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Does your Onc Use CA125 as MMMT Marker?
Am a bit baffled. For nearly a year, my onc has said nothing to me about CA125. I always checked my blood test results and it looked as if they didn't always test for it. When they did (4-5 times), it was always less than 15. Since finishing all treatment in late August, NOBODY at my center has kept an eye on my blood…
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Shipping tape & hair removal
Sooo...anyone ever try this or am I the only one that may or may not have had brown shipping tape stuck all over my recently shaved head tonight. Just wondering ;o) Cindy
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Dental care before starting treatments
This topic came up recently. Today I read an article on this topic in CureToday.com Winter 2011 http://curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1795 Not quite sure how I came onto their mailing list but I think it was when I joined the discussion board and I did a survey. It is part of American…
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Anyone with UPSC 1A have chemo but NOT radiation? Or only external radiation?
I'm coming up to a crossroads and wanted to hear from my UPSC sisters. I was diagnosed IA in October after a robotic hysterectomy. Had de-bulking/staging surgery in November - 22 lymph nodes, omentum, tubes, ovaries, cervix, vaginal cuff, washings all were negative. Yeeeha! One gyn/onc told me I'd need nothing but…
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Whine time for me :(
Just got my PET/CT report from early this week (which, btw, my gyn-onc was not inclined to order as I was asymptomatic, but I insisted). Up until now all recurrences have been in lymph nodes only. Today's report shows a lesion in my liver and multiple nodules in lungs, some new enlarged lymph nodes, other nodes reduced in…
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Valentines for friends
"The cure for all ills and wrongs, the cares, the sorrows and the crimes of humanity, all lie in the one word 'love.' It is the divine vitality that everywhere produces and restores life." - by Lydia Maria Child All my friends in this journey Wish you a very Happy Valentine's Day. May God give you everything you wish for.…
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TIGERS DO BOUNCE!!!!!!!
Hi: I love how you find the time to keep in touch with everyone. Will update you about my daughter. Continue being healthy. Love June
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Chemo choices... opinions?
My gyn/onc told me there are 2 choices for my chemotherapy and he gave me his opinions for each therapy were. I wonder if there are similar opinions from your experiences? Either therapy requires a port which I am having put in tomorrow. (I'm a little freaked out about this but am reassured that it will not be too bad.)…
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Starting chemo on Feb 15
Had hysterectomy with ovaries and fallopian tubes removed. Pathology came back with clear cell endometrial adenocarcinoma with riht falopian tube involvement. Subsequent lymph node dissection had 1 lymph node out of 21 positive. Starting carbo taxol chemo..3 rounds followed by 6 weeks chemo and 3 more rounds of chemo. I am…
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Resolving Insulin Resistance and Reducing Cancer Risk
Insulin resistance is a precursor to type II diabetes. It is a result of a diet high in sugars and carbohydrates. Essentially, the cells become resistant to the insulin that carries glucose into them. The cells are protecting themselves from too much glucose. In response to the elevated glucose in the blood - since the…
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Need help with insomnia
I just had my first chemo last week, and I can't get a good nights sleep. I tried Ambinen last night lucky if I slept 1 hr. I've tried warm milk, went from couch to bed and back. Today is day 9 post. Chemo Any suggestions from someone'whos been there, I don't use anything caffeine and don't nap during the day either. I'd…
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Jiaogulan Tea - anyone heard of this?
Gynostemma pentaphyllum, also called jiaogulan (Chinese: 绞股蓝; pinyin: jiǎogǔlán, literally "twisting-vine orchid"[1]) is an herbaceous vine of the family Cucurbitaceae (cucumber or gourd family) indigenous to the southern reaches of China, northern Vietnam, southern Korea, and Japan. Jiaogulan is best known as an herbal…
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Endometrial Cancer??? (uterine lining is 31mm/3.1cm)
I am 41 y/o and have one dtr. I recently had a TVUS that showed my lining to be 31mm thick. I am scared that I might have endometrial cancer. I am scheduled for a hysteroscopy, d&c and will have my last remaining ovary removed [I had one removed in 2000 due to stage IIIc Ovarian cancer]. I am hoping the pathology report…
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malia's mom
Hi Ladies! Haven't posted in a long time. Here is some news on my mother. In nov. 2011, after radical surgery, chemo, and radiation, she was given the "cancer free" thumbs up. she made it through her treatments really well. great doctors, great treatments, and a great husband. she is and was very hopeful. she really…
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possible cancer?
hi. Was wondering if anyone has had a us show a prominent endometrium and echogenic foci that are in the lower uterine segment? the report states that these could be calcifications but uncertain of etiology.
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FURTHER DEBATES: PROBIOTICS AND ENZYMES
As I've often said--and try to remind myself--I'd like to gain as much nutritive benefit as I can from wise dietary choices rather than supplements; life's complicated enough without gulping down thirty capsules a day. But although we've gained empowering information about diet from many sources, especially all the posts…
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Osteoporosis and Prunes
I had a bone density scan 3 or 4 months after finishing chemo, July 201,and bingo! I have osteoporosis in my spinal and osteopenia in my hips and neck. Now, I am in the process of rebuilding bone density through exercises and diet. I just read online, as well as in Reader's Digest magazine, that prunes have been proven to…
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Overall Survival Research
I have been doing some reading on Uterine CA and in particular, recurrences. There does not seem to be much research available regarding radiation / chemotherapy vs no treatment. Does anyone have any suggestions where I can find information that would shoe comparisons of patients who did nothing vs patients who proceeded…
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Taxol, the good the bad and the rest.
The Good. If you read the entire article, you will understand that this information is information that will help you not only tolerate Taxol better, but have it be BOTH LESS TOXIC AND MORE EFFECTIVE. I have posted this article before and for some reason, most miss that this article conveys good news for those taking…
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Metastized Uterine Cancer
I had ULMS (leiomyosarcoma) in a fibroid removed via hysterectomy last Feb. 14. A node was found in my lung to be cancerous. Removed two weeks ago. I was put on an estrogen inhibitor called Arimidex, one a day. It is a hormone pill. My doctor said this is the treatment she would take for herself if she were in my position.…
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IP 6 Rice Bran Extract
Hello everyone, Just looking to see if anyone is taking IP 6 Rice Bran extract and would like to share their experience. Also, any info on brands or where you purchase it? As some background, a couple of links...there are many more references to IP 6 on the web, but I selected those without links to the product itself to…
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CT Angiogram showed multiple clots in lungs
My test today showed an increase in clots in the lungs since 3 weeks ago. It is hard to believe there can be multiple clots when I have not had any symptoms ... no pain, no shortness of breath or anything. Diane had mentioned her oxygen saturation was low when she was diagnosed with blood clots. My saturation level today…
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Insurance questions - anyone able to share their knowledge?
I never used to ask questions for fear of someone thinking I wasn't very smart. But now, after my cancer diagnosis... I've decided I'm always going to ask questions from now on and never assume I know the answer.. so here goes: My FMLA will be over at the end of February and my HR person (who is kind of a jerk) has…
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best medicare plan and supplements
With medicare eligibility coming in July, I would like your guidance on which plans are best for cancer patients. It gets expensive when procedure co-pays are $200 like my present BC/BS plan. I'm interested in your feedback. Thank you in advance. Mary Ann
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CAN we color our hair safely? IS there a safe product?
Amidst our panoply of serious concerns, let me lighten it up--our topics, not my hair)--with this question: Have any of you who was coloring your hair before chemo done serious research on whether there IS truly safe color? Before treatment, I wore my dark brown hair, nearly shoulder-length, pulled back most of the timel.…
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CAN CAREGIVERS GET ANY FINANCIAL HELP?
Since I am the only caregiver of my daughter, I was wondering if I can apply some where for financial assistance (if there is such a thing).
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MMMT survivors
Dear June, Jan and the other ladies who have posted about MMMT (uterine carcinosarcoma) I had my third check up today and all was fine. A physical exam - outside and inside - of the pelvis. Asked about Ca125 but it is not thought to be useful (I had it tested during chemo and it was never more than 16). Next check up is…
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Everyone has a suggestion to cure cancer.
Everyone I know has a suggestion to cure my cancer. The newest one is to go to a holistic health place in Austin, TX. Has anyone heard of this place? Optimum Health Institute of Austin. They also have another one in California. Here is the web site. http://www.optimumhealth.org/locations/ohi-austin.htm The classes are for…
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Leukine drug
Has anyone here had to have the daily injections of the drug Leukine, to boost WBC levels, prior to me starting chemo my white cell was 3.1 so to say I differently needed this drug, but the side effects are terrible, fatigue, loss of appetite, low grade fever, just to say a few, but it did bring my levels back to normal,…
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Dilator question
Okay not so much a question about the dilator, but a question about shrinkage. Today was the first day I was suppose to start using my moderately sized dilator. Well there was no way that thing was going in and it isn't even that big. I guess I could blame this on the radiation but I don't think so because I noticed that…