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ejourneys's picture

Numbers Game

Back in March, my partner and I had walked into our hospital's old satellite blood draw facility about a mile from home. She needed routine tests done. We were told then and there about the change in procedure due to our hospital's acquisition. We could go to a different, stand-alone facility about 15 miles away or continue to use the hospital's satellite facility if we wanted to pay close to 50 times as much.

hepatocellular carcinoma , my mother's story

Back when I joined this site in November 2014, I was feeling that I needed to hear people's stories on how liver cancer progresses. Perhaps there are others out there who would like to hear our story.

My mom was diagnosed with primary liver cancer at 79 years old.  She was feeling abdominal pain for several months, with a really bad bout of nausea and vomiting that started in September, but she got mostly better and thus it was thought to be a gastroenteritis.  

Advanced cholangiocarcinoma with liver mets - confused

Hi. My dad is 49. He was diagnosed with CC with liver mets (12-14 cm ) on 8/8/15. The doctor said it is inoperable and chemotherapy would be done for palliative care and has given him 6 months. My dad has no jaundice or fever. His LFT is normal. He does not smoke or drink and has been following a strict diet consisting of juice and green vegetables. My dad is unaware of his stage. We've not started with chemo as one of my relatives ( colon ca survivor) has suggested that we continue without any medical treatment.

Talmidah's picture

Two months down, the rest of my life to go

Tomorrow will be 2 months since my partial nephrectomy. It has not been easy.  Every doctor I saw before the surgery said the same thing - You'll do fine.  But I don't feel fine.

Accidental Cancer Advocate's picture

Accidental Colon Cancer Advocate- Colon Cancer misdiagnosis caused my 53 y/o husband's death

I am writing a blog and will share the link www.accidentalcoloncanceradvocate.com .  My 53 year old husband was "diagnosed" with colon cancer, adenocarcinoma in Oct. 2012 with a biopsy. During his 3 years of treament, all his PET, MRI, CT Scans were always negative for sign of disease in his colon. His presenting symptoms were blood in his urine, right flank pain and shoulder pain and weight loss. No one every worked up his symptoms, the doctors followed the pathology reports only.


June 2015 - Noticed swollen lymp node. Saw Family Phsician on June 7. Recieved antibotics and told to see ENT if swelling have not gone down by June 13. June 13th I saw ENT who biospied node and also left tonsil. June 15 biospy results indicated SCC HPV+ of tonsil and node. Had to wait until asprin had cleared system for surgery on June 28. Tonsil removed with clear margins. 20+ nodes removed; 4 were positive.


My journey as a highly imperfect caregiver

My husband, Chris, is a cancer patient, diagnosed with stage 4 esophageal cancer in June, 2013. His cancer has metastasized to his liver, lymph nodes and lungs.  It has also spread through and invaded every area of our lives.  

my blog

Hello whoever may read this.  This cancer deal is so new to me. I have not processed it all yet. Do you ever really 'process' it? I don't know. I am not sure what my physical health will be a year from now. A few months ago  I never even thought of such things. No health issues at all. I was getting ready to ride in a 3 day, 180 mile bike trek. And then Wham- you have breast cancer and will be starting chemo in a week or so! So there it is. 


dx in may of 2015

 Hello new to this. diagnosed this year with breast cancer. triple negative. having chemo now and will have surgery in November.  No family history and very healthy otherwise.

stage 4 mucoepidermoid s/p parotidectomy 2012

hi i was diagnosed deep lobe parotid Mucoepidermoid CA High Grade Stage 4  2012

Total Parotidectomy- left was done Aug 2012 with partial debulking off mass attached to my internal carotid artery.

IMRT (radiation-high dose) in combination with Chemotherapy (Cisplatin-high dose) was done Sept-Oct 2012.

Close monitoring with laboratory: Routine Executive Laboratory and Check -up 1×-2x a year as needed;  Pet scan done 2x ( 2013 and 2014); Ct scan with contrast every 3 mos then every 6 mos (2013 and 2014) MRI with contrast 2014 and 2015

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