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New & need advise
Hi everyone, my spouse was dx'd with colon ca in Aug, had surgery and now stage 3c with 16 0f 20 positive lymph nodes. His CEA was 4.8 before surgery and went to 4.7 after so Pet scan was done. They note a one 1cm node on the oppisite side lighting up aggressively". Primary oncologist thinks it is Ca and needs surgery..…
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Friday Giggles
Hi Guys: Goodness I've been so busy that I forgot it's Friday! Sorry the giggles are little late this week! Ya'll have a great weekend! Cheers, Ying - - - Words Women Use "FINE" This is the word women use to end an argument when they are right and you need to shut up. "FIVE MINUTES" If she is getting dressed, this is half…
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Hyperplastic Change (update)
Great news!!!! The biopsies came back clean!!!! I am on top of the world to say the very least! I was told that this term meant there was some enlarging and hardening around the incision area. But, the biopsies showed NO CANCER! My sincerest thanks to all of you who offered your kind support, well wishes and positive…
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SpongeBob: Nice to have you back!
I was beginning to worry a little where my Dad had gotten off to....nice to see you posting again.... How IS the sig other????? Hugs, Your loving daughter
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CP-5
Hmmmm....WHAT IS CP-5? Is it a new chemo? A strategic move in the game "Battleship"? A vegetable drink? No, it's none of those.... It's a full-blown celebration of life! The technical term is COLON PALOOZA 5. It's a gathering of friendship and support created by the members of this discussion board. It's a way to meet in…
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Colonoscopy Update
Hello! I posted a couple of days ago about my dad (stage IV - 4 1/2 years into the fight, recent pet scan showing activity in liver and colon and elevated cea) Well, he has a super clean colon - not even a polyp. Now, we just need to kill the cancer in his liver. I am so glad that we are at Johns Hopkins. I feel confident…
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Stage Four - 2 Year NED
Just wanted to share some good news and give others hope. I just got my latest CT scan results and am still clean!! Two years since my last chemo, 2 1/2 years since stage 4 diagnosis (3 mets to liver, 8 of 25 nodes positive). Even though I don't post much, I do read often (lurker). Mike
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Support Goup - Disappointment
I attended a group last night with much disappointment. Perhaps what I'm looking for does not exist. I want an educated therapist that will talk with us, helping us to understand our feelings and how to continue our lives after our great loss. I'm not looking for a group that is in as much pain as I and only sit around and…
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UPDATE
First off, I would like to say THANK YOU VERY MUCH to everyone who responded to my questions. This site really helps me out and provides the support I need. UPDATE: Had my appointment with my Onc Doc yesterday (17 Oct) and discussed all the problems I was having, including heart rate and what we could change about…
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To TaraHK
Post it wouldnt work so; Tara, so sorry to hear that this has happened. You are prepared for the worst, I think, when you say "knowing my history" . I hope this is not the case and that is a benign little yokey,. If not,then the battle must begin again for you. Sending you strong waves of good feelings. XXXX Margo
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WOOHOOOO
Colonoscopy came back looking great! I am so excited. I believe I have the green light to wait 2 years (maybe 3) before my next scope. Now, I wait for the CT in Nov and blood work to make sure all else is good. Thanks for the good vibes sent my way. Tricia - 2 and counting year survivor!!!
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Hyperplastic Change
I am a colon cancer survivor. I have been clean for almost 2 years now. I had a colonoscopy this past Monday. I called to get the biopsy results and my surgeon was in surgury and his nurse was in another office. Another nurse took a message to have my surgeon call me with the results tomorrow morning. However, she did say…
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First time Post
Hi Everyone, I have been reading all your posts here for awhile now. Here's my story. I was dx. Jan. 2006 and had the colon resection on the same month. I had Chemo for 6 weeks every week and Radiation for 28 days because the tumor was low, that is what the doctor said, so I needed radiation. I was done with both on April.…
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this sounds soooooo good.,,.
For those who like readings stats..there s finally good news... This info came from MD if you want to read the whole story go to : http://www2.mdanderson.org/depts/oncolog/articles/06/4-apr/4-06-1.html Again, what Dr. Abdalla and his colleagues found was noteworthy: patients who underwent surgical resection as a primary…
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Support Groups?
Don't know if it's appropriate to correspond with you good people now that I've lost my husband but want to let everyone know that my prayers continue for those afflicted with this terrible disease. I never had my life impacted by cancer until my dear husband. My heart is breaking from the loneliness I feel without him. He…
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rollercoaster (the bad kind)
Had a PET scan last Wednesday. Got the results Thursday. I have a small lesion in my right lung. (History: rectal cancer treated 2003, solitary lung met treated 2005). Right now I am on a rollercoaster of consultations and further tests. Biopsy not possible due to the location (unlucky). Next test will be CT scan. The good…
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REALLY NEED ADVICE
History: I am Stage II with NO/MO and had my tumor removed on 10 July 06. Started Chemo Regime of 5FU, Lev & Oxiplatin on 18 August. I have had 4 treatments with one WBC booster shot of Neulasta on 9 October. On 12 October I had to go to the ER for a high rate of 155. They kept me overnight for observation. Everyting…
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I'm doing my OWN Naked Happy Dance...
Went for my 3-monther today. Labs showed BOTH the CEA for the CRC AND the CA-29 for the BC to be holding NED!!!! Yea!!!!! Hugs, Kathi
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Cofactor instead of Leucovorin?
Has anyone used cofactor instead of leucovorin when getting 5FU? Cofactor is in trials currently, but not approved yet by FDA, I believe. Cofactor, as I understand it, has the same stuff in it that leucovorin has. It works with the 5FU to kill the cancer. But the cofactor does not have to be metabolized like the leucovorin…
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CP4 ~ a poem for stacy
Hi Everyone, At the opening reception of CP4 ~ The Stacy Gleaso Celebration a beautiful poem was written from Jane (stage4mom) that was very moving. Anyway I just wanted to share it with you all and to thank Jane also. I have over 500 pics and a video will follow in a few days when I can get my son Andrew to help me. As…
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Cancer Returning to Colon Question
Hello, I recently posted about my dad's pet scan lighting up in his liver and colon. My dad had surgery in May 2002 to remove colon tumor and July 2002 to remove liver met. In 2003, his colon lite up on a pet scan and we had a colonoscopy - clean. In 2004, his colon as well as spots on his liver lite up on a pet scan, we…
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blood counts
My chemo ended in June 2006 and my CT-scan was clear and my CEA has remained less than 1, What is bothering me is I can't seem to get my plateletts and white blood cells back to normal. My doc says they are borderline low for stepping in for treatment. I was wondering if anyone had experience with the chemo (xedola)…
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please add to options list
I would really appreciate it both to help our situation and others here on this board if we could come up with a list of treatment options, available and in trial..as well as alternatives. Sometimes I wonder if just knowing all the options there are helps psychologically as well as may assist when talking with an Onc...so…
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Limey
Mark honey, I am so sorry to hear your news but agree with you that you can fight the beast!!!!!!! If what I did 2 years ago didn't work I was going to invest in a trip to HealthQuarters Lodge in Colorado. "It is a 10 day stay for you to get away to and focus on learning and beggining to put into practice certain dietary…
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WHAT A RELIEF
I just got back from the onc and there is no spread of cancer to my bones or my back. I guess I'm just a wimp when it comes to back pain. I now can look forward on this chemo regiment and kick the cancer right out of my stomach! Away I go!
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Does Oxycontin Cause depression?
My dad has Stage IV colon cancer. He has been taking Oxycontin for a few months now. Lately he seems to get extremely emotional and cry about everything. That is completely unlike him. Although it helps with the pain, the depression is making things worse for him. Has anyone had the same experience and if so, was the…
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CP4 ~ Stacys Days Of Our Lives Video
Hi Everyone, On the opening night of CP4 we did a dedication to Stacy Gleason to celebrate her 5 years cancer free. My son Andrew made it and I hope you all enjoy it. Also Andy & I did a video of our lives just to share some of our past and to have some good laughs. Stacys Days Of Our Lives…
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Light at the end of the tunnel...
Hi everyone! I have been reading here everyday, but not posting much....just taking it all in. I am down to my last 5 weeks of chemo, and I'm so happy that it's almost over, but I'm beginning to feel a little nervous. How do I know if this chemo worked for me? I haven't had too many bad side effects at all, well, maybe a…
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The Next Colonpalooza
I have been away for a few days so maybe have missed a few posts but from the looks of things..CP#4 was wonderful.. It makes me sad that there has been so much "back and forth" about the palooza's and the comment from Stacy about "forgeting what it felt to be a stage 4" (I could not find that post and hope it was not in…
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False Positive Pet Scan - Has this happened to anyone else?
Where to begin... My dad has stage IV colon cancer (dx 05/02). In 2003, his colon lite up on a pet scan, so the oncologist ordered a colonoscopy - clean. In 2004, his colon lite up again on a pet scan along with 2 liver mets. Oncologist ordered another colonoscopy - clean and he had surgery (colon biopsied and reattached -…