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New Member.
On January 24th 2004 I was diagnosed with Cancer of the Esophagus. January 30th 2004 I was operated on, had the tumor removed and my stomach moved up to rejoin the esophagus. Was in intensive care for 11 nights. I have been home three weeks now and I am having a hard time trying to gain the 20 pounds back that I lost since…
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Need to Find the Best!
Will be starting chemo very soon. Would like to know how you find out who are the BEST Oncologists. The surgeon who did my surgery referred me back to the Oncologist who referred the surgeon to me.Have only met the Oncologist once---would like to line up someone else if I need to get a second opinion. Have gone through the…
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I'm newly diagnosed
Hi, I'm Chris. I'm 48 years old and have been diagnosed with stage III esophageal cancer. I'm looking into the standard treatments that we all see. If you are reading this then you are probably being touched in some way by this condition. I keep finding people who are cancer free years after diagnosis, so it CAN be done.…
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Esophageal Cancer
My 44 yr old husband was just diagonesed with cancer. During those first two weeks we not only found that the cancer was in his esophagus and upper part of his stomach but it has spread to his liver, kidney,lymph nodes and his bones. The doctors have but him on Chemo and radiation to try to shrink the tumor around his…
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LAUNCH OF THE MILITARY CANCER SURVIVOR'S DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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New Participant
Mike & Michelle are new participants from New Mexico. Mike was diagnosed with squamous cell carsinoma in February of 2000, a full treatment schedule has been implemented. We would like any conversation.
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Progress with eating following surgery
Two months ago I had my esophagus removed and am interested in knowing how persons with similar surgery do after time with returning to normal eating. I can not tolerate sugar (in desserts,etc)and have difficulty with any fluids other than water. I can not drink with my meals or I am too full too quickly. What kinds of…
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hope? PDT photodynamic therapy
We just found out that the past 12months of treatment (chemo plus combined chemo and radiotherapy for my husbands tumour was ineffective and that no further treatment is possible. He has squamous cell carcinoma of his parotid (salivary gland); Which is apparently rare. BUT - am posting this message because in my search on…
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LAUNCH OF THE MILITARY CANCER SURVIVOR'S DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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Esophageal Cancer Survivor Dad
My Dad (now 60 yrs old) was diagnosed with esophageal cancer January 2002. He has gone through extensive chemo and radiation, followed by surgery. A section of his esophagus was removed. He has also gone through 2 minor surgeries to reopen the area to make swallowing easier. However, things are looking down. He is not able…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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I need help to understand...
I just lost one of my closest friends to esophageal cancer. He was diagnosed Sept, 2002 and passed away April, 2003. As soon as he found out he had EC, he became reclusive, moved back home with his parents, and would not see his friends, talk to us, or even answer emails. We continued to call but he wouldnt come to the…
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Age
Hasd anyone noticed how many people get cancer at the age of 62 or seem to die at the age of 62 i wonder if thisa is to do woth the genes in the body or simply an ub=nexplained statistic also does anyone think that treatment seems to hasten the deTH OIF SOME PEOPLE iTS A TERIBLE disiase and one which we dfont seem to be…
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Oral Ulcer Research
Volunteers Needed for Cancer-related Research L.E.K. Consulting is seeking volunteers who have experienced mouth ulcers as a result of cancer treatment to participate in a brief 15 to 20 minute discussion over the phone. The discussion will be around patient experience and opinions regarding the treatments for these…
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Life styles of those with tonsil cancer
I would like to know how many of you who have been diagnosed with tonsil cancer play a wind instrument and if so, how often? I didn't smoke and my drinking was moderate or maybe a little above average - I do like my wine! --EST
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Cancer of the Tonsil
My 80 year old father was diagnosed last week with T1N0M0 tonsil cancer. He only weighs 142 pounds and is very frail for his age. He lives alone, suffers from early onset dimentia and tends to eat the foods that he likes rather than what is good for him. He hates water. From everything I've read, radiation will be rough.…
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unknown primary
I have had cancer treatment for squamouscell with an unknown primary.I had a neck disection and it really sucks. Anybody with the same want to talk.
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After Treatment
My uncle was diagnosed with squamous cell cancer of the tonsil in August. He has finished his radiation treatment and has 2 more chemo treatments left. He is doing worse now I think after the treatment for some reason. I am wondering if anyone has had the same problem after their treatment was over. His mouth is so swollen…
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Neck dissection/radiation
I have recently had a neck dissection to treat a Merkel Cell Carcinoma which had spread to the lymph nodes in my neck. I am going to start radiation to the neck next week, and am wondering what to expect. Of course I have gotten the list of possible side effects from the doctors, but think that someone who has gone through…
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question
Hi, my dad has had surgery to have his esphogus removed back in December. At first he was doing really well, but he is having problems with the esphogus closing and not being able to eat. He is going for radiation treatment and I would like to know whether this could have an effect on that. He has a feeding tube and uses…
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Waiting on diagnosis
I went in to the doctor who said "I can't tell you not to worry. You probably need a biopsy. I'm sending you to whichever specialist can see you first." That was yesterday. I see the next doctor in 5 more days. Another wait, then the biopsy. Another wait, then the diagnosis. Meanwhile, I learn what I can and try hard not…
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Trying to help my only sister
My sister was diagnosed with squamous cell carcinoma of the maxillary sinus in February 2002. She had part of her upper hard and soft palate removed, had a neck dissection and was given radiation therapy. Last November 2002 she was again diagnosed with metastasis to the lower jaw and had that removed and was given more…
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cancer treatment
Hi Has anyone had treatment for oral cancer and wished they had not im one of these people who had no symptoms whatsoever and felt that because of my age (62) it would not spread quickly it was also very rare mucoid epidermoid under the tongue although i did not now it existed neck dissection found lymph glands to be clear…
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Eating - Prosure and Resource support
My dad recently (5 weeks) had surgery to remove a mass in his neck and his voice box/cords. This week, he had a fistula appear (hole in his neck/esophagus) and they have to put a feeding tube in. Anyone experience this and what should he eat through the tube, we were thinking Prosure or Resource Support. Anyone else try…
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Tonsil Cancer recovery
Just interested in what I may be looking at over the next few months. I had Surgery on Sept 19, 2003 of my stage 4 tonsil cancer. I just completed 33 radiation treatments last week. The operation consisted of moving my left peck muscle from my chest to my throat area. I am in the process of trying to strenghten my left…
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colon interposition surgery folowing esophagectomy
hello. i'm wondering if anyone here is familiar with this type of surgery and the effects of eating solid foods afterwards. thank you
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Dealing with not being able to eat
Six years ago my wife was diagnosed with her second bout of oral cancer (never smoked; drank sparingly). Little did we know that her last meal before the surgery was the last solid meal that she is likely to ever have. This has obviously been a huge struggle for her, especially considering that so much of human interchange…
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base of tongue- recovery questions
Strange that in my first searches on this site I found a Heather and a Bob with similar issues to mine. My dad, Bob, has just finished his treatments for cancer at the base of the tongue. (It took a long time to discover this was the primary) He had a lymph node removed on the right side which showed squamous cell AND…
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Personality Changes
I underwent surgery to remove squamous cell carcinoma of the neck in July 2001, followed by six weeks of radiation treatment in August/September. Physically, I feel I am adjusting fairly well, but my family is noticing "personality changes." I don't see it, but I am told that I never smile, am difficult to deal with, have…