Thought I'd add to the NED posts!

meaganb
meaganb Member Posts: 244 Member
in Head and Neck Cancer #1
I switched ENTs. I was really unhappy with the one I've been seeing. I am so happy with my new Dr! He was really well versed in my type of cancer(ACC) and he wanted to have an MRI done ASAP b/c I had never had one and my cancer tends to spread along nerves. Spent over an hour in the tube because the MRI was for my brain and all head and neck soft tissue. Also had a chest x-ray at my oncologist appt. Everything is clear! I'll continue to see my ENT every 6-8 weeks for the next year and I'm seeing my oncologist every 3 months. This was a huge weight lifted off my shoulders as I'm sure y'all already know! Praying that everyone else also has NEDs in their future!

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    Awesome...
    Totally awesome...wouldn't it be great to keep seeing these posts, one after another...

    JG
  • osmotar
    osmotar Member Posts: 1,006
    #3
    We have hit
    We have hit the trifecta today, 3 NED posts...YES!!!!!
  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    #4
    That is great news, I am
    That is great news, I am hoping for one of those myself in the near future. So happy for you.
  • cureitall66
    cureitall66 Member Posts: 913
    #5
    You need to reach out to "Spazactaz"
    meaganb,

    So happy with your results of ACC. Congratulations.

    I sure wish you could reach out and encourage a 24yr old male on here that posted around August 30..on about page 2. He really tugged at my heart. His post topic is "Just Got My Not So Great MRI Results". His post reads, and I quote:

    " Cancer is still present in my brain and neck, and the tumor is still in my face. It has shrunk to about half the size it was though. But basically I am terminal? as there are no other treatment options currently available for adenoid cystic carcinoma. :( I did the 30 radiations.

    i'm only 24, this sucksssss. what do you guys think of alternative therapies? any that may work for ACC?"

    God Bless you and any others who can reach out to this young man and tell them there is hope!
  • Sam999
    Sam999 Member Posts: 319 Member
    #6
    cureitall66 said:

    You need to reach out to "Spazactaz"
    meaganb,

    So happy with your results of ACC. Congratulations.

    I sure wish you could reach out and encourage a 24yr old male on here that posted around August 30..on about page 2. He really tugged at my heart. His post topic is "Just Got My Not So Great MRI Results". His post reads, and I quote:

    " Cancer is still present in my brain and neck, and the tumor is still in my face. It has shrunk to about half the size it was though. But basically I am terminal? as there are no other treatment options currently available for adenoid cystic carcinoma. :( I did the 30 radiations.

    i'm only 24, this sucksssss. what do you guys think of alternative therapies? any that may work for ACC?"

    God Bless you and any others who can reach out to this young man and tell them there is hope!

    Hi Meagan, so happy for you.
    Hi Meagan, so happy for you. Wish you many more neds.
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #7
    Sam999 said:

    Hi Meagan, so happy for you.
    Hi Meagan, so happy for you. Wish you many more neds.

    Awsome.
    Best three letters in the alphabet...NED..
    May all your future scans be the same.

    God bless
    Tonsil dad,

    Dan.
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #8
    Hello NED
    Thanks for sharing the great news. Here's to NED for EVERYONE!

    Deb
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #9
    nice post
    Hi Meagan,

    You being happy makes me happy. New doctor, add lots of scan info and good news all around. Meagan meet NED, shy but you got to love him.

    Best,

    Matt
  • Billie67
    Billie67 Member Posts: 898
    #10
    CivilMatt said:

    nice post
    Hi Meagan,

    You being happy makes me happy. New doctor, add lots of scan info and good news all around. Meagan meet NED, shy but you got to love him.

    Best,

    Matt

    So happy for you
    NED is awesome news and I am so happy for you!
    Feel good!
    Billie
  • katenorwood
    katenorwood Member Posts: 1,912
    #11
    So happy !
    meaganb,
    Yeah girl you took positive proactive steps and got the best news ever ! As we both know scans forever...but saying this small in comparrison ! Yes please if you can contact spaz..please do ! Let him know there are positives and hope for our dx ! I tried and will continue too. We need to pull all our strenghths together for another that needs it very badly. But again wonderful news girl ! Katie
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #12
    several
    several ways this is wonderful news. with you being unhappy with doc's you changed by being proactive to a team of doc's you feel good about. most of our battles thru the fight are about attitude and when you feel good about something it helps.

    more important wonderful news is meeting of NED

    congrats

    john
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #13
    WAY TO GO
    Hooray on the NED!!

    All the best

    Mike
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #14
    luv4lacrosse said:

    WAY TO GO
    Hooray on the NED!!

    All the best

    Mike

    Great news..
    Happy for you ... :)

    Tim
  • Crazymom
    Crazymom Member Posts: 339 Member
    #15
    NED
    Congrats ....I love all this positive news. I have CT Skan on Thursday, 13th

    Ann
  • ToBeGolden
    ToBeGolden Member Posts: 695
    #16
    NED
    Yep! What we all want to hear.
  • meaganb
    meaganb Member Posts: 244 Member
    #17
    Crazymom said:

    NED
    Congrats ....I love all this positive news. I have CT Skan on Thursday, 13th

    Ann

    Hope your scan is as clean as
    Hope your scan is as clean as can be! NEDs all around!:)
  • phrannie51
    phrannie51 Member Posts: 4,716
    #18
    Great Meagan....
    never keep stuff like this a secret....it's the kind of news we all love to hear!!! Congrats honey....

    p
  • VanessaSLO
    VanessaSLO Member Posts: 283
    #19
    phrannie51 said:

    Great Meagan....
    never keep stuff like this a secret....it's the kind of news we all love to hear!!! Congrats honey....

    p

    Congrats!
    Great news! I wish you many many many many NEDs in the future!
  • Greg53
    Greg53 Member Posts: 849
    #20
    VanessaSLO said:

    Congrats!
    Great news! I wish you many many many many NEDs in the future!

    Yeah!
    All these NED's - made my day. Congrats!

    Greg
  • hawk711
    hawk711 Member Posts: 566
    #21
    NEDOMANIA!
    Glad that NED is out and about these days. Loved Krashpads song after NED. I can sing it in a baritone voice now...
    Congrats.

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