Scared

KatMat
KatMat Member Posts: 62
in Lymphoma (Hodgkin and Non-Hodgkin) #1
My husband and I are going up to Mayo tomorrow and meet with the doctor on Thursday to see how the Medrol/Rituxan is working. He is having night sweats which obviously is not a good thing and is not feeling good. I am truly afraid of what's next.

I am trying to stay positive knowing I have Sloan Kettering's 2nd opinion coming but staying positive is getting harder. :(

Send The Force that Sloan has an option for him!!!

Hugs - Katie

Comments

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #2
    Thinking of you...
    Hi Katie,
    I will be keeping positive thoughts for an option from Sloan and saying prayers for you to find some measure of peace through all of this. You are doing everything possible to get the best care for your hubby, so please be kind to yourself and try to relax a bit. I know it's hard to do, but take each day one at a time. Hang in there Katie, and let us know how things go. Much love...Sue (FNHL-2-3a-6/10)
  • KatMat
    KatMat Member Posts: 62
    #3
    allmost60 said:

    Thinking of you...
    Hi Katie,
    I will be keeping positive thoughts for an option from Sloan and saying prayers for you to find some measure of peace through all of this. You are doing everything possible to get the best care for your hubby, so please be kind to yourself and try to relax a bit. I know it's hard to do, but take each day one at a time. Hang in there Katie, and let us know how things go. Much love...Sue (FNHL-2-3a-6/10)

    Thanks Sue :)

    Thanks Sue :)
  • jimwins
    jimwins Member Posts: 2,107
    #4
    Positive thoughts
    Hi Katie,

    I too am sending positive energy that Sloan has options and
    good news for you.

    Jim
  • Unknown
    Unknown
    #5
    positive thoughts
    Katie,

    Sending my positive thoughts your way. It is disconcerting for night sweats to come back, and mine have too. Has he also been running a low grade temperature? Sometimes they go hand-in-hand.

    Thanks for keeping us up to date!

    Take care-Nathan
  • tall floridian
    tall floridian Member Posts: 95
    #6
    Night Sweats
    Katie: I too experienced night sweats - my poor wife had to change my bed every morning-it was devastating but you know as I look back on it - it was part of the healing process we all have to go through toward recovery. I went thru 6 rounds of regular chemo and then two more aftercare chemo and after 7 months off chemo am in remission thank God. Read my story in my post and you will see how my faith pulled me through a very difficult 15 months. God bless you and husband - remember God's in control even though at times we are not. Know that He loves you!!!! Hugs and prayers - Steve
  • KatMat
    KatMat Member Posts: 62
    #7
    tall floridian said:

    Night Sweats
    Katie: I too experienced night sweats - my poor wife had to change my bed every morning-it was devastating but you know as I look back on it - it was part of the healing process we all have to go through toward recovery. I went thru 6 rounds of regular chemo and then two more aftercare chemo and after 7 months off chemo am in remission thank God. Read my story in my post and you will see how my faith pulled me through a very difficult 15 months. God bless you and husband - remember God's in control even though at times we are not. Know that He loves you!!!! Hugs and prayers - Steve

    Hi all - checking in
    Well after a very long week and half we are home from Mayo. It seems that all my husband's issues - chills/sweating, night sweats were associated with an infection in his central line. After an intense one night stay in the ICU at Mayo he is doing good now and no more night sweats! 14 days of antibotics and he will be good to go.

    The doctor started him in OFAR chemo which is not normally used for lymphoma but has been used and doc said it was a good enough chance it can work to give it a try. He had half the chemo before the infection was discovered. We go back next week to resume the chemo. He is feeling good now that the infection is under control. Thanksgiving at the Mayo Clinic is not what I envisioned but it really doesn't matter in the grand scheme of things.

    Thanks for all your support! You guys are the best! :)
  • jimwins
    jimwins Member Posts: 2,107
    #8
    KatMat said:

    Hi all - checking in
    Well after a very long week and half we are home from Mayo. It seems that all my husband's issues - chills/sweating, night sweats were associated with an infection in his central line. After an intense one night stay in the ICU at Mayo he is doing good now and no more night sweats! 14 days of antibotics and he will be good to go.

    The doctor started him in OFAR chemo which is not normally used for lymphoma but has been used and doc said it was a good enough chance it can work to give it a try. He had half the chemo before the infection was discovered. We go back next week to resume the chemo. He is feeling good now that the infection is under control. Thanksgiving at the Mayo Clinic is not what I envisioned but it really doesn't matter in the grand scheme of things.

    Thanks for all your support! You guys are the best! :)

    Thanks Katie
    Hi Katie,

    That's great news and thanks for sharing!
    Well, maybe the jello will be cranberry flavored at the hospital - LOL.

    Hugs,

    Jim

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