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I'm a newbie here
I received my diagnosis last month (on my birthday of all days). PSA = 12, Gleason = 6 in 1 of 12 biopsy samples. The urologist said that there is an 8mm tumor completely contained within the prostate. He recommended three alternative treatments: 1. Robot Assisted Laproscopic Prostatectomy (total removal of the prostate).…
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Axumin scans and expertise
PET/CT scans using Axumin tracer, approved by fda last year and newly approved by medicare in some areas, are starting to be done at different locations. Its supposed to be more sensitive/specific than NaF and other older scans, and comparable I think to Choline or Acetate (lots of studies and info on the web) and can…
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researchers found new pathway that regulates spread of prostate Cancer
Just read this article and found it very interesting and promising. http://www.news-medical.net/news/20170126/Adelaide-researchers-uncover-new-pathway-that-regulates-spread-of-prostate-cancer.aspx Hope others find this just as interesting.
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Fluctuating PSA
Fiive years ago a PSA test revealed elevated PSA of 11. Within a month or two it went up t0 18 and then 23. I underwent two biopsies and one MRI. The biopsies were negative for cancer but did shos acute prostatitis. The MRI showed possible areas of concern but nothing definite. In 2013 my PSA started declining and got as…
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Coming to grips
Had radiography images done today, waiting on those results. I've heard they're are 3 things to consider. Psa level, gleason score, positive cores out of all cores taken. Well my prognosis doesn't look good. Psa in 40s, probably 50s now. 12 positive cores out of 12 at a 100%. All is gleason 9 score. For those who have…
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TESTOSTERONE HELP
Hello, a brief summary on my husband's situation: Age 66. August 2016: PSA 7.5 Two weeks later: 8.2 Saw urologist: after exam (enlarged prostate), ultrasound (suspicious areas), biopsy: 5 of 12 spots tested: Gleason score of 3+3. Stopped testosterone shots in August (was taking them for hypogonadism). Agreed on the 'active…
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Hopefully
Been doing alternative treatment for 3 weeks, got psa test back and it's dropped 8 points, that's good news! Oncologist said it wouldn't go down,but it definitely has. I have holistic dr that makes me pills and drinks,strick diet,cbd oil,ect. I'm a gleason 9, 12 of 12 cores positive at 100%. Gonna get psa checked again in…
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husband with advanced prostate cancer refuses treatment after doctors told him his sentence
My husband has been diagnosed with cancer of the prostate spreading through his bones, groin, legs, swollen testicle ,swollen leg and foot on right side, on hydrocodene and metadone. He recently was on morphine because doctors tod him he had 3 to 6 months to live. He was alergic to the morphine, and it made him itch, he…
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Mistaken Diagnosis
I had the RP in September 2004 after it was confirme I had prostate cancer. I chose this route due to fact I was only 41 years old and all indications were the cancer should not have spread. Post surgery pathology verified the cancer had not spread to the surrounding reagions and the tumor was confined to one lobe.(gleason…
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Myelodysplasia syndome and prostate cancer together
My husband has both prostate cancer and myelodysplasia syndrome. MDP for 5 years, prostate cancer , into his second year. Is anyone experiencing problems with treatment of these 2 cancers?
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Quantifying severe urinary complications after radical prostatectomy
Quantifying severe urinary complications after radical prostatectomy: the development and validation of a surgical performance indicator using hospital administrative data. To develop and validate a surgical performance indicator based on severe urinary complications that require an intervention within two years after…
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Penile shrinkage and Gynochomastia
I just received my prescription for Bicalutamide which is going to be coupled with Trelstar for six months of ADT coupled with 2 months of external beam radiation to my prostatic fossa and associated lymph nodes as a salvage treatment post prostatectomy 8/16 for a biochemical recurrence PSAs .29, .26, .30, .41, .36, .35,…
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Reoccurrence after High Dose Rate Brachytherapy
I was treated with two 14 gray fractions of High Dose rate Brachytherapy in Feb and March of 2013. Since then I have had a Stem Cell Transplant for Myelodysplastic Syndromes (MDS). My PSA levels have been increasing lately (see values below). The first one listed below was my nadir. Has anyone had any experience with…
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I want an orchidectomy...
I want an orchidectomy and have asked my doc -'are the side effects of an orchidectomy the same as with lupron?' he gives me his stare until he gets up and leaves. He is a great doc but wants only one in the room at a time . So I ask yall are the side effects of an orchidectomy the same as with lupron? meaning does one…
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Canibis Oil Legal vs. Illegal? THC oils or CBD oil?
Hi all, I am looking into adding Canibis Oil into my killing prostate cancer lifestyle. Does anyone know any details on how to use canibis oil to kill cancers? I have seen different stories as to Mary Janes ability to activate the destruction of cancer cells.
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I can't figure this one out
My doctor prescribes for me to take 4 weeks of Cipro because I had a high PSA at 5.1 and then come back for a recheck. I take 2 weeks and had to go back to pharmacy today to get the remaining 2 weeks of pills because for some reason they could only give me half at a time; should have been a red flag, and they said;…
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testosterone and PCA? Balance between test/estrogen?
Recently there has been a paper out of J. Hopkins about Bipolar Testosterone therapy in folks with metastatic Pca. The study had excellent success with the reported cure of one participant and the decrease in PSA in many. Also this study from the BJU Endogenous and exogenous testosterone and the risk of prostate cancer and…
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Catheter and staples removed
Hey all, Went and got my Catheter out and also the staples. the staples came out very uninventful but the Nurse had a little bit of a struggle with the Catheter and when it did come out it felt like 5 or 6 balloons came with it and a gush of Urine. but nothing compared to when it was in. Now just have to see how long it…
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Willing to try
Starting alternative treatments Thursday. Conventional medicine doesn't make as much sense to me at this time, they're treatment options are , put alot of poison in your body. I don't know if my route will work, as I have a very aggressive gleason 9. Wish me luck!
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Good oncologist near Chicago for targeted Hormone Therapy?
Is anyone aware of a good oncologist with a focus on the various hormone therapies and combinations thereof, within driving distance from Chicago? I find Dr. Charles Myers' work hopeful and wondering if there is someone in the Midwest with that type of knowledge. (Father is 83, G4+4, PSA 56 on finesteride and several bone…
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Dietary question regarding prostate problems
I have been researching and reading everything regarding prostate problems while I am waiting for a second PSA test. Does anyone here find it to be truthful about the red meat and dairy consumption contributing to an increase to potentially developing prostate cancer? The reason I ask is that my diet primarily consists of…
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5 years since surgery
Been 5 years since I had surgery in November 2011 (was 49). PSA under .1 so really do not care what is happening below that number. Feel good. However, worst side effect is my back has bothered me since surgery. Even with robotic the core was cut weaking L4 and L5. Outside of that doing well. Been long time since I have…
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Just sayiing hello
New member and at this point am not sure waht I have, it has been a long road with a lot of worry and frustration but I hope the questions are answered soon. I will add a little bit about myself and what has happened so far. About 15 months ago is when this all started and it has been a roller coaster of emotion. I just…
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New and brachytherapy
hi! I'm new on this board. I am on the uterine board myself, but now my husband has prostate cancer. He has had a month of hormone treatments and one luprone shot. Wednesday he will have brachytherapy. We have been shown all that it intails and doesn't look like a fun day. He is having the type that will just take place…
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alternative therapy
I am 54 years old and was diagnosed with prostate cancer about three weeks ago. My psa was 16. 11 out of 12 samples returned with a Gleason score of 3+3 or 3+4. Getting other tests done...CT, X-Ray, Nuclear Bone scan. The last thing i want is to have surgery. Has anyone had any luck with alternative treatments. I've read…
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Too young
I can't help but notice, I'm the youngest on here by far. Can't help but think if I was 70-80 this would be alot easier. I'm only 39 years old, just found out what a prostate was, a couple months ago.
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Big pharma
Just recently being diagnosed with very aggressive pca at age 39, I've been absorbing as much info as possible so I can make the best decisions I can. So far I've realized there is no money in the cure, money is in treatments, that make you sicker,ruin your quality of life and even cause more cancer. Anyone that thinks…
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A new study . . .
A new 10 year study conducted in England reports that 99% of the men who were randomly assigned surgery, radiation and active survellience in order to "treat" their early stage prostate cancer survived a mediam (not average) of 10 years beyond diagnosis. However, it is also noted that men who were assigned AS experienced a…
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Side effects years after Salvage external radiation.
Here is a short Bio of my PC history. I was Dxed with PC in 1990, had my RP June of 1990, next was salvage radiation in 2005. I went from then to April 2015 when my PC started spreading. Necular boan scans show it had spread to Left Rib, Prostate Bed, and Bladder. I went on Lupron for 9 months, but have been off of it now.…
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Surgical Castration
I am on the road to surgical castration. After surgery I will be given 50mg of Casodex to take daily. The worst part is that I may have a tendency to gain weight (Lupron tends to cause people to gain weight too.) If anyone has had surgical castration please write about you side effects. I am scheduled for surgery in early…