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EAST COAST PRAYERS
I am praying for all the ladies and their family up on the East Coast & that everyone is afe from Sandy. trisha
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CA 125 continues to rise.........but more slowly
Went to the doctor and my CA 125 rose in the last 5 weeks. Last time it was 163. This time it is 252. I was going to be happy if it was below 400. So I was very happy. The marker has always been a good indicator for me the the cancer is growing. At least this time it is raising much more slowly. Don't know if it is the…
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Canadian Healthcare
As both a patient and a doctor in Toronto, I am appalled at the negative propaganda Janh in Ontario is expressing about the healthcare system that most Canadians cherish. I worked as a doctor for 20 years in the USA, so I am well aware of comparisons of the two countries. I have no idea what she is talking about!!! We…
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new short film on cancer - looking for stories for next film
I am from the colon cancer group but want to post this : PSA on Early Detection for colon cancer ... http://www.youtube.com/watch?v=86jEIEBLPNM&feature=player_embedded the next one will be on diet & alternative therapy during remission. If anyone has a story to share, please message me. I want to keep making these videos…
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Best Mom in the world Newly Diagnosed with carcinosarcoma of the uterus ( MMMT)
My Mom is 70 years old and perfectly healthy until about a month ago. She experienced what she thought was the start of a kidney infection then progressed to sharp stabbing pains in her left side, lower abdomen and kidney area. After a urinalysis and then work up including CT of the abdomen a week or 2 later, her internist…
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MMMT Stage 1c
My mother who is 82 had a hysterectomy yesterday - we thought she had upsc going into the surgery but we now know that it is malignant mixed mullerian tumor stage 1c according to surgeon yesterday but I have heard that the staging may change after pathology comes back. There was no evidence of cancer outside the utereus…
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Continue or discontinue chemotherapy
I was diagnosed with Stage III uterine cancer and had a complete hysterectomy with only one lymph node affected. I had three chemotherapy treatments, each three weeks apart with a neulasta shot the day after each. Have now had 5 weeks/5 times/week of radiation and three bachytherapy radiation treatments and did well with…
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thrisha55
Please message me about how your appointment went Helen
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Avastin and medicaire
Does anyone happen to know if Medicare will cover Avastin for USPC? Beila
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Surgery completed 9/26 with good news
My robotic hysterectemy was done on 9/26 and I had very quick recovery. My gyn/onc told me on the day of surgery that the cancer was very superficial in the uterus but he still removed a few pelvic lymph nodes for testing. I had my follow up appt with him on Tuesday and he said the path report on the nodes was negative for…
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USPC chemo
NEW TO THIS Kind of discouraging Not one response to my last post!! Question is Chemo options to USPC when Carbo/Taxol have failed hope someone responds in some way!!! All alone here! Beila
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Pure Terror just need to let it out
Hi its been a long time since I have been here. My surgery was just a little over 2 years ago. Did the chemo and radiation for uspc and then after i lost my medical coverage I stopped going to the Drs. Last week after relations with my husband I found blood. Well this moring it happened again and now I am in a panic. My…
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My mom was just diagnosed with uterine cancer stage III with mets to her lymph
We are all so shocked and devastated after my 75 year old mother went through a DaVinci hysterectomy with ovary and lymph removal for stage one endometrial cancer only to find out she is actually stage Three. The doc offered her inclusion in a clinical trial but we want to explore al treatment options before deciding. If…
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Doctor said "no suspicious characters" when she did my hysteroscopy
Anybody out there have her doctor say the uterus looks fine, only to find out differently when the pathology reports came? Also, I've got a complex lesion on my right ovary, but she hasn't said a word about it and I'm wondering if she will. I'm two years post-menopause and started bleeding three weeks ago, which prompted…
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lost my mum/how to help?
on October 5th my beautiful and brilliant mum passed away at 58 years old.. just 4 months after her diagnosis of stage IV poorly differentiated endometrial cancer. I wish all the best for you ladies and hope you have much better results. We are heartbroken. She left behind a devastated husband and three children. Many…
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Doctor said "no suspicious characters" when she did my hysteroscopy
Anybody out there have her doctor say the uterus looks fine, only to find out differently when the pathology reports came? Also, I've got a comples lesion on my right ovary, but she hasn't said a word about it and I'm wondering if she will. I'm two years post-menopause and started bleeding three weeks ago, which prompted…
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A bit worried - and is this menopause?
Tomorrow I go to Dartmouth. The oncologist they they'd found something they wanted to look at. Also - Is this menopause - periods of feeling sooo sad, then angry, then irritable (for no reason), depression and anxiety, headaches? I hope everyone has a good day today. Keeping positive is work sometimes, isn't it?
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125cacounts gone to 1000, Can the counts ever come down?
My best friend was diagnosed with stage 4 uterine cancer in June of 2011. She had a total hysterectomy, removal of some lymph nodes. They cut out a little spot on her rectum and also a little spot somewhere behind the uterus. She said they also laid out her intestines on the table and examined everything. I believe this is…
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Wish
Wish we all had a buzzer in our bodies that was hard-wired to our brain, so that every time we had an ache, pain, fever, cough,ect. the darn buzzer would go off that tells our brains" No, Dummy, it's NOT cancer you just stumped your little toe on the bed post! Damn cancer debrajo
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UPSC - misdiagnosed peri menopause after bleeding more than a year
Hello Guys, Have just been diagnosed with this quirky cancer after trying to get some attention from the medical profession for over a year. I stopped bleeding about 2 years ago and then started again after about 6 months with bad pain in my pelvis and down my legs. I was told by doctor after doctor not to worry I would be…
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Metformin
I just read that Metformin has been seen to slow down the progress of certain cancers, including endometrial cancer. Has anyone had any experience with this. Metformin is a drug that has been used to control insulin with diabetics..
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wondering...
If any one has heard from Mosie and Tiggers Do Bounce. Just wanted to know if you two and pakb are ok. Best debrajo
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reviving an old mantra
During the 1980s I used to work in New York during the AIDS epidemic. There was a sort of Mantra: "Stay Alive for the Cure" which meant, if you have HIV, try to have a healthy lifestyle, get any infections treated, try to still be alive in a couple of years, because by then there will be a cure. Well you know what? Against…
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Fatigue
Hi everyone, I just responded to Golda who is dealing with fatigue like I am and thought I'd start this thread. I've had treatment in past but not this fatigue problem. I'm on doxil chemo now. A week after first treatment I returned to my walking regime (2 miles) last week but ended up on the couch the rest of the day.…
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Doxil and Avastin
Has anyone out there had Doxil and Avastin for USPC? This was recommended to me by a Gyn/Onc from NYU I'm the one who flunked initial chemo of Taxol/Carbo Feel fine except for post-chemo fatigue Beila
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Now officially three months into remission :)
Dear Sisters, A week ago I had another CT scan (chest, abdomen, pelvis), CA-125 test, and pelvic exam. Everything is clear again/still, and my CA-125 is lower than ever (6.8). Whoo-hoo! This seems real, now, as if my NED report from last time could have been a fluke. My oncologist is delighted, and though she wants me to…
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MRI - input requested
The ultrasound showed the mass that was seen in January is still there. The good news is only 1 is there - in January there were 2. More good news - it hasn't grown. My family Dr is finally listening and sending me for an MRI. I have never had one before. I am very overweight and worried I won't fit in the machine. Does…
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UPSC surviving so far
Hello, I am new and not very versed in this kind of communication. However, I would like to have hear what other ladies with UPSC are doing about this nasty little invader. I was diagnosed in July 2010 with UPSC Stage IIIC. Total HYS in fall 2010. Second lymph node surgery in Jan 2012. So far two chemos and 2 radiation…
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UPSC diagnosed July 2010 - 2 surgeries, 2 chemos 2 radiations
Hello, Anyone out there with UPSC spread to liver? My latest CT scan shows this has happened. onc/gyn nurse says I can have no more radiation and no more Carbo/Taxol. Maxed out on those. I am healthy otherwise except for the cumulative side effects of the 2 surgeries, 2 chemos, and 2 radiations. All this in the past two…
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my new treatment
I have a PET/CT scheduled Wednesday Sept. 26th and lymph node sampling on October 10th in Dallas. Then at least I will have a stage and treatment if needed. Helen