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Prostate Cancer

Rising and unstable PSA post RT
I am a 60 year old African American male diagnosed with prostate cancer (PSA 8.5) in October of 2002. Had RT on January 21, 2003. Gleason score was 6 (3+ 3), all margins were clear but there was Perineural invasion (PNI). My RT side effects were brief and minimal. My PSAs were >0.1 for almost 7 years. Then rose to 0.2 in…
PSA Reoccurrence after surgery 2.0
Observations on the first week of my 7-week, 35-session prostate-bed TomoThreapy radiation course. Each patient must be in full-bladder, empty rectum state prior to treatment. This means half hour before (1) empty bladder, (2) drink 160oz of water. The displacement of these two organs is scanned before the start of each…
24 Varieties of Prostate Cancer to be Treated
I believe many here have read about this article in the Wall Street Journal on the 24 types of prostate cancer. But I wish to recall that piece of news so that many can understand the difficulty behind the diagnosis process in our cases. This gives the power to the statistics as an important “tool” in the decision process;…
Another Friend going down
i got the call today from an old friend. His PC was too advanced for surgery- he had radiation at U of MI. the rads checked the PC- that was over 5 yrs ago now. But now he has acute luekema- probably triggered by the radiation his U of MI docs told him. His is a very hard strain to treat- they gave him a 25% chance of…
BOTOX Injection #3 -Notable Success
Well for those of you who been been following my posts regarding continued incontinence and the use of Botox injections for treatment here's my current progress and report: -24 Jan received Botox injection #3 -500 Units -As of today I am noting a 20% improvement -notable leakage reduction After nearly 5 years of…
IMRT side effects related to pre-existing conditions/situations - might they be worse or more intens
Related to imrt/igrt treatments, if one has some pre-existing conditions such as frequent urination (multiple times per night and also some during the day - which Dr. says is overactive bladder) or ibs with sometimes stomach upsets/pains and sometimes diarrhea or close to it ---> would it be probable that with having…
Interstim vs. Botox (or other effective steps to solve severe incontinence)
After robotic radical prostatectomy in Jan. '09, I have had severe incontinence (5-6 Depends a day) ever since. Anticholinergic drugs have been of no help. Now being told that only remaining steps are 1) Implantation of InterStim neurostimulation device; 2) Botox injections; 3) Adult male sling; 4) Augmentation…
how bad is hormonal therapy-Lupron
at some point i will have to decide whether or not to take lupron. i have heard so many bad stories about hormonal therapy that to me the quaility of my life out weighs the quantity. i have talked to many other men who have taken lupron and they have gone thru some terrible side effects. if it is that bad then i choose not…
About HIFU
I promised to let you all know about my friend that went to Canada for HIFU. I don't know a lot of details about his circumstances but I know he first had radiation treatments for PCa about 10 years ago. His PSA went up. Not sure what reading. At any rate, in November he went to Canada for the HIFU. He is having terrible…
1YR FOLLOW -UP
Well, it's been one year since my surgery and subsequent radiation and I'm glad to report that my latest PSA test came back undetectable !! So far so good. Thanks to all who have provided valuable information and support during this past year. It makes it much easier to deal with this disease when you know there are people…
Survivors, get engaged !
Myself & a fellow PCa survivor at work have started a small group of cancer support group, call ourselves CSG (how original). We are there for all, and we are also running a relay for life fund raising team, TEAM AVIATION to help ACS make a difference. For those that maybe interested, here is a link, and I urge all of us…
11th Anniversary of World Cancer Day
11th Anniversary of World Cancer Day Let’s celebrate this day with joy. It was in 2000 that at Paris Charter the awareness of Cancer was raised. Since then many individuals and organizations become active in the intent of promoting Prevention, Detection, and Treatment. It was also the year of my diagnoses with prostate…
Need treatment options opinions
I am new and would like some personal opinions regarding treatment options available to my husband. His medical history is as follows: slightly elevated PSA led to a biopsy a few weeks ago in December. Cat Scan and bone scan clear. Gleason 4+3. So we met with doctor at MD Anderson who says it's Stage 1, but still should be…
PSA results after Dec. 15 surgery
Received my first PSA results after my DaVinci Surgery six weeks ago: PSA = .03. Next PSA will be in 3 months. Doctor mentioned option of adj radiation or waiting to see the next PSA result. He supported waiting rather than pursuing radiation now. Any thoughts on this are appreciated. I'm very happy with today's results…
Appointment with John Hopkins
I met with an open surgion at JHU yesterday to look at my cancer and make a reccommendations. He indicated that my cancer with 3+3 gleeson, 4.8 PSA, and staged T1 was right for surgery if I wanted. They also had done a second opinion on biopsy and it was 3+3 too. Dr. said watchful waiting would also be fine for me but said…
I am scared and confused - recently diagnosed
I was diagnosed with moderately differentiated adenocarcinoma of the prostate on 12-30-2010. I am 53 years old in otherwise good health. My psa was 4.3. My last psa was 1.2 in 2007. Original biopsy report showed Gleason score was 6 (3+3), 8 out 12 bioposy cores positive, 4 on each side. Tumor represented 30% of total…
Radiation Oncologist or Medical Oncologist
As you all know - after robotic RP in Jan 2005 and external beam RT in Dec 2010 - my PSA in Jan 2011 is 0.4 - I have to continue to be medically followed. The confusing question for me is who should I keep visiting - Radiation Oncologist or Medical Oncologist? I request your experiences. Thanks. Subu
PSA rising slowly
Hi I am new here, had a radical in 08 PSA stayed a 0 form 9 months then went to .01 stayed there for 6 months then went to .02 last test in 1/11 was .08. Dr. said he is not overly concerned. Should I be? Steve
Enlarged Testicle
Hello everybody, first time post. I had a radical prostatectomy about 7 weeks ago and seem to be recovering well except for one thing. If I am on my feet for more than a couple of hours a day, my right testicle swells to double it's normal size and I have to sit down for a while. I talked to my surgeon about this and he…
question about H/T
have any of the members of this panel experienced weight gain while on H/T? whether it be big or small?
Placement of markers went south
Had my gold markers placed in preparation for my Cyberknife treatment and it went south. It appears according to my Uro that the bacteria in my body was already resistant to the antibiotics comonly used for the procedure. I wound up spending 4.5 days in ICU and 3 more days in general room. My Cyber treatments will be…
ADT/breast pain or breast enlargement
would some of the panel members please share with me their experiences with breast pain or breast englargement while taking lupron. i have talked to some men that only had a small increase of breast size while others have gone as far as surgicial reduction.
cipro
my urologist has prescribed me cipro to take for a month and then get re tested for a rising psa score. it is currently 5.8 and i had a radical in 2003. my psa has been steadily rising over the past 7 years. i apparently have rogue cancer cells in my prostate bed. has anyone on the panel been prescribed cipro for a rising…
radio active seeds
can anyone on the panel please share how radio active seeds are implanted in the prostate bed. is it major surgery?
Treating Advanced PCa
This post is for Janeebe3, Doctoro, and others with questions about treating advanced PCa. My husband, PJD, thought the following video link might be helpful. On October 28, 2010, Dr. Mark Scholz, a PCa oncologist, gave a presentation at a prostate cancer forum on “Treating Advanced Prostate Cancer.” A 90 minute video was…
Post surg,post radiation, post lupron. PSA begining to rise.
Back again. Davinci June 2009. Gleason 9. Pre PSA 17. Post PSA 7 then 8. 4cm tumor found in pelvic lymph. Had 38 radiation treatments Jan 2010 combined with Lupron therapy 3 shots. OCt 2010 PSA 0.02 Nov. 2010 PSA 0.04 Dec PSA .4 CLean bone and ct in Nov 2010. Called today to make appointment. Does Anyone have any input…
1 YEAR PSA TEST
Brothers, I continue to be a member of the ZERO CLUB. IT was my 1 year and about a month test and came back Non-Detectable...YES! So glad I made the decision I did on my surgery. All is well and now after a cortizone injection into my arthritic hip I find great relief and the ability to walk nearly normal again. It's been…
Urological stint and ams800
OK question for all you guys that have an 800 installed . Did you have to have or were you offered the chance to put a stint in the spincter to hold it open forever. Just curious as my Doc installed one in me for fear it would close down somewhere in the future . With the stint in place I will be incontinant forever…
Cystoscope and CT Scan today
After 10 minutes of CT Scans with and without contrast and having a cystoscope my doctor has determined that nothing is wrong with any organ (bladder (and my sphincter is beautiful) kidneys livers lungs spleen etc in my body let alone any cancer…So I am blessed and happy about dodging another bullet today but not happy…
What do you guys think about abdominal CT scans after treatment?
I had one last year prior to surgery but from what I read these abdominal CT scans give the equivalent radiation of 500 chest x-rays in one scan or 3.3 years of natural radiation exposure. Having said that, last week I had a drop of brown blood in my urine and then the next time I urinated a drop of red blood and then the…

Prostate Cancer

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