Connection between TT and neuropathy?

ceanna Member Posts: 11

I had a TT in July 2010 and RAI in August 2010.  Soon after I started having peripheral neuropathy in feet and more recently in hands.  According to doctors and much testing, it is non-diabetic neuropathy without cause.  Has anyone else experienced neuropathy following TT.  My TSH levels are good, although I also experience fatigue.  Is there something I need to explore or does anyone have any suggestions to overcome this increasingly painful condition?


  • Baldy
    Baldy Member Posts: 243

    I've been on this site for over two years now and I don't remember anyone saying they have nerve pain in their extremities.  My memory is fallible though.

    However, there are a number of people who, for whatever reason, have reported having various troubles with the standard thyroid replacement hormone (TRH) / levothyroxine (or whatever brand name you may be taking).  You may want to try supplementing your levo, which is a T4 TRH, with a T3 TRH as well.  And/or, you may want to try replacing the synthetic TRHs with the older dessicated bovine/porcine type.

    I'm guessing your doctor/endocrinologist is telling you the timing is coincidental?  I would tell him there is no such thing as coincidence and to listen to your symptoms and forget the TSH levels.  Unfortunately many doctors ignore the patient if the lab work says the patient is OK.