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Avastin?
I have uterine cancer. 2007 total hysterectomy and 28 radiations. Jan 2012 mets to lungs and abdomen, started once a month chemo with carboplatin and taxol, May mets to rib bone and spreading, affecting nerve bundle in back shoulder, 19 radiations, July 2 mets in brain, gamma knife and good results, newest CT shows new…
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Stage 1B recurrence (not me)
With so much discussion about treatment options going on, I want to tell you about my Thursday. I've stated more than a few times that I wonder just how "rare" UPSC is, since in my little world, in the past 2 1/2 years, I have personally known 3 women with it. My cancer was the garden variety, endometrial adenocarcinoma. I…
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New here, 4 1/2 years from diagnosis
Hi all! I'm new to discussion about this. I am 4 1/2 years from diagnosis, and am so angry at this cancer! I'm having long-term effects of treatment (neuropathy in my feet, intestinal problems, tendon weakening, anemia, kidney issues, and let's not even get into my sex life), and yes I'm glad I'm here but...DANG! (Or a…
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Toothache and sever pain
I need some advice and help. I have an infected tooth (upper left 1st molar) that I need to go to the dentist and have them take care of it. First I need to stop the pain that is driving me crazy and clear up the infection. It is the root that is infected as it is in my upper jaw line and it is tender to touch and swollen.…
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Radiotherapy or not?
Hi I was diagnosed with USPC 1a in January this year and had a hysterectomy in March, following a PET scan they also discovered I had lung cancer, the tumour was very small so that was removed by surgery in May this year. Thankfully no further treatment is needed. I am having chemo carboplatin & paclitaxel at the moment,…
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Just started chemo, CA-125 rising?
Hello everybody, I've been reading all the new posts and cheering for the good news and hoping and praying for the best for those who are having tougher times. Quick question about CA-125? I now have 1 chemo session under my belt, and 1 week until session 2. Actually feeling much better, ascites has not come back, so…
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Ascites? (from Nancy who asked about metastic endometrial stats)
Hi ladies, Well, I had my first chemo round and so far am doing okay - except that I've developed ascites (excess fluid in the peritoneum) to the point where my legs and feet are quite swollen. The dr. was going to just wait for chemo to kick in, but when he saw me last Wed before 1st chemo he changed his mind and ordered…
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Update with great news!
I have unbelievable news. 6 weeks ago, I had a scan done that showed a mass on my lung and a lymph node that lit up. My Onc/Gyn said the cancer was back and I needed to go to a thoracic surgeon to get a biopsy. The Thoracic Dr took a look and said wait 3 weeks and rescan... there was a chance this might be an infection. I…
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Body scan
A friend who had ovarian cancer had a complete body scan to rule out cancer elsewhere. Can we have this done?
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pakb56
Have I missed her post? Haven't heard how she is doing. Anyone heard from pakb56?
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Lymph Node Question - Ultrasound today
Hi All I had an ultrasound today - 9 months after the one that found 2 "masses". As background - I had stage 1 grade 2 uterine cancer in Oct 2010. Had a complete hysterectomy and have had spotting for the past year off and on. The cancer clinic did an ultrasound and found nothing so I went to my family DR and had him order…
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Mixed clear cell and endometriod endometrial cancer -28 years old
Hi all, I joined here last year but only posted once. I am looking for support. I am 28, married, and live in NJ. I have no children....sadly I have mixed Clear cell and endometrioid endometrial cancer. I have recently been staged as 3c with only 1 positive node of 27. Last September I was diagnosed with endometrial…
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Delayed reaction
I am waking up at night crying, finally feeling the fact that it is cancer, and especially, just now, experiencing the awful pain and fear and weakness post-surgery. Somehow, I didn't then, as if I were half-conscious (maybe it was all the drugs?) Just wondering if this is a typical thing. I am now in shock over what I…
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I am back
I don't want anyone to think I am just coming and going. I have again not been able to log in. An administrator has tried again to fix it - today I can post. If I disappear again, it's because I just can't log in. Thinking of you all and thanking you again for support, Turtle
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Discrimination against uterine cancer
I have UPSC that acts like ovarian and is hard to treat. I have experienced denials from insurance companies for PET scans and chemo based on my uterine cancer diagnosis. These same tests and drugs would be covered if I had ovarian. What's with that discrimination??? Seems like we are second class citizens. Why is ovarian…
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Small lung nodules
I had a PET Scan in June, and everything went well. They found a couple of nodules in my left lung, so the Dr. recommended a CT 3 months later. Well, last week it was 3 months later. I had the CT Scan, and now instead of 2 I have 12 small nodules. The 2 old ones did not change in size. The radiologist suggested that the…
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New.
Good morning everyone. I'm new here so I'm not sure where to start. I guess when it all started. When I was 23, in 2010, I was pregnant with my 3rd child. I had a pap. My paps had been abnormal for a while, but this time it was different. A colposcopy and biopsy confirmed carcinoma in situ. I was told not to worry and my…
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Doxil
I have been diagnosed with stage 4 endometrial ca, metastasis to liver, lung and an enlarged lymph node. Went through 6 rounds of Taxol and Carboplatin over 4 months, and then in trial for 2 months, but Ca is back. Dr. wanted to start me on Doxil, and tried 1st dose today, but got a severe infusion reaction..extreme…
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Just saw Dr and now have hospice consult
I am Stage 4 Endo Ca, I have been on 5 chemo's and unfortunately none have worked. Needless to say, I am very upset, but strangely relieved I will not go thru the living hell from chemo and afterwards. Any words of encouragement or success stories is appreciated. Thank you
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serous endometrial
has anyone had good response to another chemotherapy after flunking Taxol/Carboplatin? Am bran new to this group please dont tell me what a terrible cancer this is just any POSITIVE info....like what are chemo options other than above thanks, Beila
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KEEP POSITIVE!
Hello everyone First time here. Reading everyone's post and look's as though we are all in the same boat. Similar diagnosis and treatments as well. I will have my consultation on Thursday 9/27. Anxious to find out what will be the treatment. Try not to expect the worse. Take care everyone.
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Result of cosultation today
I had an appointment today with the oncologist at Dartmouth. I am scheduled for hysterectomy next Tuesday, and I am terrified. It will be my first surgery. They will try non-invasive first, then may have to do abdominal if they find it's spread. They also picked up some irregular heartbeats. Dartmouth is a drive away, and…
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My new plan
Hi ladies. Well I gave alternative treatment a great shot and was very compliant with that for nearly 2 months. But... Today I got results of blood work and scan and learned that cancer is progressing in lymph system from clavicle down. My CA125 jumped another 70 points (about 50% in 5 wks) so all the dieting did not stop…
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New here, 4 1/2 years from diagnosis
Hi all! I'm new to discussion about this. I am 4 1/2 years from diagnosis, and am so angry at this cancer! I'm having long-term effects of treatment (neuropathy in my feet, intestinal problems, tendon weakening, anemia, kidney issues, and let's not even get into my sex life), and yes I'm glad I'm here but...DANG! (Or a…
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Newly diagnosed UPSC...Looking for hope.
September 4, 2011 was my last chemo treatment for breast cancer. On Spetember 6, 2012 I learned I had uterine cancer (UPSC). I am scared and had a very hard time telling my family. I am scheduled for a hysterectomy on October 10th. Despite my doctor's orders, I have been looking on the internet. Based on what I've read,…
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Eyebrows and lashes
Ok no one laugh at me....do your eyebrows fall out as well as lashes on carbo and taxol? i just finished my 1st cycle 8 days ago. If so does it happen to everyone? I am having a bit of a panic attack here so any help is appreciated!
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endometrial thickening
I have been to my gyn and have 25 mm thick endometrium and also have fibroids. I am 53 yrs and scared it might be cancer. I am going for a biopsy on the 4th of Oct. My gyn thinks it might be hyperplasia. Is this always cancer. I believe I am just entering menapause.
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Anyone with MMMT try Cancer Centers of America?
I was diagnosed with MMMT 1A in June of 2011 at 45 years old - complete hystorectomy followed by chemo and radiation. I only did 2 rounds of chemo because of extreme negative side effects - lots of blood transfusions etc. I was then NED until 7/2012 when I had extreme back pain and could not walk. Found I had a tumor the…
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Any good stats for metastatic endometriod cancer?
Hello all, I am new to the network, although I've reading the posts for a few weeks now. My story - I was diagnosed Sept 2010 (age 60) with Stage 1, Grade 3 endometriod adenocarcinoma, had a TAH and 3 rounds of brachytherapy (internal radiation.) Faithfully kept all check up with appts/Pap smears. Dr. kept telling me "if…
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Metastasis to spine?
Hello everyone. I stumbled across this site and you all seem to be very helpful and knowledgeable, so I wondered if I might find an answer here. My Mom was diagnosed May 2012 with stage II grade 3 adenocarcinoma, and underwent a hysterectomy. She is currently receiving adjuvant RT. No evidence of cancer was found outside…