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Go in for one problem and come out with the possibility of a bigger problem, sigh.
Still in a bit of shock so this will be short - well for me, lol. Went in for a CT to make sure my kidney stone was still there before tomorrow's surgery to yank it out of my bladder and when the surgeon came out to tell me if the surgery was still a go due to the findings on the CT - surprise, while the radiologist was…
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Song For Survivors
I have created a song that is being used locally at meetings and in the Relay. The song is a true story that is both sad yet inspiring as it describes the determination of a Survivor. The link is http://www.wpoc.com/new2/artists/themarblesteps You can play the song at this link. We are trying to get it covered by a popular…
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Really scared and feeling really alone.
Hi, I have recently undergone surgery to remove my right middle lobe of my lung. I had a carcenoid lung tumor. The doctors tested the surrounding lymph nodes and they were clean, thank god. I had the surgery 3 weeks ago and I am home recouperating. I actually feel physically pretty good. The doctors said they will follow…
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7 cm nodule on my lung?????
I had an extreme coughing fit - ended up in extreme pain - went to the ER - had an IV catscan - no blood clot thank god! but found a 7 cm nodule - what does it mean??? i am probably getting ahead of myself - go see pulmonary doc on tuesday....but of course still freaking out till then. Then my mom's voice whispers in my…
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update on mom
BAD NEWS GUYS: my moms first chemo was not working...so she was trying a different chemo that dr kok said might work well now friday 22nd of may she had another scan to find out that this chemo is not working now what im to the point i dont know what to do...now on top of it all my dad is sick ugh i dont know how much more…
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Another Year Gone By
Recently I celebrated another birthday, my 52nd. As with most birthdays since my illness it has made me reflective. I spent my birthday with my husband riding in the foothills of northern California enjoying nature. Along our drive we found ourselves on an old road that led to a watering hole popular with teenagers and…
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What a difference a second opinion can make !!
I just came back from an appointment for a second opinion with a new rheumatologist after the first one ran no tests, took only 10 minutes with me and did only one physical test yet came up with a diagnosis that basically came down to 'stress'. I was reduced to a wheelchair 5 years ago because of debillitating pain in my…
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mom has liver, lung, and kidney cancer
Hello Everyone, I am new to all of this. My mom was just diagnosed with stage four cancer in Jan. She has already been through the radiation and is currently working on the chemo. She was taking some type of chemo and the Dr. said that it was not working that the cancer had spread even more. So she is currently trying a…
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friend needs a hospital
i have friend with a 19 yr old daughter who found out last saturday that she has stage 2 cancer. one problem is the mom is divorced from a guy who doesn't pay child support much less carry insurance for his kids. she has applied for medicaid or medicare. i am not sure which is for her case. but it is government and they…
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Spring- A time for renewed life and hope!
What a beautiful Day!! I sat on my patio and watched the birds play in the trees and my animals laying in the grass near me, enjoying the weather and the chance to bask in the sun. I hope that all of you can enjoy the season as well; we may not be in the best physical shape, but the new growth of flowers, trees and baby…
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Going back to work
Hi, I have a problem, I got myself a job 3 weeks ago which I love, the people are great and I really fit in as I am somewhat of an expert (ex-as in Has Been, and Spurt-as in Drip under Pressure) In horticulture. BUT My husband is really having a job dealing with being alone all day when we used to spend every hour in each…
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myelodysplasia syndrome patient
i'm Dynie,27 years old. almost 3 years ago when i was diagnosed with MDS. over that years is a monthly blood and plateletes transfusion to get through this life. i know that there is a procedure called bone marrow transplant that will help me get better but so expensive and i can never afford it. hope i can find plenty of…
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Vegas, Baby!!
Hi all, Just wanted to let you know that my husband and I are going to Vegas at the end of the month. Can't afford it, don't care!! Gotta get away from doctors, nurses and people with needles!!! Hope all of you find an escape once in a while, also. I would tell you more but, what happens in Vegas... Have a wonderful day!…
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Life After Cancer
I have read several blogs on this subject, some feel slighted to have had to deal with cancer and its long lasting side effects, some just pick up the pieces and continue on, others find a cause and attack it with a vengeance. Me I am somewhere in the middle. I have long term forever lasting side effects from my cancer…
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SSI and Medicade
Hi Everyone, I had a phone interview this week with the Soc.Sec.people. I have Gastro Intestinal Stromal Tumors (GIST). I was denied help because we have life insurance(just enough to bury my husband and myself) and a very small savings acc. The savings i can understand and could pay 2 farming bills and it would be gone.…
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Life Between Scans
I am 3 weeks into the Gleevec treatments and am due for a Pet scan and a brain MRI.I have vacillated between confidence, hope and fear. I think it's normal to feel all of these things, especially when you are just beginning a new treatment,where others have failed. I was just wondering what all of you do with your…
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Update on mom
So we have found out that the chemo is not working so they are trying another kind of chemo she goes monday 11th to get her 2nd one of this new one they are tring then they are going to do a ct scan and see if it is working if not they are going to STOP the chemo :(
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I've lost too many friends
I am recovering from successful therapy for nasophyngeal cancer. Since the beginnng of the year, I've lost 3 friends to different cancers - kidney, throat and brain. I just want to tell Brenda, Sandy and Mark that you will all be part of me forever. I'm learning not to take every doctor's checkup for granted.
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how will chemo affect my partner when we have sex?
We are wondering if the chemo will affect my partner and if we have a waiting period after chemo treatments before we can cuddle and have sex...
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Blue Roses
Blue Roses thank you for the inspirational story, it was very uplifting to me as a caregiver. Sorry I got knocked off the chat, it was nice chatting with you. Share your stories with others, it gives us all hope. Best to you LH
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Doing the right thing
I have been away from the discussion boards for a couple weeks and its nice to be back. Last week my sister passed on after fighting a genetic illness for 48 years. She was born with Hallerborden-Spatz, a rare disease that allows iron to build up in the brain and replace brain cells. She was quite normal until two years of…
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So lost, so terrified
My Mother was diagnosed with nsclc in August '08 and that's when my life as I knew it ceased to exist. She is 70 years old and her cancer had already spread outside the lungs by the time they were ready to do radiation. She was in a clinical trial designed for the elderly due to her frail condition and was taken off of…
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My count
Well Bluerose here it is my count went up again and now have to try another chemo. Usually my count will go down with a different chemo then go up but this didnt work so here we go again. Funny thing is I dont feel bad except with chemo. Hmm. Well got to regain my positive attitude and pray the next one works. Pray all is…
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Hi Hollyberry
HB Still learning to navigate this site. Let me know how to send you a private message Thanks LH
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Email and message
I don't know how to use CSN E-mail or to send and receive a message in the chat room. I am not young, and I have chemo brain. How can I get help. Thank You Cindy
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Melanoma
I've read through the discussion boards and don't see much about melanoma if anyone knows a better site please let me know. This isn't the forum I was looking for I guess. Maybe a chat room with people that actually feel the stress of the disease is more of what I am looking for. Good Luck to all and may God Bless.…
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NEED A FRIEND
HAVE CANCER ON VOCAL CORD- GOING THRU RADIATION TREATMENT ANYBODY ELSE HAVE SAME THING-
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Put your life in words
After many months of reading posts from spouses and children there seems to be something missing. I am as guilty as everyone else on here. When I had cancer I thought of living or dying and not much else. If I had not survived my family would of been left with memories, photographs and videotapes. There would of been few…
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humor
would it be to offensive to start a place for some of the humorous things that have happened during out treatments. where i was at they actually had a humor class that my wife (caregiver) went to. as my luck went i was in for treatments during that class.
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Is it really worth it?
I haven't posted in a while as I had a setback in my treatment; my last chemo (Carboplatin, Taxol and Avastin) stopped working and I had to make some decisions. I had no more than weeks if left untreated. I was given a choice of clinical trials- one being Gleevec and the other a very toxic phase one trial that wouldn't…