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Please Help Me
I am a 41 year old married father of 2 (with 1 on the way). I just went in for a colonoscopy this morning due to some bowel symtoms that I have been having. After the procedure I got the shock of my life - the Doctor said that I had multiple (at least 40) polyps. He said he removed one of the larger ones (thumb nail size)…
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New to site
Hello everyone. I've just spent the last hour reading the messages on here and figured I would post a message too. I am 26 years old and am an HNPCC carrier. Can anyone here relate to that? My grandfather had colon cancer at age 38 and passed away at that time. My mom's oldest brother has had colon cancer, my mom has had…
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Ned
Hi all, I'm not around too much anymore...but just wanted to poke my head in to tell my good news. Got scan yesterday that was clear (well besides the usual little weird things that they don't seem to be concerned about). Yay! I'm at my 2 year mark from DX, so onc tells me that is real good milestone to reach. I was DX…
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DC SEMICOLONS - FREE FOOD & DRINKS!
Now that I have your attention... I wanted to send an invite out to the Washington DC-area SemiColons: This Friday (the 13th - yeah, I know...) I am having a Going Away/Clean Scans-still NED/Promotion/Meet the Future Mrs. party at Sine Irish Pub in Pentagon Row. Drinks and munchies are on me from 4:30 to 7:30 (the things I…
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You were right
I finally got my test results back and there was a change in my CEA. It dropped from less than one to what the lab termed non-measurable. Stacy, Kathi, Monica, and Betsy you optimists are always going through life with an attitude I find frustrating to understand and at the same time deeply admire. Thank God for people…
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Prayers Really Needed
Just found out a co-worker who just returned to work from by-pass surgery just found out that he has cancer in the lymph nodes, back and also in the colon. I don't have any other information but waiting on more details. His name is Jeff. Please pray as much as possible.
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Graviola info
I just had a PET scan and it looks like it's back in my liver and lung now. I had a clean CT scan a year ago. Had surgery in 2005 after dx of Stage II without nodal involvement. The onc did not recommend chemo. I do a liver biopsy this Friday the 13th! So I don't have the official dx or tx from the onc yet. Doing tons of…
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It's THAT time again!
Happy Friday, everyone! It's time for that weekly reminder to book your room at the Nashville Downtown Hilton for COLON PALOOZA 5!!! I realize everyone is busy with family, work, treatments, and life in general, but time is ticking!! We have a good number of folks reserved, but there are still a few limited number of rooms…
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chemo brain
Help- I think I'm going crazy! Just a preview- I am a 43 yr. old mother of 3 boys. I was DX stage 3 in Oct. 2005 and after a resection started treatments of oxaliplatin and xeloda. I finished my treatments in May 2006 and spent last summmer healing. I had noticed a bit of chemo brain (recently my sister told me that when I…
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Oxalaplatin
In November of 2005 I had surgery for a malignant tumor attached to the right side of my colon. I had half of my colon removed, the tumor (baseball sized) removed, 29 lymph nodes, appendix and gallbladder removed. I started chemo approx 7 weeks after my surgery. I was scheduled for 12 chemo infusions. I also had a…
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Help re: diagnosis and scans
About 10 years ago I had an enlarged thyroid. I got a biopsy which was inconclusive, was told I needed surgery to have it removed, and got to spend what amounted to a couple months pondering the if I had thyroid cancer or not. Luckily, I didn't. Two years ago though, I had a total hysterectomy due to being diagnosed with…
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Mom has scan today
My mom is having a PET/CT scan today. Her last one was at the end of January and it showed progession. She has two mets, one on each adrenal gland. She decided not to do further chemo and instead she recieved Cyberknife treatments to both adrenal glands. The Cyberknife treatment was 4 weeks ago. She has been off all chemo…
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Scared and Frustrated...
Hi all, I've been absentee for awhile but I read posts here semi-regularly. My story briefly is that my (then) husband Chris was dx w/ stage II Rectal ca in April '03, chemo/rads/surgery ensued. He prevailed except for our marriage which deteteriorated in fall of '05. Speaking of which, I need a new tag name, chrisswife…
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Good news for mom
Hello Everyone: Finally finished around of test from heart, bladder, colon and stomach from the ct scan results. Everything went very well. All biopsies came back negative (wonderful). But, however, there are 4 areas in the lungs we are watching (hopefully nothing). We start all over again with ct scans in June. I feel…
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Anyone Hoarse with Avastin/Camptosar
My husband has been taking Avastin and Camptosar for four months. He has had dry mouth for some time but now he is having a problem with hoarseness. Anyone else have this experience? If so, any suggestions for what to do to relieve this side effect? Hatshepsut
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CSN HOME PAGE 2 OF OUR OWN
Check out Scouty and JaDot on the home page. Two mighty fine looking women!
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IV line
On Wednesday I am having what is known in the UK as a "Hickman line" inserted under my collarbone in preparation for six months of Folfox. I had presumed this was what is referred to on this board as a "port" but I've just read something which suggests I may be having an old-fashioned and cumbersome device compared to what…
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Scan tomorrow
Hi Everyone. My husband's first scan after starting chemo is tomorrow. We are hoping and praying for some positive signs that the tumors in his liver are shrinking and no progression. I know you will all keep us in your thoughts and prayers and want you to know it means a lot to us as I believe prayers are the most…
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NO REVERSAL FOR ME
I had my reversal scheduled for this Thursday. I called the onc today and left a message that it was scheduled. He called me back and told my husband that because I'm taking Avastin that if I stop I can't start again. I guess I'm on some type of trial. So it looks like another year of pooping in my bag. It was just an all…
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trying to start a support group
In Minneapolis where I live, I have not been able to find any type of cancer support group to attend. So... I am looking to start one. Has anyone done this, or does any of you attend any cancer support groups? I would be interested in learning from you. thanks Limey (Mark)
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Previous Stage III - more GREAT news
Hi All~ A little background...My Dad was diagnosed with stage III colon cancer (4 of 15 lymph nodes positive) at the age of 59 in January 2004. He had surgery and they took out a foot of his colon and resected the remainder. He endured six months of FOLFOX. Fastforwarding to now...I am THRILLED to say that we just received…
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WBC dropping!
I had my "port" put in Friday. During the pre-surgery testing, I was told my white count had dropped to a 3 something. I go to the onc tomorrow and I'll have my blood work done Thursday for my chemo treatment this weekend. I'm curious as to what is done as far as medical treatment when the count drops and what precautions…
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THANKS!
I'm new to this and have trouble navigating the system, but I want to thank all of you who responded to my request. I'm thinking hard about chemo this time and maybe using a holistic approach. Someone told me about a site called Cancerfightingstrategies.com and I was amazed at the testimonials some people gave. I hadn't…
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Frustrated with the medical system
Well I'm 18 months after treatment and may still be NED from Stage III. I went in for the usual 4 month blood draw on Wednesday. Onc said my white blood cells were just about normal but that the platelets were still down but not so low to be of a big concern. Red blodd cells normal. The tests I was obviously concerned…
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panitumumab
Anyone taking or know someone who is on panitumumab only? What were your side effects? Did it shrink tumors? Do side effects diminish or become less severe over time?
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CELEBRATION!!
Since there seems to be an array of inspirational stories lately, I feel that I need to remind everyone about the party we're having to celebrate in NASHVILLE, TN. Colon Palooza 5 will be held Sept 12 to Sept 16, 2007. It is a full-blown celebration of life. We go sight-seeing, check out local bars/restaurants, and meet…
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first treatment
hi everyone Had my first treatment on Monday, did pretty well, better than I thought I would do. side effects were minimal mainly just tired. I'm sure I'll have some bad days as treatments go on but for now feeling pretty good. thanks for all your support, getting through the first one was the scariest now I know kinda…
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Chemoemblization
Hi All, Been a really long time since my last post, but I read every day :) My husband is no longer responding to systematic chemo's, and the radiologist's have reviewed his scans & said he is a good candidate for "chemoemblization". Has anyone here had it? A catheder is inserted thru the groin and fed directly into the…
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Update - good news
Hello all. Her is a quick history: dx stage 4 colon cancer on 8/28/06. Colon surgery on 9/1/2006 removed 21 nodes, 1 positive. I had a CEA of 17. I had a 3 cm tumor located in right posterior lobe of the liver, by CT and PET. I went on 6 months of chemo (xeloda, erbitux, oxyliplatin) interrupted by a Thanksgiving pulmonary…
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reversal question
My onc is aginst me getting my reversal done. He said he is afraid of "blockage". I was upset in his office today so he said after chemo we'll do some scans if all looks good we'll talk about the reversal. I'm on number 10 of 12 for the second time around. I've been wanting this since I got the bag in April 2005. Anyone…