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yah gotta read this!
Many of you know about my friend, Alan.He has been battling with cancer for 7 years. A while ago I told you that he was told to prepare to enter a hospice and that all chance of prolonging his life was lost.He was told there was nothing else that could be done for him!Needless to say Alan pretty much felt helpless as did…
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Colostomy
My husband just came home from the hospital with a permanent colostomy. He is doing very well with it but is trying to decide which type of pouch would be best. Anyone out there that can tell us the pros and cons of the different types? He wants to do some traveling if possible so would like the least mainteance one.…
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new member
Hi, I am grandma Karen of a 17 yr old with small blue cell neuroendocrine carinoma. He was diagnosed 9/05. Primary site colon and mets to the liver. He has had 10 months of chemo and surgery in June. Removed 18" colon and 1/3 of the liver. In the beginning chemo worked very well and shrunk tumors enough for the surgery. He…
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Point to ponder...hehehehe
Have you ever seen the sign beside the elevator that says "In case of fire, don't use elevator"? One sign has an additional message: "In case of fire, don't use elevator" USE WATER... Hugs, Kathi
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Update on my husband
Went to the Surgeon today, he say's from the ct scan it doesn't look like there is anything on the outside or in the liver. But he kept saying this is not 100% until he get's in there. The Surgery is Scheduled for Aug 24th. I wish it was sooner. We like the Doctor. I'm still very scared but I really think we can beat this…
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Results
Just got off the phone with my Onc. He told me the other day that he would call me and then have me come in for my results , But he decided to give them to me over the phone . So I have some good news and some bad . First the good .. My liver now only has 3 tumors one on the right which he said has shrunk . and two on the…
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To Jose
Lotsa tech troubles with this site Jose; it's really frustrating to spend time and effort on a reply to a post, and then be unable to complete it..four attempts to send after preview unsuccessful... Bud
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Decision Made - Chemo..
Thank you to everyone who responded to my thread.. After much thought and speaking with my family, friends and my new friends on CSN I have made the decision to go ahead with chemo. I am confident that I made the right desision and I will know that I did everything possible to get rid of this terrible disease. On a side…
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got a foot in the door.........
I posted a week ago about where to turn for screening help given my age no one would give me the time of day......thanks for all your comments and suggestions. Well, i called our local teaching hospital once again and basically i lied........i told them i was having symptoms and they made me an appointment to see a doc and…
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Question regarding colon cleansers
I have been looking at them online and reading about them. Do any of you have any experiences with these, The show all the mucoid plaque that is supoose to come out ect. If we have all that in our colons why one earth would they not see it with a colonoscopy? I know they vlean you out before the test but i have know…
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My husband Just diagnosed
8/9/06 With colon cancer I have been to other sites asking to speak to anyone who has survived but I have gotten no reply. He has a appointment on Tues to meet with a surgeon to discuss taking the blockage(tumor) out. His colon is almost compeletly blocked. he's 41 we have been together for 21 years. He is the love of my…
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need words of wisdom
You all had such wise responses for cheryl and how to help her 3&1/2 year old daughter deal with diagnosis. Hoping you have some wise words for me. How do you help a 22 year old daughter deal with bad news followed by more bad news? The most recent cat scan has thrown us all for a loop (showed some increase in size of all…
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severe stomach cramps
Hello everybody! Seven days ago I had my first oxaliplatin injection. Everything went so well!!!! Very little nausea, diarea, etc. Well yesterday I was not feeling too well. Tired and little abdominal cramps. Last night the fur flew!!! Severe stomach cramps and vomitting that went on for about 10 hours. For those of you…
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Cat scan results...please respond
not so good... " There are some new small lymph nodes in the right retroprritoneum around the right poas muscle, the largest of which measures 1.4 cm, there is also a new abnormal lymph node anterior to the poas muscle measuring 1.4x.9.... Dr. ordered a pet scan....
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To Jose
Lotsa tech troubles with this site Jose; it's really frustrating to spend time and effort on a reply to a post, and then be unable to complete it..four attempts to send after preview unsuccessful... Bud
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Colostomy ???
My mom has colonrectal cancer, had 6 weeks chemo/radiation and surgery coming up. She may need a colostomy and that is really making her nervous. Is there anyone been there/done that willing to share their story, nervousness, and outcomes? What life is like now? I would be greatly appreciated.
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For bscurlock
Hi, I have just returned from vacation so I did not see your e-mail regarding stage IV treatment until today. My dad's tumor did not express EGFR, which for the most part disqualifies you from receiving Erbitux. However, his oncologist was able to get the approval because they are proving that people who don't express EGFR…
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Chemo and Thyroid
Hi everyone! I have a question.....I have Hasimoto's Thyroiditis, and have been on Synthroid for years. Every now and then, I have to adjust my dose because of fluctuations of my TSH levels. I am half way through my chemo (5FU/Leucovorin). Can 5FU affect TSH levels? I saw my endocrinologist today, and she says my TSH is…
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Pet/Cat Scan .
Hello everyone .I will be having a pet/cat scan tomorrow morning . I am pretty nervous as I was told that my cea has gone up . I am Prayng that it is not to bad . My Dr. said he will call me in when he gets the results , Which he said should be by Thurs .I sure could use the extra prayers . Take Care and God Bless . Debra
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First oxaliplatin treatment
Hello everybody!!! My first oxaliplatin treatment went well. I am also on 5-FU and the pump. Very little nausea, but a tad bit of neuropathy. I was an idiot...eating Eddie's ice cream and holding the little cold container...a few minutes later OUCH!!!! THe hospital gave me a care bag of goodies. This included a tote bag of…
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Mommy, don't go to the hospital...
I was diagnosed with rectal cancer in May 2006 and after chemo/radiation in June, surgery will be on August 28th. Well, the above words were spoken by my 3 1/2 yr old daughter. I had briefly told her a few days ago that I would have to go to the hospital. I didn't get into specifics and haven't really spoken about it since…
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Hospice Care?
Anyone knowledgable of hospice care? The case worker at the hospital told me today that I should check with the doc about signing up. I thought it was used only for the end time? She said no and advised if we go through Home Health Care they are more restrictive regarding him taking trips, etc., (Lord willing if he ever is…
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I'm a STAR, revisited!
Check out September Reader's Digest, page 14...'You said it'....letters to the editor...."WHY ME". THIS is ME in Rancho Cucamonga...yea yea yea! (Autographs will be given during the hours of 1 and 3 am....rofl) Hugs to all my people, Kathi
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Advice,please...
Hi everyone, I went with my dad to his appt. with his oncologist this week and during my conversation with him, he mentioned that my dad has had an "almost complete response" to his chemo. I was confused because at the last appt., he told us that the last CAT scan was clear. Now he is saying that there is still a small…
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Chemo or no chemo????
Back in 3/06 I was diagnosed with Stage III rectal cancer. I immediately began radiation and Xeloda. On 7/06 I had surgery to remove the tumor(approximately 3"). According to my surgeon and path report the tumor shrunk to the size of an ulcer(no evidence of disease) and no lymph nodes were affected. My oncologist told me I…
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happy
I've been reading most of the messages here and it really makes me happy to see such a large group of people with positive attitudes. What brought me to this board is my sister (35yo) who was diagnosed with CRC 2.5 months ago (stg. 3 1of34 nodes) she just began her chemo treatment last week and so far it hasn't been going…
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My Neice.
I just got off the phone with my sister. My neice had a colonoscopy today and they found a polyp. She's 36 yrs old. She's had some bleeding off and on for a few months, and because of that, and what I am going through right now, she went straight to a GI doc. She also had some inflammation in her rectum. I am praying that…
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Hospice Care?
Anyone knowledgable of hospice care? The case worker at the hospital told me today that I should check with the doc about signing up. I thought it was used only for the end time? She said no and advised if we go through Home Health Care they are more restrictive regarding him taking trips, etc., (Lord willing if he ever is…
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Friday Giggles
Hi All: I am back, fresh from a lovely vacation on Martha's Vineyard! On my trip to the East I also got to meet Beverly and Judy. What a big treat that was to have our very own mini-palooza! Anyways, here are the giggles and have a great weekend! Cheers, Ying - - - Escaped Midget! What do you call a psychic midget who just…
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My heart is so very sad
I began reading this site in November of 2004 when my father was diagnosed with colon cancer. His cancer was stage 3 when he was operated on and he went on chemo right away. He was on many regimens but the doctors could never get his cea count to decrease. It was only in March of this year when the doctors were able to see…