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Getting Ready for 'post surgery'
My husband will have his Da Vinci surgery in 2 weeks. I know I should have incontience pads (or diposable underwear- he's still deciding) on hand. Other things I've read suggest having alcohol swabs, good hand wipes and loose fitting pants for him. Are there other things I should 'stock up' on?
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Kanglaite Gelcaps
I am back on this discussion board! My PSA keeps rising after RP(Jan 2005) and RT(finished Dec 2009). PSA now is 0.7 Anyone familiar with use of Kanglaite gelcaps in controlling rise in PSA after RP and RT? Please post your comments. Thanks.
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advice on which way to go - oncologist or urologist? HT length?
I posted earlier this month about my friend. He is 81 years old and has stage 4 prostate cancer, gleason score 8 and many, many bone mets. We actually found the cancer due to his collapse from renal failure - the prostate has blocked his urethea tubes and he had to have bilateral nephrostomy tubes inserted. He was in the…
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Salvestrol Platinum
After looking into Salvestrol Platinum, is this the drug to replace drugs like Zytiga? Can not find a list of side effect, but all reports say its the next fight against advanced metastatic castrate resistant prostate cancer!!! Does anybody know about this drug? I think my days with Zytiga are at the in of it days. Maybe…
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Second opinion
Listen up guys, My PSA doubled twice over 3 years to a high of 4.2 that triggered a biopsy with a Gleason OF 6. Kongo, Hopeful and Opt told me to get a second opinion. Well, John Hopkins came back with, prostatic intraepithelial neoplasia (abbreviated as PIN)and they considered it to be a pre-malignancy, or carcinoma in…
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Post IMRT/BT
53 years of age. PSA 9.2 Gleason 3+4. 60% of 12 cores positive in biopsy. DRI can feel lumps on left side of prostate. All this diagnosed in April 2011. Had IMRT in Aug-Oct 2011, then BT in Nov 2011. Recent post exam on 5 March 2012 - everything feels good with DRE. Still some slight reduction in flow but Flowmax helping.…
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Colonoscopy wait time
Does anyone have a suggestion or knowledge as to the minimum time to wait for a routine colonoscopy following IMRT/BT? My prostate treatments were in the later part of 2011 and I was due for a colonoscopy in January 2012. I decided to postpone it so soon after treatments. Will one year be enough of a time lag to feel safe…
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Has anybody heard of this?
I had an RP almost 2 years ago and everthing is going good. I am still doing zero's. In a totally unrelated issue I recently had an ultrasound of my kidneys which also included an ultrasound of the bladder. When I picked up the report there is an item that says they found "debris within the bladder". What does this mean?…
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Bad News :-(
Well, I just got my latest PSA score and it went up again to 2.12. Not good. That's 3 increases in a row 1.55, 1.69 and 2.12 between March and Sept 2012, which is an indicator of treatment failure or cancer recurrence by at least one standard (1997 ASTRO). The lowest score I've ever gotten following treatment in Sept 2010…
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National Prostate Cancer Awareness Month
With September 1 marking the beginning of National Prostate Awareness Month, I thought it would be a good idea to to remind those close to me to have their PSA checked. A baby blue ribbon on the garage door got the neighbors asking questions and led into asking, "Had your PSA check lately?". Ask your neighbor, son, father,…
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New trials
Not sure if anyone saw the article from two researchers in CA. They are working with a part of marijuana, will not get you high, that they have proved to kill cancer cells in petri dishes and animals. According ro their results this portion of marijuana killed the cancer and the cell returned to normal. Might be amazing.…
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TURP and IMRT
I recently posted how my oncologist did not answer any of my questions but simply "brushed me off" So I am posting them here. Why did I not receive a higher dose of radiation i.e 84 gy instead of 69gy when the higher dose is supposed to produce better long term results. I had the latest Novalis shaped beam IMRT which can…
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PSA CONCERN
TODAY I had an appointment with my urologist. My PSA is now down to 0.28, it was 0.30 last month.I asked if there was a chance of cure---the PA immediately said NO--that my PSA should be down to zero by now---after 1 full of year of hormone shots (FIRMAGON) & the radiation protocol I chose. This has been bothering me all…
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36 months of hormone treatments
I was diagnosed with a Gleason 9 stage T3b in December of 2009 and had the Davinci Surgery followed up with 45 Radiation treatments. Last month (August) I was given my last three month hormone shot which will bring me to a total of 36 months on hormones. I also have been taking Biclutimide every day for the past year at…
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PSA Rising after radical prostrate removal
My husband had total prostrate removal surgery 10 yrs. ago. In the last year his PSA has been rising again. Six months ago it was 2.1 and today it was 4.0 The Dr. said he expects it to be 5.0 within the next 6 months and he will then have to have surgery again.
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PSA 3.6 gleason score 5
My husband has had a prostatectomy his original PSA was only 3.4 it rose to 3.6 due to his age his GP suggested he have a physical with a urologist,he had 24 biopsies and all had huge amounts of cells in every one. He had a total prostatectomy almost 3 years ago, he was asked to join a salvage group on a clinical trial…
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Incontinence Questions
I am 4 weeks past robotic radical prostatectomy and 2.5 weeks after catheter removal. I do not have any urge to urinate. The only urine stream I get is after lying down and then the stream is only 1-2 seconds in duration. However, I have constant leakage throughout the day/night and must change pads every 30-45 minutes.…
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new member, dad just diagnosed
Hi. My dad was just diagnosed with advanced metasticized prostate cancer. He had an MRI for disc issues and they found "spots" on his spine, which turned out to be cancer. Followed by a CT Scan, a PET scan, and a PSA test. The scans and tests confirmed prostate cancer that had spread to one lymph node and his spine, hip…
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1 year ago today
! year ago today I went to the doctor because of a jump in PSA and yesterday I went back for a check up. PSA undetectable and DRE clean said come back in 6 months. Feeling good and glad to be alive.
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No PSA Tests, Advanced Cancer Triples
http://www.medpagetoday.com/HematologyOncology/ProstateCancer/33962 Study: No PSA Tests, Advanced Cancer Triples By Charles Bankhead, Staff Writer, MedPage Today Published: July 30, 2012 Reviewed by Robert Jasmer, MD; Associate Clinical Professor of Medicine, University of California, San Francisco and Dorothy Caputo, MA,…
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Watchful Waiting/Active Sur. Article
A link to an article on WW/AS. The article did not add a lot of new information on the subject; however, I did find the discussions that followed very interesting. http://well.blogs.nytimes.com/2012/07/23/choosing-watchful-waiting-for-prostate-cancer/
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Gleason 9 PSA 26 day 1
Gleason 9 PSA 26 day 1 Submitted by fightn9er on Fri, 08/17/2012 - 6:28pm Hi Im Mike (53yrs) and this is day 1 of my fight for survival. My biopsy was 3 days ago and the results came in yesterday. Yep Im a 9er (4+5). The DR. wants to wait 6-8 week to let my prostate calm down before "the plan". Had 12 cores taken. All were…
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Zytita and heart conditions
The MD Anderson doctor in first of July, told me my Metastatic ilac node's had improved and that I needed to get heart check. I had told them of more chest pains, but did not think it was heart. So this last Friday I went to Heart place in Richardson Texas and sure enough he said my heart sound great, but with the…
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Proton PSA Question
A good friend of mine has completed Proton Therapy at Loma Linda. I do not know his 'stats' but his wife shared on facebook that at 6 months post treatment his PSA was 1. I know that different treatment options have different results. Does anyone know if 1 is a good indication following Proton? Of course there is the…
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Dr. Strum answers to some PCa questions
The following link was posted on another site. I thought that Dr. Strum's answers may be of interest to guys who use this site. https://www.dropbox.com/sh/mai9nr8w62zwaeu/xiHO-btSTR/DB02013
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PSA , HT and Testosterone concern
IMRT + HT Jan 2012 I managed to find a lab that could measure my testosterone as Kongo suggested and it was 198 ng/dl. The lab also measured my PSA and it was 0.564 up from 0.2, 2 1/2 months ago. It is nearly 9 months since I had my first (and last) HT three month injection. I would guess that this Testosterone level…
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Prostate Cancer Pony Express - Rally in DC on 9/9/12
We rode to DC and got the American Flag raised over the Captital in honor of Prostate Cancer survivors and in memory of its victims. Then rode over to the White House for a quick photo in front. (Just uploaded the one phot so far) http://2012pcpe.shutterfly.com/
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Biopsy Slides
I have an appointment with an Oncologist for a second opinion on my diagnosis. He wants' to review my biopsy slides. I am picking them up from my urologist this week for my appointment next week. Does anyone know how I will be receiving these slides? Do I have to keep them refrigerated? My Oncologist is at the Cancer…
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Gleason score 8 - side effects for hormonal therapy
Hi all - I posted the other day about my friend who has been diagnosed with stage 4 prostate cancer. After inserting the naphrostomy tubes into his kidneys, the kidney function has stablized. We have officially been given his gleason score of 8 and he has bone mets on his foot, leg, hip, pelvis, rib and skull. His bladder…
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Please help me to get Xtandi (MDV3100)
This new hormonal medicine had been approved by the FDA on the 31 of August 2012. The Medivation (company that developed it) offers financial assistance for Xtandi to American residents. I am not an American and don't have the right to this assistance. May be some American patient would help me buy it? Name: Felix Shmidel…