer has shrunk. He has already had a PET and CT scan done, but we do not have the results yet of those. The Dr. who did the scope today said that the cancer is 'fried' and thinks that my hubby is ready for surgery. He also said that the cancer doesn't…
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Hello, I am from India, diagnosed with esophageal cancer
Hello, I am from India, diagnosed with esophageal cancer. Doctors here dont tell the patients or try to answer there questions. I was diagnosed with esophageal cancer, 3 months ago. No treatment has been started uptil now. If I go to private doctors, they suggest having an immediate operation when I go to government…
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just diagnosed -- need information
Endoscopy diagnosis of malignant tumor in abdominal esophagus. CT scan and ultrasound are being scheduled for staging. I need some basic information of where to go from here. Tumor was "soft" which suggests an earlier stage, but will have to wait for all test results. I need suggestions for surgical/onco team in Phila.…
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I am new here....Feeling helpless and hopeless
My husband was diagnosed in February 2009 with stage 3 EC (T3N1M0). He has gone thru radiation and chemo and had surgery in May. He weighed 217 pinds in February and now weighs 130 pounds. According to a CT, they say the cancer is gone. But, my husband is not getting better. He is still losing weight and has no apptetite.…
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new
i was daignosed feb 2 with esphogus cancer went through 28 treatments of rad and every 28 days recievd chemo 1 bag at hospital then carried a pump bag arond for 5 days for 4 months,had tumers in lower throat with 1 lymph node in right shoulder involved stage 3 or 4,3 months ago docs said no tumors and no cancer in throat…
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Hospital
Hi all, Just wanted to let you know I'm around, but stuck in the hospital again, and my room doesn't get internet very well, that's why I haven't been on. But, I'm here!!! Hopefully getting out this weekend! Love you all! Cathy
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Kim's dad will be getting surgery 12/3!
God is Good---all of the time. I hope I am not reapeating myself---but here is some info... My dad is getting surgery 12/3/09. His surgeon at Duke said they are going to try to do it all laproscopically, but I could tell he was leaving the door open (pardon the pun) to the open approach if necessary. I think this may be…
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i am new looking for a local group
looking for a group in BelAir,md
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groups
Are there any groups around BelAir,Md that meet?
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Al had a little bump in the road.
Hi All, The dilation and drain removal all went fine but it seems that the tech that did the barium swollow the day before was a little to aggressive in making Al drink that horrible stuff and some of it got into his lungs. The home care nurse came on Thursday and had me cal 911 Als pulse ox was only 74 by the time we got…
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Back again with news on John
Time seems to just slip by me anymore. I had to take about an hour to catch up on all the postings. John is now 6 weeks out of his 5 weeks of chemo/radiation. He still has soreness in his esophagus from the radiation, but is able to eat better. He sees the medical oncologist tomorrow after having the followup PET and CT…
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biopsies negative
Hi, Just wanted to update you all, my biopsies from last weeks EGD are all negative the dr did not see the tumor per se, he said mine is subtle and he did not have the ultrasound camera to examine the area but said that is a good sign that all the biopsies were negative, my husband believes he did maybe 5 of the…
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Al's appt
Hi, Well Al had his EGD and a mild dilation. The Dr. just wanted to do it before it might start to give him trouble. They removed the drain! He is now free of all staples and drains and feeding tubes. He is still a little sore from everything. He will be resting for the next day or so but thats it. He will be allowed to do…
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Losing weight
Since the latest info surely links obesity and EC, I suppose this fits here. I didn't want to hijack the thread the question was asked in--especially since it is a celebratory thread and we need to celebrate all we can! Layne and I realized a few years ago we were overweight...and it was affecting our health. We needed to…
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Hi All,
Hi Everyone, Just wanted to let you know that Al has his first follow up appt. on Tuesday with his surgeon. He will be getting all of the staples taken out and his drainage tube, I am not sure about the feeding tube yet I think he may have that in a while longer I'm not real sure. I know I don't need to ask but some extra…
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one more survivor....
Layne's pathology came back as expected. The two nodes that were still carrying a few cells still showed that, not one of the other nodes taken had cancer. :) This means now we do the five year wait! We are so blessed. And as to what Layne eat to GAIN wait through all this--everything. If he wanted something, we let him…
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good news on Kim's DAD-
My first entry got lost in the CSN mystery place---so here I go again... (Why did I not list to Bill & Loretta M. and do it on a word document first???) I hate starting over.. My dad’s re-staging appts at Duke (post 6 weeks chemo & radiation) have done their job! All the tests CT PET, EUS show that everything has had a…
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Oh Mumphy ---Kattttthhhh!
Praying for you today! Hoping all goes well!!!!!
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New to group
This is my first post to this group. I have checked posting a couple of times since my husband was diagnosed with stage IV esophageal cancer in July and have found it helpful, thank you. Discussion boards are new to me, please forgive any novice mistakes. He has compleated 5 weeks of radiation and 5 rounds of chemo. The…
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TO ALL THE NEW ONES THAT HAVE POSTED-I AM REPLYING TO ALL OF YOU IN ONE LETTER
Hello everyone, First let me welcome you to our site I too was in your shoes just a little over 6 months ago, my husband at the age of 45 years old was diagnosed with esophogeal cancer, we orginally had went to the doctor for what we thought was gallblader problems, after being persisent with the doctor and letting her…
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We are being discharged tomorrow
We are going to be discharged tomorrow, I am learning how to deal w the feeding pump today and getting all organized to go. I am so excited to be leaving and to see the turn in Layne--which was miraculous! Today, he walked downstairs to the piano and fountain and we listened for about two hours. Later, we will go see our…
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update on my dad
Hi, Well, my parents have decided to go with Johns Hopkins in Baltimore. They really like the Dr. alot. However, she's putting him in a wait and see status. I'm not thrilled, but whatever she feels. She does feel that he was on the right track in the clinical study and fully understands that it's going to be too hard to…
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Husbands PET
Yesterday my husband got the results from his PET scan. Overall things looked pretty good. The lymph nodes and tumor at the esophagus have all shrunk considerably. He just finished his 6th round of chemo on Oct 5th (Epirubicin, Oxaliplatin and Xeloda every 3 wks). He has been feeling pretty good the past few days. The…
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Fatigue update
The responses we got on fatigue were very helpful, enough so that my husband added this discussion group to his favorite list. He started his 6th round of chemo yesterday. He had been concerned that his fatigue would postpone the chemo. As it turned out as long as his blood counts were okay, they weren't concerned with how…
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Confused after EGD
Hi, Well, got my EGD and did not get the stent or tube. The dr was going to put a j tube in my small intestine since he said that my achalasia prevented the stent placement. But when he tried he could not do the j tube because my small intestine was not in easy reach. So went home like I came. He said everything looked…
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getting my EGD tomorrow
Hi, I just wanted to ask for good thoughts and prayers tomorrow, my EGD is scheduled at 1 PM and hopefully the gastro dr will be able to do a stent so I can eat better and swallow a lot better. I was not supposed to lose anymore weight and somehow dropped 4 lbs in 4 days with doing shakes and Ensure?? He also will be…
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Scheduled CSN outage tonight
The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff