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Recently diagnosed
This past month has been a month of ups and downs. I was diagnosed with colon cancer on June 30 and am scheduled for surgery on August 3. I have been running around consulting with surgeons, oncologists and anyone willing to listen trying to find comfort in a decision. Doctors are not saying what I want to hear. I have had…
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New Here
Hello all, I have just stumbled on this message board. You all seem to be so positive and supportive. I have been reading your posts for some time now, so thought I should stop being so shy and say "hello!" I am 33 was diagnosed w/rectal cancer on July 20, 2005. I had the "normal" route of 6 weeks of radiation and chemo,…
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Sleepless under the disco ball...
It's 3:00 in the morning and I'm wide awake. I can't sleep (I'm saying in my whiniest voice). Ever since I started chemo I've had a rough time sleeping. I'm sure part of my problem is noon-time naps, but today I was out and about all day, no naps and I still can't sleep. I have a big day tomorrow, which is technically…
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Saturday Giggle (and don't expect this to become a tradition)
A Hangover Tale Jack wakes up with a huge hangover after attending his company's Christmas party. Jack is not normally a drinker, but the drinks didn't taste like alcohol a bit. He didn't even remember how he got home from the party. As bad as he was feeling, he wondered if he did something wrong. Jack had to force himself…
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Living on Borrowed Time?
Here's the brief... Serious symptoms of something wrong 8/04 and dx 10/04 Stage III CRC 1 pos lymph node day after 27th bday. Surgery; six months chemo. Clear scans since surgery. I've had a "bad feeling" for a long time that something was wrong but no reason to believe otherwise so I just thought I was scaring myself.…
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Oxillaplatin & Neuropathy
My treatment for colon cancer ended about 6 weeks ago. My fingertips and feet are pretty much numb from the oxillaplatin all the time. Just wondering what others may have experienced with the neuropathy and how long it might last. Thanks, Mark
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safe to take a break?
Hi, I would appreciate anyone's opinion.....My husband, John (stage IV-diagnosed 10/04) has been on irinotecan and erbitux for almost 10 months now. John's reoccurence is in his abdomen and chest area....it has remained stable on the chemo. His blood work is okay and has been okay. They are asking if he wants to take a…
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Send Out Your Prayers for One of Our Friends
One of my friends from this site told me today that they think they had a reoccourance of liver mets that showed on a scan. I dont want to name names, until they want it out there. I just thought we could all just say some prayers for this person who has personaly been a big help to me.
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Cat scan results
"increase in size of multiple bilateral metastases". What awful words. THe good news is that it wasn't a large increase. The largest one went from 12mm to 15 mm. So...the nurse practioner said she thinks the best course for now is to take a break and let my body recoup. My onc is in germany til the end of aug. He will…
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ULCERATIVE COLITIS
Ok so when I woke up on Thursday I didn't feel good. My pain got worse and what was coming out of me wasn't pretty. I was at work a few hours and decided to leave I went to see my family doctor looking for pain meds until next Wednesday for my sigmoid. My doctor said no I'm going to put you in the hospital and I'll have a…
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I'm so confused
I am so glad for everyone's suggestions. I am going to see my GI doctor next week and I have some new questions to ask. He is the one who told me to eat yogurt every day. He said it is good for your colon. He told my sister-in-law the same thing after her colonoscopy (she didn't have cancer). I do use the lactose free…
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Colorectoral with Liver Mets
My husband will have colon resection with an ileostomy on August 1st. They will later do another PET Scan and CT Scan to see if there are more mets in his liver or elsewhere. Can anyone tell me what to expect as far as liver surgery following the colon surgery? Is the prognosis very good in this type of cancer? Thanks for…
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~Prayers Please~
have been having a heck of a time dealing with the diarrhea from Camptosar/erbitux mix. that's not the bad news. The bad news is that my CEA went up to 23. It had gone down to 13 just 4 weeks ago. I know CEA isn't foolproof, but it's always given me a good indication of waht's going on. Had my Cat scan yesterday. Will get…
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Prayers for my dad
Hi All, Most know that I have Stage 3 colon cancer and had my tumor out on my birthday Dec 20, 2005. I'm coming to the group to help pray for my dad who was dx about 3 yrs ago with CLL. Just this year we found out he has prostrate cancer, possible liver mets (and just dx) with lymphoma. Tomorrow we go to the Onc to find…
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Anyone like me?
I am new to this group and so happy to have found you! I hope someone can give me some pointers because I feel like I am losing my mind. I was diagnosed with rectal cancer 9-10-04 at the age of 45. I had 6 weeks of chemo and radiation that shrunk my tumor down to almost nothing. I had surgery on 1-3-05 and followed with 6…
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Happy! (I think.....)
A little history....was diagnosed with colon cancer, stage 3, 3 pos. lymph nodes, no spread anywhere else, in March. Had surgery to remove the tumor, and 12 inches of my colon. No colostomy.....Anyway, I've been on chemo since april, 5FU/leucovorin. I have other health issues, Type 1 diabetes, and Mixed Connective Tissue…
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Friday Giggles Postponed a Bit
Hi All: My husband and I just had a mini palooza w/ babs and judith in Boston!!! What a treat to meet them it was. I am on a borrowed connection in the hotel lobby, and am away from my joke file. So I will have to send the Friday giggles a bit later this week. Here's wishing you a great weekend all the same! Cheers, Ying…
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Indy? Where for art thou?
So....how's hubby, what's going on....how DARE you think you can leave us hanging....all the best, post when you can, I'm sending BIG HUGS along! HUGS, Kathi
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Halifax? Anyone? Anyone? Bueller?
Greetings all!!!! It's that "special time" again! That time to bang you on the head with the details to COLON PALOOZA 4!!!!!! WHAT: COLON PALOOZA 4 WHEN: OCTOBER 12-15, 2006 WHERE: HALIFAX, NOVA SCOTIA WHY: WHY NOT?!?!?! As you all know, or are quickly learning, we are a close-knit bunch. We all understand each other…
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feeling scared
hi all, i have not posted alot lately, still recovering from surgery, had a few complications. anyways because of stomach problems i went for a cat scan yesterday and they found a spot on my liver. i am feeling so scared, it has never showed up on any of my other scans. i was wondering has anyone had something like this…
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Recommended book.
I have just read 'A Love Affair with Cancer' by John W.Pattison. Excellent. Has anyone else read it and feel the same?
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I'M AN IDIOT
So yesterday I drank my stuff for my flex sigmoid. I crapped liked crazy and having a colostomy at this time is pretty rough. So I get up early drink somemore of my stuff. Take a shower, drive to the hospital get there right at 830. The nurse asks me for my name I tell her and she says I don't have you down for today. I…
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Thank you all
I really want to thank you all for your kind words and suggestions! I sat here and had myself a good cry after reading your replies. Just for me to know that this happens to others makes me feel a little less crazy. Up til now, everyone I have talked too that had a similar situation or knows someone who went through it,…
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Sigh, another added to the ranks
Yesterday, I went for visit to my gastro doc to set up my colonoscopy, first since dx and tx. Got to talking with a 28 year old gal who has gone the run-around with pain AND BLEEDING for 4 months...FINALLY referred to a gastro for a scope. And (sigh) she ALSO mentioned that she has a lump in her breast that they have been…
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Stage 2 newbies read
I write this for you to tell you that no matter how bad things may seem you too can be NED(no evidence of disease) Briefly; I was dx'd in Aug. 2003 with stage 2 cancer of the descending/sigmoid colon. I had surgery followed by 6 months of chemo(5fu/leuc.)Only today I underwent my follow up colonoscopy which has also been…
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NED 3 years
I don't often post, so I will give update. I was colon cancer metasized to liver with positive lymph nodes. I completed my CT Scan, PET Scan and colonoscopy this past week. NO EVIDENCE OF DISEASE. I feel like dancing!! My medical ONC told me not to change a thing. He is aware that I am still eating the Liver friendly diet…
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Thank you for your kind words
I appreciate your words of encouragement and advice. I know this is one place where those here truly understand how cancer affects entire families. My father had just turned 67 when he passed. He enjoyed every minute of his life and had many friends. We had his memorial service tonight and the chapel was overflowing with…
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CANCER & FERTILITY
I often see postings related to fertility so I thought I'd share this with those who may be among our group with questions. Sorry, guys, it's really geared toward women's questions about fertility. In our case, the simple answer is to preserve swimmers before starting a chemo or radiation regime. Your onc can help you with…
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To Jose
how come I have to re-enter the crc forum every time I reply to a post? Bud
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Happy Birthday To You......
Kathi!!!! If I read correctly, your birthday is today? Doing a happy naked dance for you here!!! ( the traditional birthday dance!) Congrats and many many many many many many more! Love, Barb