metastatic melanoma stage IV

Bocajodi
Bocajodi Member Posts: 1
edited March 2014 in Rare and Other Cancers #1
I was diagnosed in November 2010 and now have had my second round of chemo. I am waiting for approval for use of "ipi" the new drug not yet approved. I have to fail the recommended chemo treatment before they will give it to me. So last (3rd) round will be given on 1/17, wait 3 weeks, have PETscan and then find out if chemo is working.

Comments

  • Hondo
    Hondo Member Posts: 6,636 Member
    #2
    Hi Bocajodi
    Welcome to CSN, this is a great place to get help and answers if you need them. I hope the chemo works for you, get well and keep posting.

    All the best to you and good luck on the up-coming PET scans
    Hondo
  • admiro3
    admiro3 Member Posts: 1
    #3
    You can get Ipi now
    You don't have to wait for ipi to be approved. You can get it on compassionate use now if you fail the chemo. Ipi won't be approved before the Spring, probably April. Here is the link for the trial access. Once in the trial you get it for free.
    http://clinicaltrials.gov/ct2/show/NCT00495066?term=ipilimumab+expanded+access&rank=1

    You might also want to check and see if you have the braf mutation. There are braf drugs by Roche and GSK that are in trial stage in many locations and having a very good response.

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