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Everday there is something new
Good morning! Need some help...Steve has been spitting up this "foamy" stuff anytime he eats or drinks anything. This use to happen occasionally, but since they put him on carafate (sp?) it happens ALL the time. Can anyone help me with this and tell me if they have had this problem. I am waiting on the Dr to call me back,…
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update on first chemo
thanks again for the replies., and yes, I am trying to get him to drink as much as possible. I do not like the doctors either who use these stats, it is very discouraging so I try to not listen to them. I think everyone is an individual and that chemo affects everyone differently. I am trying to stay positive as much as I…
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Biopsy shows tumor
Steves biopsy results of the "nodule" came back positive. They want him to see a specialist in Chicago, a Dr. Mary Mulcahy at Northwestern. Steve says he will consider chemo, but if it is in his liver too, can he really fight this? Can anyone survive mast. cancer? I hae so many questions and feelings I don't know where to…
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Not good news
We met with the Dr. yesterday. Up to this point I don't think that Steve really grasped what was going on. Or maybe he was in denial. But she her self has had cancer and I don't think she would give us wrong info. She said she had talked with an oncologist after the CT was done and he even said that with the resutls of the…
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Pain beginning 5 months after esophageal cancer surgery
I have a lifelong friend, who had surgery (I think it was the Ivor Lewis procedure) by an outstanding surgeon at a teaching hospital (UAB) in Birmingham, Alabama. The surgery was 2 years ago next week, and everything was and is going well. Minimal problems with reflux; no signs of cancer recurrence. Doctors all say that it…
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Good to go for surgery 12/8!!
Hi, Just wanted to share the good news. We had our presurgery meetings with all the drs and the PET/CAT scan was good, all other tests good so the surgery will still take place on this coming Tuesday at 7:30 am. The feedings with the NG tube have helped, evidently I was showing malnutrition and finally my bloodwork came…
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So my dad met with DR
L. today. All I know is that Dad does have Esophageal Cancer. Unsure of anything else yet, but he is going for Surgery Monday. Ill update when I know more... Please pray, the power of prayer is amazing. Thanks.
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Tomorrow we'll back at the U of C..and
The doctors will pull all the test results together and tell us where Tom is...it's a very anxious time and sleep seems a long way off right now for both of us.. We kept busy getting ready for our Vegas trip and finalizing all details on the kitchen remodel..contract signed and deposit made...the mess begins some time in…
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It just keeps getting worse...and more news that I didn't want to hear
After the scope and they confirmed that the "nodule" was a tumor, they also wanted Steve to see a pulmanologist (sp?) which we did yesterday. After he looked at Steve's CT, he says...you have a collapsed lung with fluid around it and there is not much that I can do beccause your case is so complicated with the lung ca...i…
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Hope Back Pain Is Just Back Pain
Hi All, We go see Dr. Gibson the oncologist tomarrow for our first f/u after surgery. I need some extra prayers. Al has been having this mid to low back pain now for about 3 weeks. First I called Dr. Gibson and he looked over his scans from when he had pneumonia, I guess he told them he was having low back pain. He said…
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Clinical trial: Zactima
Recently diagnosed, will start radiation chemo combo soon with 5-Fu and Cisplatin followed by surgery. I think stage is T-3. Phase I clinical trial of Zactima, Placlitaxel, Carboplatin, 5-Fu and XRT (radiation) followed by surgery was presented to me. I am in process of gathering info so I can make an informed decision.…
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Ativan
Hi, Has anyone on here used Ativan? They gave it to my dad to calm the terrible hiccups he's been having since having his stent put in. The ativan had him very loopy and he was talking to himself in his sleep and was VERY confused. He's pretty miserable too. I was hoping the stent would improve his being able to eat. He…
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My dad's balloon dilation procedure
Hello Everyone, Wanted to let you all know that my dad will be having his balloon dilation procedure at UVA on Monday, December 7, 9:30 a.m. Please put us in your prayers that all goes well. I will be in touch. Have any of you heard from Trish in Pittsburgh?? Hope her husband is doing better. Thanks! Tina
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New here from PGH. For my dad
Hello all, Im new here and have been reading all weekend. I thought I'd post a topic. Well My dad is 56 he has had acid reflux for YEARS. Went to DR's all the time and they kept telling him to take OTC meds. So about 9yrs ago he just gave up and stopped going to the DR's. BIG MISTAKE... Starting in August he started to get…
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new husband's diagnosis
My husband, age 55, was recently diagnosed with stage four esophageal cancer, we went to three oncologists and they all had the same opinion. They suggested chemo, not radiation, since it was not curable because it had spread to the liver, abdomen, lymph nodes, etc. He is starting chemo this week, cisplatin and cpt11. Has…
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Help....more prayers please.... Roy's in coma....
Hi everyone, Well yesterday I was estatic with good news. However today it's not so good. 1. They just took him in for more surgery (a filter to catch any blood clots). 2. He already has a blood clot in his right arm (Still so swollen), one in his right leg and several in his lungs. They are hoping they will dissolve on…
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Pet Scan tomorrow. oncologist appt Friday and Vegas on Sunday
My husband has his Pet scan tomorrow...so we'll be going to Chicago...maybe in snow..then we meet with the oncologist on Friday to get the round up of all the tests...fingers crossed..prayers will be appreciated. It's our anniversary on Wed...and we always go to Vegas as our gift..so since he feels fine and can eat like a…
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greg
has anyone survied esphogus cancer stage 3/4 with just chemo and rad no surgery,tumors were in esphogus just below throat,doctors said lyphmnode in center of right shoulder tested positive to far from tumer to do surgery.are there suvivors?also said 2 lyphnodes were swollen did not know if they were cancerous.been off…
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Balloon dialation of the esophagus
Hello dear wonderful friends here on the EC page! I was just wondering if any of you or your family members dx with EC have gotten the balloon dilation done. My dad, Ray, dx with EC in Nov. 2008, will be getting this procedure done in the near future. Any of your input would be greatly appreciated! Thanks, Tina
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OUR ANGEL BENEATH OUR WINGS, HAS PASSED AWAY AT 8:30 AM TODAY 11-29-09
Hello everyone, I have some bad news, I have just been notified by another site, that our own "KITTEN" has passed away at 8:30 AM this morning. Kitten was our angel beneath our wings, our Cat with 9 lives, and our dancing shoes queen. Kitten was an inspiration to me and my husband during his difficult surgery, and really…
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OUR BELOVED KITTEN HAS JOINED OUR ANGELS, NOW SHE IS WATCHING OVER US
I would like to say that we have lost a very dear and good friend on the CSN site, I was notified this morning that she passed away at 8:30 am today, not only was she an inspiration to us, she fought a hard fight, she never gave up and she always said it was just another bump in the road, she was loved by all on this site,…
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LETS ALL SAY A SILENT PRAYER FOR KATHY AKA KITTEN
Hello everyone, I talk to Kitten on another site, and I have not heard from her all week, I think we all need to say a silent prayer for her, I do know her college sority sisters was giving her and her husband a speghetti fundraiser supper to help her during this trying time. Please say prayers for her, she is so young…
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Hubby still on ventilator in hospital - needs trach put in today - has pneumonia - possible blood cl
Tough times ahead. Got the BIG GIRL PANTIES on! Roy has been on the ventilator since his surgery on November 23. His lungs aren't working properly (due to COPD and pneumonia). Doc says a trach tube would be better for him. So they are putting that in today, along with a "filter" to catch any blood clots. His right arm is…
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Curious as to what happens to the liver after esophagectomy
I'm curious as to what happeneds to the liver once the esophagus is removed. I seem to have a pull/pain in that area. Any ideas? Sometimes it's really painful especially when I get up or move positions. Thanks.
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Lack of Appetite
Hey there, I was diagnosed Sept 15th with Esophageal Cancer and since started treatment. They put me in the hospital for 7 days while they did 5 days of 5FU (16hrs a day) and then Cisplatin for a day (8hrs). During that time I started radiation as well which is scheduled for 6 weeks. I will be admitted back to the hospital…
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When do you know if you need a dilation?
Hi All, Al has been having alot of mucous build up today. He also had eaten some chipped ham with his eggs which is not on the good list. He has been having a difficult time since he tryed to eat that. So I'm wondering if he just irritated his new pipes or if he needs another dilation he just had one 3 weeks ago. I call…
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Break from treatment
We are on break from treatment, and I go from being almost giddy with the thought of the holidays with no chemo, to scared that we aren’t doing enough to fight this thing. I am in the process of getting things lined up for a follow up endoscopy and a second opinion since we are at the point where we have to figure out what…
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HAVING A HARD TIME COPING WITH GRIPPYNESS
Hi everyone I don't usually post but why is it that one little thing lately just ticks him off and upsets him? I promised myself I would never fuss with him again after surgery but sometimes its pretty hard not to think to do it. He wasn't like this a month ago but now he is, is it going off the pain meds? or just in…
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New to board, but not EC
This is my first post, but I have been reading this for a year or so. I communicate with "Betty From Vegas" quite often about her husband. My story is as follows: I was dx with stage III EC on April 14, 2008 after having a fever for 3 weeks. However, the fever came from an infection in my chest and had nothing to do with…
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WE HAVE ALOT TO BE THANKFUL FOR THIS THANKSGIVING
Hello everyone, For everyone that has had surgery we have alot to be thankful for our loved ones is still with us, and for the ones waiting for their loved ones to have surgery you still need to be thankful, they are still with you and living. Each one of our loved ones, might still be recouperating, but they have 2 eyes,…