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Uterine/Endometrial Cancer

Should I be concerned or am I borrowing trouble?
I have UPSC. I have recently had my one year CT scan. This is the first CT since being diagnosed and finishing treatment, which my oncologist reluctantly agreed to. My CA125 at the time of diagnosis was only 22.1, after surgery it went to 84 and then, during chemo, quickly came down to single digits, where it had remained.…
Meditation
I have noticed a few posts lately mentioning meditation and I would like to share my experience and compare notes with others. Around the time of diagnosis I asked my yoga teacher for some info on yoga nidra which I had been previously taught in a workshop about sleep problems. I used a 10 minute cd daily and it helped…
HAIR LOSS
Having my first taxol/carbo treatment a week ago, I thought I had abbout 2 weeks before hair loss began. Running my hands through my hair, I noticed a couple hairs. Of course I couldn't leave it alone so I vigorously rubbed my head ovr the counter...yep hairs. I was expecting it but not this soon. Pat
Anyone with endometrial (stromal) sarcoma (ESS)? Any grade?
Just curious since I understand this is another of our very rare uterine cancers and I unfortunately have it. I've tried joining the yahoo discussion on it and there doesn't seem to be someone in charge of membership there now since it's been a while since I applied. :( Anyway, just curious! Julia
Claudia....missing you!
Claudia....I haven't seen you for a long time and am hoping that you are well and busy enjoying life and painting like mad! Miss you! Sending big hugs and well wishes!! Karen
Ginger, Beta Carotene, and Anti-Fungals--from a prior post by Rosey-this way it's easier to find. Th
Ginger, Beta Carotene, and Anti-Fungals Thanks, Jill, for starting to gather all the pertinent information on foods' anti-cancer properties. A huge job, but invaluable to us! Having read through the responses to her first posting on ginger, would like to add the following: I'm a firm believer in the efficacy of ginger.…
New Evidence That Green Tea Short-Circuits the Cancer Process--American Institute of Cancer Research
Just wanted to say a few quick words on how to brew green tea for the greatest effectiveness. 1. Don't bring the water to a complete boil, but rather just under. 2. Allow it to steep for 30 minutes as this allows the greatest amount of EGCG to be extracted. 3. If you can add about a half an organic lemon to allow the two…
NCI says what you eat can hurt you or it can help you fight cancer. List of foods with cancer-fighti
The National Cancer Institute -- estimates that roughly one-third of all cancer deaths may be diet related. What you eat can hurt you, but it can also help you. Many of the common foods found in grocery stores or organic markets contain cancer-fighting properties, from the antioxidants that neutralize the damage caused by…
Fanniemay
From prior posts I think that I remember you saying that you are located in Wisconsin. I am also in Wisconsin. I have UPSC. I currently see a general oncologist, but feel that I need to find a GYN/Oncologist. Who are you seeing? If possible, please let me know. My personal email is basketaddict@charter.net. Thanks, Pat
Shoot me now...PLEASE
So I finished up with my 5th round of chemo last week, had severe joint pain and developed a cold on top of everything else. I've been as sick as I've ever been, feel like my lungs are on fire and haven't slept but a few hours since Saturday. I have not had a fever but I called my onc nurse today anyway and after…
MMMT survivors-1975goatgirl-no longer posts
Hello fellow survivors: I have been trying for the longest time to get in touch with 1975goatgirl but to no avail. So I just thought that I would let everyone know that she no longer posts. I hope she is well. Best of health to all. June
Head of Sloan-Kettering Sued by University of Pennsylvania New York Times
Head of Sloan-Kettering Sued by University of Pennsylvania By ANDREW POLLACK Published: February 22, 2012 NYT The University of Pennsylvania has joined a lawsuit accusing the president of the Memorial Sloan-Kettering Cancer Center of walking off with the fruits of university research to start his own company. The…
Deception at Duke
I had heard about this a long time ago, but thought I would post the "60 Minutes" segment (link) here just in case anyone was not aware of this. This is a transcript. http://www.cbsnews.com/8301-18560_162-57376073/deception-at-duke/ Not only was Dr. Potti's research fraudulent, he claimed (falsely) to be a Rhodes scholar.…
Spices & Herbs
I purchase many of my spices and herbs at local stores such as Whole Foods and Trader Joe's. Wondering if anyone has a few on-line sites they're using for these items? Surely purchasing in bulk is a bit more cost-effective. One site I've been using is iHerb.com, but lately turmeric has been out-of-stock, with no date of…
Uterine MMMT: Does Your Oncologist Use CA125 test?
My oncologist NEVER mentioned CA125 test in a year of treatment. I did check my blood tests and only occasionally was CA125 tested; it was always less than 15. Are those of you with uterine carcinosarcoma being asked to get tested for this marker every three months? I thought it was not very reliable for this form of…
Post Treatment Meds
I had my first round of chemo (taxol/carbo) this past Wednesday. Reading through posts everyone speaks of meds they take after their treatments. The chemo nurse referred to my meds and I told her I wasn't given anything. Reading through the posts and some responses to some of my questions, the "make sure you take your…
Thrush in mouth
Does anyone know how to get rid of the thrush in mouth, outside of getting the nyatan swish and swallow. Don't know if it's from the steroids or chemo. Didn't get with 1st round of chemo Irene
Supplements
A gal in my therapy group who's a stage 3 breast cancer patient sees an integrative doc, plus very much into complementary approaches such as herbs, vit C infusions, etc. Judy mentioned a good book to read per her research and her integrative doc recommendation, so I picked it up at my library. Definitive Guide to Cancer,…
books on anti-cancer diet
I've been following the Anti-Cancer book by David Servan-Schreiber for over a year now. Just ordered from amazon Foods to fight cancer by Richard Beliveau The Plant Programme by Jane Plant (mainly breast, prostate cancer directed but could be good for us too) because I felt the need to extend my knowledge about diet (the…
LEG PAINS-TAXOL
Can someone elaborate on what type of leg pains these are? I am very concerned because I have suffered from leg cramps for years. When I say leg cramps I am not referring to your run of the mill, point your toe to your nose calf cramp. My cramps are almost undescribable. They start on the side of my foot or in various…
Insurance issues/UPSC
Not me. Very good friend is a 5-year UPSC, Stage 2 survivor. She had both chemo and radiation. Now, at 5 years her insurance company says no more gyn oncologist, you can go back to regular gyn for exams and see the local general oncologist here on out. She has mixed feelings about this and will discuss it with her gyn next…
Finished 1st round of Chemo
Had my first round of chemo yesterday. Long day...arrived at 830am and didn't get home until 430pm. The entire process, although lengthy, was uneventful. Started out with Benadry, Pepcid, Steroid, Anti-nausea medicine. Next was 3 hour infusion of Taxol followed by 1 hour infusion of Carboplatin. Like I said, all went well…
My mom's 4B care crossroads - Complimentary therapy recommendations needed
Hi all, My mom is 73, with stage 4B UC. She's had a full hysterectomy, then five sessions of Taxol/Carboplatin, and now because they've full a 4c mass in her abdomen area near her omentum, they are recommending more chemo. No surgery or radiation is recommended. The good news is that her CA125 decreased from 95 to 32 with…
Will start third round of chemo
Went to the doctor today and he recommends that I start chemo again. My CA 125 is 2700, the highest it has ever been. My CAT scan showed 5 enlarged lymph nodes, three in the neck area and 2 in the abdomen. So I will start chemo February 9th. It will be Taxol and Cisplatin every three weeks. Since both drugs need to be…
Does your Onc Use CA125 as MMMT Marker?
Am a bit baffled. For nearly a year, my onc has said nothing to me about CA125. I always checked my blood test results and it looked as if they didn't always test for it. When they did (4-5 times), it was always less than 15. Since finishing all treatment in late August, NOBODY at my center has kept an eye on my blood…
Shipping tape & hair removal
Sooo...anyone ever try this or am I the only one that may or may not have had brown shipping tape stuck all over my recently shaved head tonight. Just wondering ;o) Cindy
Dental care before starting treatments
This topic came up recently. Today I read an article on this topic in CureToday.com Winter 2011 http://curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1795 Not quite sure how I came onto their mailing list but I think it was when I joined the discussion board and I did a survey. It is part of American…
Anyone with UPSC 1A have chemo but NOT radiation? Or only external radiation?
I'm coming up to a crossroads and wanted to hear from my UPSC sisters. I was diagnosed IA in October after a robotic hysterectomy. Had de-bulking/staging surgery in November - 22 lymph nodes, omentum, tubes, ovaries, cervix, vaginal cuff, washings all were negative. Yeeeha! One gyn/onc told me I'd need nothing but…
Whine time for me :(
Just got my PET/CT report from early this week (which, btw, my gyn-onc was not inclined to order as I was asymptomatic, but I insisted). Up until now all recurrences have been in lymph nodes only. Today's report shows a lesion in my liver and multiple nodules in lungs, some new enlarged lymph nodes, other nodes reduced in…
Valentines for friends
"The cure for all ills and wrongs, the cares, the sorrows and the crimes of humanity, all lie in the one word 'love.' It is the divine vitality that everywhere produces and restores life." - by Lydia Maria Child All my friends in this journey Wish you a very Happy Valentine's Day. May God give you everything you wish for.…

Uterine/Endometrial Cancer

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