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sunny101's picture

My identity

My haior was my identity. At my age to have natural brown hair, long, so many peopole complimented me. I felt young, and attractive. I looked like my daughters who also had long brown hair. Now 3 weeks after first chemo, as i slept it became matted to my head, falling out. I have to shave it tomorrow. the wig is cheap and stupid. I feel alone, no one understands.

RaggetyEarl's picture

Lingering pain

Throat and Adenoid cancer stage4. Surgery, 7 weeks of Kemo and Radiation. 186lbs to a very weak 123 lbs. Finshed Kemo on July 26th 2015. I've have on-going joint and muscle pain in my hands, hip, knees. Multitude of test! MRI, Cat Scans, Several studies. I dont like pain killers, so i live with night cramps from hell. Taking a fiber myalgia myopathy medicine that doesn't seem to work much.



Skinny_Mini's picture

Medduloblastoma Survivor

I am a 17 year survivor of Medulloblastoma (brain). Radiation head down to where the spine ends.  It was awful as my head was on lockdown the entire time. Chemo meds were strong and varied during the long course.

At home I was on an IV hookup (TPN) 7p-7a for nearly a year; I was not/could not eat. Just the smell of Hubby cooking had me running to the bathroom to throw up. So anyway, as I said, I'm still here.

Don't Give up, Fight and love back

Hi every one i am a new member here. 

My Name is Amit, i am Final year surgery resident.

I was diagnosed with Renal Cell Carcinoma in 2012 and underwent Radical Nephrectomy.

I have managed to not kick the bucket yet. and wont kick it before i am satisfied, and saved a minimum of million People as a Cardiac Surgeon.

I am here to share my part of the story and help anyone as a Surgeon who shook hands with Cancer. 

Melanoma and Me

It (melanoma) is bye-bye for now with great anticipation it won't return.

U of M did a great job identifying it( second opinion) and taking care of it

with a good surgeon. Of all places the melanoma chose  it had to be on the smile

line of my cheek, but that made it easy for the surgeon.

Will continue to do skin check ups yearly and feel blessed.

Salivary gland cancer stage 4

Hi, my dad was diagnosed with stage 4 salivary gland cancer he had an 11 hour surgery at UCLA to remove the tumor. He had 7 weeks of Monday - Friday radiation... he had been cancer free for almost a year, we just found out a few weeks ago that his cancer spread it's near his eye on the bone and also back of his skull, they are very small ... he had a pet scan and it turns out its on his right rib very very small... they have him on pills, afatinib is the name of the medication, he's on the strongest dose, doctors want to see him again in a month! Seems too long right?


Hi Everyone, I came across this page when I was researching throat cancer, and how to help the throat after radiation and chemo. I personally do not have cancer, my brother was just diagnosed, and is in the process of undergoing chemo and radiation. His journey will begin in a few days. I appreciate all the valuable information on here, and hope you do not mind we reading and following along with all of you. Lots and Lots of prayers and well wishes to you all. This is all new to our family and we want to be as knowledgable as possible to help our brother.

bevacqua_r's picture

The start of my journey

The first time I associated cancer to me was back when I was in high school, I think.  I remember my Mom telling me that her Grandmother died of cancer in her late thirties or forties.  My Grandmother confirmed this but wouldn't elaborate on any of it.  I left it there and moved on.  In 1996 my Mom was diagnosed with breast cancer, and even then I pushed it away, being in my mid-twenties I was still self-absorbed and just walked through the motions.  My Mom never spoke to me about her breast cancer.

Extragonadal germ cell tumor

My son was diagnosed on 2/7/15 with a mediastinal germ cell tumor. His AFP level at the time of diagnosis was 48,000. He went through 4 rounds of BEP.  His AFP was 125 after chemo, and then started to rise, so we had to move on to  2 autologous stem cell transplants accompanied with high dose EP.  This reduced his AFP to <25, which made him a candidate for surgery. The mass was removed in 9/15 at Indiana University by Dr. Kenneth Kesler. The tumor was necrotic when removed. A small portion of his lung had to be removed with the tumor.


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